jamie Posted August 27, 2004 Share Posted August 27, 2004 Hi everyone, Just got to wondering, now that my Dad is NED, how long will he stay that way? I know everyone is different, but were SOOO worried b-cause of the high reoccurance rate the first 2 years after surgery...just wonderin how long you guys stayed Ned! Of course were hopin for FOREVER!!! I was trying to do a poll about it, but cant figure it out! Jamie Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted August 27, 2004 Share Posted August 27, 2004 Well I have sclc extensive and it was found in 2/01 I went thru 9 mos of chemo then 1 yr NED. Then 2/03 it returned-6 mos chemo and 6 weeks of radiation and tada!! Another 1 yr NED. Everyone is different. Just pray for long remission periods and make the best of day of them!! Congrats on the NED!! Love Cindy PS I did go back every 2 mos for CT's, I now am going every 3 mos. So he needs close follow up care. Quote Link to comment Share on other sites More sharing options...
Andrea Posted August 27, 2004 Share Posted August 27, 2004 Jamie, I am laughing out loud b/c you and I are SO alike. Remember I said you were just a few months behind me in that your dad had surgery after my mom? You are giong through the same emotions as me! I am going to PM you later, i am off with my mom now, i just came on quickly to see if there were any postings about Denise's mom Quote Link to comment Share on other sites More sharing options...
Snowflake Posted August 27, 2004 Share Posted August 27, 2004 So far (knock on wood), as of today, 564 days - 1.54414784394 years.... ...and I'm looking at that being an "infinity and beyond" kind of thing... Quote Link to comment Share on other sites More sharing options...
Don Wood Posted August 27, 2004 Share Posted August 27, 2004 Lucie went a year from last chemo to having to have chemo again because of recurrence. She is Stage IV. Don Quote Link to comment Share on other sites More sharing options...
jamie Posted August 28, 2004 Author Share Posted August 28, 2004 Thanks everyone for your replies. Im not freaking out or anything, just kind of curious of whats in store for us now. I think after my dads preventative chemo is over (3 more rounds-9weeks to go), Ill be freaking out cause we just have to wait . I know those scans are going to be nerve racking! Anyway, just wanted to say thanks! Jamie Quote Link to comment Share on other sites More sharing options...
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