Mally

Sorry just realized i had already asked about mutations and that you gave an answer

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Seeing pulmonologist today


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There's no way for anyone but a Dr. to know if you should be concerned. What's ok for you could be bad for another and vice versa.

Fingers crossed!! I hope it was nothing.

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I was told they took 20 nodes out and 7 had cancer cells in them so made me think about just how many nodes are in there

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Now i can see it better ...well done 

Its good to hear that i may not lose my hair at least that would be something positive in this journey 

OK, I got on my laptop and I'm seeing the same photo I just changed too. Unfortunately i am seeing that my 3 year old 4 mile long profile thing is on every post I make. I better look thru how to tweek that stuff again. Obviously its been a while since i have done much with it. 
Take care!
OOH! I tried to attach it to this post & see what happens  

Mally,
That's right.  I remember now.  Perhaps the adjuvant label refers to the proximity of your surgery.  That is what we sometimes call "dust-up" chemo after surgery.  If so, let's hope it clears the lymph nodes.
Stay the course.
Tom

Liz,
Welcome here.  
Your report of "small growths" is of concern.  If you feel pressure or inflammation in your neck or chest area this long after surgery, you should report it to a doctor, pronto!
It has been almost 13 years since my lung was removed and I had two additional surgeries to repair a leak in my chest cavity.  In the area where they did the repair - where my right main stem bronchus is or was - is still very sensitive to pollutants or pollen and I experience asthmatic symptoms during the spring and fall pollen season.  I didn't have asthma before my surgery but I use inhalers daily also.  Sometimes they help and sometimes I need to retreat indoors.
We are glad you found this site also.
Stay the course.
Tom 

Thank you for your support on the forum. It is highly appreciated. Thank you

Hi, Audrey,
Welcome to LCSC! I am sorry to hear about your friend's diagnosis but I'm glad that you've joined this community.This is a great place to connect with patients, survivors, caregivers, and advocates who have also been affected by lung cancer. Feel free to start new threads or join ongoing conversations in the discussion boards. There are also member blogs and photo galleries and a calendar with upcoming lung cancer events all over the country. We look forward to getting to know you!
Lauren
--
Digital Community Manager
LUNGevity Foundation

Hi, Cindy,
Welcome to LCSC! I am happy to hear that they found your lung cancer early. We'll be thinking of you tomorrow! Please update us when you can after your surgery and I'll be happy to tell you more about this online support community.
We are here for you!
Lauren
--
Digital Community Manager
LUNGevity Foundation

Hi I am Audrey and I am new to this forum too. I was suggested this forum by my friend who is suffering from lung cancer. I hope I will get some help here on how to keep up the faith in her.

Hi Cindy.  I had a lobectomy earlier this year and have had a good recovery.  Wishing you a speedy recovery and a good outcome! 

Hello Cindy and welcome.  So you are having surgery in just a few days.
So glad for you that they found it in the early stage.  Hope it all goes well for you.
Please when you are able let us know how it went and how you are coping.
Best wishes , Donna G

I am a newbie and am grateful to find this support group. I am going in for a lobectomy this coming Thursday. Stage one, early detection, hoping for surgery as the cure. Anxious and nervous to say the least. 

Welcome here Cindy,
Glad for your early find and hope surgery goes well. 
Let us know how you are doing when you get discharged. 
Stay the course. 
Tom

Thank you both for your support and insight.
I just spoke with my mother after she received her first chemo treatment in Boston. Its obviously very early, but so far she is only reporting some dry-mouth for side effects. For us, Dana Farber seems to be the most highly recognized and dedicated cancer facility in the Northeast area where we live, so we are placing our trust in them. I am impressed with their reputation and their multi-team approach to her situation. My mother seems very confident with them. I do get nervous because I know even at some of the most cutting edge facilities, modern medicine can only go so far for some.
SKMCORNETT - Congratulations! I hope my mother can follow in your path after her induction chemo. It was quite alarming to learn during my research that lung cancer is one of the most serious/deadly cancers, however funding tends to go to other cancer research. Perhaps its the misperception that only smokers get lung cancer and are responsible for their situations?
TOM - Her Oncologist was very positive and confident that her chemo doublet will reduce her tumor and allow resection in the next month. This was important to hear because I heard surgery is best for long term survival probability. If he is correct about this, he will have earned multiple points from me. The oncologist did discuss the 50% possibility of recurrence. He suggested that chemo and surgery should be a first line treatment followed by second line treatments of radiation and targeted therapies ect. Hopefully, if a recurrence does occur, it will be a few years down the line where some of these targeted therapies/immunotherapies are perfected.
She is having her tumor genetically profiled for mutations in preparation for future treatments. I hope she won't need them.
I wish you both a safe weekend.
God bless.
 

Mary,
Oh la' la'.  You got that picture insert thing down pat!
Stay the course.
Tom

Molly ;I liked to know if you had vats surgery? And your surgery was only 3 weeks ago right? You have to get stronger and recover first before u get chemo right? I had vats surgery  lower right lobe stage one Aden.clean margins and no lymph nodes involved. I am so thankful. But its been only 6 weeks and my incisions are still sore and when I sneeze I can tell I'm not yet healed inside. I couldn't imagine having to have chemo yet until I would be stronger mentally and physically. It is good to learn everything about cancer and treatments but its also important to recover first with no worries so u can heal.I'm cancer free right now but there is always going to be the fear of it coming back but I still have to heal now and not worry about what could happen. I wish you and everybody the best. And my favorite saying that I learned from Tom is STAY THE COURSE.. God bless!

Mally,
Good morning.  I did not lose my hair during chemo.  The PA at the oncology clinic said I had a 50/50 shot of losing it, but the oncologist said that I likely wouldn't lose it.  I have a friend who took cisplatin for a different type of cancer and he lost his hair.  The PA told me to be gentle with my hair - don't wash it every day, try to minimize use of hair dryers and curling irons, etc.  I hope this helps.

I cant see the photo mary ....what do I do to see it ?

Duh!! I am on tap talk or something... the phone app. I don't know if it changes in the regular lungevity program. Grrr. Let me know if that's the issue & I will find my way back to the regular site.

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It should be my profile picture. I was holding a napkin behind my head as if it were a backdrop.
My old profile pic was a giant close up with a goofy smile. If it didn't work in don't know any other way to show a picture on here....



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I joined last June, but this is my first post. I'm 62, dx January 2016.  Stage 4 nsclc, adeno, pleural effusion, inoperable 3cm tumor & sub-centimetre nodules in both right & left lungs. No mutations.  PDl-1 positive 80%. After the initial  pleural effusion was drained right upper the lobe remained collapsed.  Treatment was 4 Carbo/Alimta, 2 rounds of radiation & Alimta maintenance X 5.  Some Pleural effusion always lingered on scans while the 3 cm &  the sub-centimetre responded . In August I was hospitalized for pneumonia & pleural effusion,  then  immediately after I was diagnosed with pneumotitis. I was off treatment for 4 months., last Aug12.  SOB & rapid heart rate started with the pneumonia. SOB improved -EKG was normal in September, but rapid heart rate remained, usually 115 on exertion, 100-105 at rest.  Onc explains it's because of the disease my heart is working harder. Climbing stairs in our home always challenging.  While on prednisone for pneumotitis SOB returned  in mid-November due to  a pleural effusion, drained. Then another, drained. Tapered off prednisone, chest tube inserted for pleural effusions Dec 7. . Regular drains now every 2 days. Started Keytruda Dec15. Rapid heart rate remains, has been 135 on exertion. At rest 105-115.   SOB Did not improve with chest tube as it was supposed to. Oxygen was recommended due to Change in my O2. Since chest tube was inserted o2 is tracked by visiting home nurse & is down to 90. On exertion lower with rapid heart rate. 2nd Keytruda January 6. I do not feel any side effects from Keytruda.  My SOB has just declined. My last CT - right lung was difficult to see due to a pleural effusion, left lung has some spots.  My onc was onc was on vacation my last visit & I will see home this week along with pulmonary.   However, since my September scan the right lung is not getting much air & is operating at about 10%.  I am wondering if anyone has had these problems.  At first I was using oxygen for exertion, now I'm using it all the time due to changes to more changes in o2.  Can I become oxygen reliant? I only do the stairs once a day Very slowly.  Thanks, much appreciated.