Kimi Posted December 8, 2017 Share Posted December 8, 2017 I am now on my 24th radiation treatment. I am so tired most of the time. Did anyone else experience this? Link to comment Share on other sites More sharing options...
Tom Galli Posted December 9, 2017 Share Posted December 9, 2017 Kimi, Unfortunately, yes I did experience extreme fatigue during the last week or so of my radiation. I hardly had enough energy to go from my car to the clinic so being tired most of the time is quite normal. Stay the course. Tom Link to comment Share on other sites More sharing options...
Kimi Posted December 9, 2017 Author Share Posted December 9, 2017 That’s exactly how I feel Tom. Now every pain I have I think the cancer has spread. I will be happy when radiation is over. How long did it take you to get some energy back? Link to comment Share on other sites More sharing options...
Tom Galli Posted December 10, 2017 Share Posted December 10, 2017 Kimi, I started recovering my strength about a week after my last radiation and by 3 weeks out, I felt completely normal. Stay the course. Tom Link to comment Share on other sites More sharing options...
Kimi Posted December 11, 2017 Author Share Posted December 11, 2017 That’s good to no. My upper back really is starting to get sore to and having some swallowing issues. Any tips you can think of let me know. This is a little tough I really appreciate your help Tom and sorry if I bother you. Link to comment Share on other sites More sharing options...
BridgetO Posted December 11, 2017 Share Posted December 11, 2017 Hi Kimi, I'm glad Tom can be helpful to you. Don't worry about bothering him, or any of us. We're all here to support you. Bridget o Link to comment Share on other sites More sharing options...
Kimi Posted December 11, 2017 Author Share Posted December 11, 2017 9 hours ago, BridgetO said: Hi Kimi, I'm glad Tom can be helpful to you. Don't worry about bothering him, or any of us. We're all here to support you. Bridget o Thank you. Link to comment Share on other sites More sharing options...
Tom Galli Posted December 11, 2017 Share Posted December 11, 2017 Kimi, For upper back pain, if it is localized you might try asking your doctor for a script for lidocaine patches. I use these to address chronic pain from too many thoracic surgeries and while they don't eliminate the pain, they do reduce it, often enough to fall asleep. If the back pain is wide spread, ask for a script of Lidocaine Ointment, USP 5% and have someone rub it on the painful area. Again, it won't eliminate but will reduce. Swallowing is harder to resolve. I'd switch to a near exclusive ice cream diet. My wife had me on an ice cream diet during chemotherapy. My taste buds made everything unappetizing except for mint. Mint, for some reason, tasted very good (I dislike it now) and Martha made chocolate mint ice cream with crushed mint Oreo cookies. She has a Masters Degree in Dietetics and realized that calories were very important to completing a course of chemotherapy. And, her ice cream was loaded with calories. During radiation, you may not have any trouble with taste buds so could enjoy any flavor of ice cream. Just think of the joy of ice cream for 3 meals a day...! Stay the course. Tom Link to comment Share on other sites More sharing options...
Kimi Posted December 12, 2017 Author Share Posted December 12, 2017 6 hours ago, Tom Galli said: Kimi, For upper back pain, if it is localized you might try asking your doctor for a script for lidocaine patches. I use these to address chronic pain from too many thoracic surgeries and while they don't eliminate the pain, they do reduce it, often enough to fall asleep. If the back pain is wide spread, ask for a script of Lidocaine Ointment, USP 5% and have someone rub it on the painful area. Again, it won't eliminate but will reduce. Swallowing is harder to resolve. I'd switch to a near exclusive ice cream diet. My wife had me on an ice cream diet during chemotherapy. My taste buds made everything unappetizing except for mint. Mint, for some reason, tasted very good (I dislike it now) and Martha made chocolate mint ice cream with crushed mint Oreo cookies. She has a Masters Degree in Dietetics and realized that calories were very important to completing a course of chemotherapy. And, her ice cream was loaded with calories. During radiation, you may not have any trouble with taste buds so could enjoy any flavor of ice cream. Just think of the joy of ice cream for 3 meals a day...! Stay the course. Tom Thanks for the info! Hopefully I will be as good as new in a few weeks! Link to comment Share on other sites More sharing options...
Kimi Posted December 12, 2017 Author Share Posted December 12, 2017 Thanks Tom I will try all of the above! This has definitely been a challenge. Thanks again for taking time to answer. Link to comment Share on other sites More sharing options...
Mally Posted December 14, 2017 Share Posted December 14, 2017 On 10/12/2017 at 6:17 AM, Tom Galli said: Kimi, Unfortunately, yes I did experience extreme fatigue during the last week or so of my radiation. I hardly had enough energy to go from my car to the clinic so being tired most of the time is quite normal. Stay the course. Tom Link to comment Share on other sites More sharing options...
Mally Posted December 14, 2017 Share Posted December 14, 2017 Hi Tom ive had trouble getting into this forum for the last 6 months and before that it was easy and i got notifications but i dont now so i thought maybe there was an app for lungevity but not in play store because ive always used tapatalk and a msg comes up to press on this browser and then im directed so if you see this can you let me know please ...thanks Mally.. Link to comment Share on other sites More sharing options...
Mally Posted December 14, 2017 Share Posted December 14, 2017 My scan after chemo was clear and ive just recently had the 6 month scan and i have 2 lymph nodes are slightly enlarged from last scan in the upper chest area and that was my gp giving me results and he said when i see my oncologist next week that i will be told i need more treatment so anyone got any ideas what treatment ? Thanks ..Mally.. Link to comment Share on other sites More sharing options...
Tom Galli Posted December 14, 2017 Share Posted December 14, 2017 Mally, Here is the link for LUNGevity mobile app. It is much better than Tapatalk. Stay the course. Tom Link to comment Share on other sites More sharing options...
Mally Posted December 14, 2017 Share Posted December 14, 2017 The mobile app is not available in australia it says Link to comment Share on other sites More sharing options...
LaurenH Posted December 24, 2017 Share Posted December 24, 2017 Hi, Mally, Thank you for alerting us to this! Our offices are closed through January 1, but I will investigate as soon as everyone returns on January 2, 2018. With gratitude, Lauren -- Digital Community Manager LUNGevity Foundation Link to comment Share on other sites More sharing options...
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