Guest cheri Posted March 2, 2004 Share Posted March 2, 2004 I haven't posted an update on my Dad for awhile and I hope that I am posting this in the right place! There's not a whole lot of new changes, but I feel so much relief and comfort when I vent and "post" and receive responses of support and encouragement. He received his second round of chemo (Carbo/Taxol) last Wednesday and it really hit him hard Friday night. He was in the bed all weekend and slowly seemed to be coming out of it today. He says that it's like the worst case of flu he's ever had...complaints of body and joint aches, especially. He's in a randomized clinical trial at UAB and unfortunately was not picked to receive the antibody drug called ABX-EGF. However, if there is any progression of disease he will be placed on it ASAP. He's also having a CT scan, chest x-ray, and ultrasound next Wednesday to find out what has happened since his diagnosis in December. He was placed on Glucophage for his high sugar results and now they have concluded that it was definitely from the decadron. He takes more glucophage the day before and day after chemo to help combat the high sugar results. We have stopped taking supplements for now until his test results next week. I am very optimistic and anxious at the same time to say the least! Please keep us in your thoughts and prayers regarding his test results next week. My father is having a lot of shoulder pain that they feel is arthritis (according to bone scan). They put him on celebrex and it did help until this last chemo treatment...he says that it is beginning to bother him again even with the Celebrex. We're just praying and hoping. There are so many forks in this road that I feel we are constantly wondering if we are choosing the right paths with every decision being made! Thank you again for being such a wonderful support system for me. I have grown to really like all of you even though you don't hear from me very often. Thanks for sharing all of your experiences with this horrible disease. Cheri Quote Link to comment Share on other sites More sharing options...
karenl Posted March 2, 2004 Share Posted March 2, 2004 Hi Cheri Sorry to hear that your Dad hasn't been feeling too well - bad flu-like symptoms seem to be pretty common with the folk on this board! Will be hoping for some great results next week. I note that you say your Dad has been taking Celebrex - are you aware of the studies that suggest Celebrex may enhance the effects of chemo? If you would like some more info on this, click on the Search icon at the top of the page under Lung Cancer Message Boards. My mum has recently started taking it, so we are keeping our fingers crossed! Hope all goes well and will be thinking of you next week. Karen Quote Link to comment Share on other sites More sharing options...
ginnyde Posted March 2, 2004 Share Posted March 2, 2004 When Earl was on the Carbo/Taxol chemo, they put him on 800mg of Celebrex a day. Now off chemo, but still on Celebrex. Maybe your Dad needs a higher dosage of Celebrex. Ginny Quote Link to comment Share on other sites More sharing options...
Elaine Posted March 2, 2004 Share Posted March 2, 2004 Cheri I am sad to hear your father is having pain, and I will keep good thoughts going your family's way about the tests next week. SOmetimes I think there's got to be a better way. Elaine Quote Link to comment Share on other sites More sharing options...
MO_Sugar Posted March 2, 2004 Share Posted March 2, 2004 Prayers and good thoughts headed your way! God Bless, MO Quote Link to comment Share on other sites More sharing options...
Joe B Posted March 2, 2004 Share Posted March 2, 2004 Prayers being said for your father and you....... may god give you the peace you desire,and lead you to make the right decisions about your fathers care..... may healing be on the way, and be sustain for a long time Joe Quote Link to comment Share on other sites More sharing options...
john Posted March 2, 2004 Share Posted March 2, 2004 Hope your father is doing well. I thought if a trial had two arms, they were usually double-blind. Is it usual for the patient to know if they received the drug or not and how do they rule out placebo effects. Quote Link to comment Share on other sites More sharing options...
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