Curt Posted March 19, 2019 Share Posted March 19, 2019 Does anyone have any information on this study? Did anyone participate? It looks like it concluded in January. I’m very interested in the results. https://www.dana-farber.org/thoracic-lung-cancer-treatment-center/inherited-egfr-t790m-mutations/ Link to comment Share on other sites More sharing options...
Rower Michelle Posted March 19, 2019 Share Posted March 19, 2019 This is an Addario Foundation trial. Why not try contacting them directly? Here is the contact info: Kim Parham RN BSN Senior Manager Patient Navigation & Clinical Program Development 650-779-8286 (cell) 650-598-2857 ext 208 kparham@lungcancerfoundation.com Link to comment Share on other sites More sharing options...
Curt Posted March 19, 2019 Author Share Posted March 19, 2019 Thank you Michelle. EMail sent. Link to comment Share on other sites More sharing options...
ale Posted April 27, 2019 Share Posted April 27, 2019 Hello Curt, have you news about this? Thanks...I'd like know every info about EGFR and ereditary... THANKS Link to comment Share on other sites More sharing options...
Curt Posted April 27, 2019 Author Share Posted April 27, 2019 No news yet Ale. I’ve been checking in with them but they have not published anything yet. Link to comment Share on other sites More sharing options...
ale Posted July 15, 2019 Share Posted July 15, 2019 Hi, news about this?? Thanks Link to comment Share on other sites More sharing options...
Curt Posted July 16, 2019 Author Share Posted July 16, 2019 I haven’t seen any. I have a Google alert set up so I’m hoping to see some funding soon. Link to comment Share on other sites More sharing options...
ale Posted July 17, 2019 Share Posted July 17, 2019 Thank! Hi all Link to comment Share on other sites More sharing options...
Yvonne S Posted February 17, 2020 Share Posted February 17, 2020 Hi Curt, I participated in this study. My tumor, and then germline testing was positive for EGFR T790M mutation. My grandmother, mother and sister died from lung cancer. I can’t direct you to the results but know a little about the study. I met with Dr Oxnard at Dana Farber. He helped get my brother and niece tested, both negative. You are the first person I’ve seen mention T790M so I’m curious if you have encountered it. Link to comment Share on other sites More sharing options...
Curt Posted February 17, 2020 Author Share Posted February 17, 2020 Hello @Yvonne S. I have an EGFR exon 19 mutation. I did not have the T790M mutation. I was told I had no genetic markers indicating a family genetic connection to lung cancer. I found that impossible given the fact that my paternal grandmother, my father and six of his nine siblings had it and now I do. My paternal Great grandmother died of breast cancer that some think was probably lung cancer. The doctor explained that some families are just predisposed to cancer. He used the example that some families are predisposed to baldness. There is no genetic mutation that causes that, just a genetic predisposition to it. There are more advances on this front happening as we speak. I found this article interesting. https://www.sciencemag.org/news/2020/02/massive-cancer-genome-study-reveals-how-dna-errors-drive-tumor-growth Link to comment Share on other sites More sharing options...
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