islandgirls Posted April 7, 2021 Share Posted April 7, 2021 Boyfriend had his second Triplet infusion a week ago tomorrow. He is following the same pattern as the first in that he has had no real nausea, just extremely tired. All of the horrible side effects that people were warning him about, thankfully have not occurred. A new development is his lack of appetite where “nothing sounds good.” But the good news with that is if food is put in front of him, he eats it. He complains of a weird after-taste and keeps thinking his breath is bad. His sleeping is still an issue. I mentioned in another post that he has been complaining of pretty severe knee pain for a couple of months now. It actually began before he was diagnosed. Last week he got an MRI which showed a torn meniscus, a Baker cyst forming, and multiple round cystic lesions on his tibia and femur. Trying not to go to the dark side and jump to these lesions bring bone mets, but until I hear otherwise it is hard to do. The lack of concern by his current oncologist has me rather disgusted. Instead of even having a discussion on whether this could be bone mets, he literally just pushed him off to his family doctor and is urging him to go to an orthopedic surgeon. As he “thinks the pain is definitely from the torn meniscus.” Hmmm. When it walks like a duck and talks like a duck... This lack of clarification prompted us to get a second opinion that he has been toying with doing it anyway, but now he is scheduled to meet with another oncologist next week. I feel in my gut that this new oncologist could be a game-changer. I am hoping to get some questions answered. Of course I have been relentlessly researching and have stumbled upon some interesting findings of PD-L1 expressions actually changing after immunotherapy treatments. His is 0, which is what has promoted his current oncologist and his snarky nurse (she actually told Boyfriend that she is sure the knee pain is not from bone cancer ~ Wasn’t aware she is an MD!!) to spread gloom and doom to his daughter about his “poor prognosis.” I am also going to inquire about a second biopsy. My gut is just not sitting well with what has been found this far. His only mutation is the HER2 (ERBB2 Exon 20), but I have read instances of a second biopsy finding different mutations. One day at a time! 💜 Quote Link to comment Share on other sites More sharing options...
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