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rogfam

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Posts posted by rogfam

    John

    in GRIEF

    Posted

    I'm so so very sorry. What can mere words do at a time like this? :( I'm just devastated for you. I HATE THIS DAMN DISEASE!!!

    My husband's scare..

    in GENERAL

    Posted

    It's taken me about six weeks to get the place where I can finally talk about this with my lc family.

    Mid September, my husband was getting ready for work, like he does every week day afternoon. We ran to the bank, came home, he complained of being just SOO tired, and decided to take a quick nap before work. He laid on the couch, but quickly got up saying he was nauseas, walked to the table, where I was standing, and passed out... He came to just as quick as he went down, got up, walked to the bed, and complained of being cold. He said he was fine, prob just got up to fast, is why he passed out. He proceded to have chills, and had a 'breakdown' when we couldn't find the remote control! It scared me to death, how he had just begun acting so weird. I called the ambulance, just to come and check him out. They did their test, his heart was fine, bp was a little low. He wouldn't go with them to the hospital, figured the flu just hit him quick.

    That night, along with the following week was just a nightmare. He had chills, fevers up to 103, then sweats.. He was absolutely delirious; he said things that didn't make any sense at all... He began coughing up blood by morning, and had also gotten a terrible pain in his shoulder when he breathed. By this time, I told him he was going to the ER and that was it. *he was ready to go by this time as well!* I got his things together, got him in the van, where I drove for the longest 45 minutes of my life to the hospital. We got in right away, because he had chest pains. This is only 18 hours into our ordeal.

    They do bloodwork, ct scan, and decide has a severe agressive form of pneumonia. He was already septic, it was in his blood stream. He spent two days in ICU. They said he could've died had I not gotten him there when I did. I was scared to death. His respirations where twice what they should be as I watched his body fight this infection with all he had. I prayed...

    He was moved to a regular room, where he had to stay for 3 more days, as the docs wanted him to have 5 days worth of IV antibitics. He was on morphine for the pain as well; he hurt so bad when he breathed.

    AS IF all this wasn't bad enough... This pulmonologist comes in to our room and says this:

    You have a mass in your lung, nothing else shows up like this, prepare yourself for the worst, you're looking at chemo and radiation. OMG I could've died right there. AND how could he just tell us this by just looking at a ct scan?? Don't you need a biopsy to confirm?? Shouldn't he have said, 'you have something that looks suspicious, I want to ck it out. Let's do a biopsy and see what iit is.'

    I slept in that tiny hospital bed with my husband that night; holding each other tight, not knowing what was to come.. (I knew I would cry writing this.. prob why I waited so long..)

    (If you're still reading this, GOD BLESS YOU! :))

    So, we get out of the hospital, depressed, and waiting for a few days for the scheduled dreaded biopsy.. The day arives, my husband goes in, I sit and pray. The doc comes out and says this, 'I couldn't find anything to biopsy' I get all excited and he says, oh no, we're not done yet, could be that it's just too small for me to see with this (instrument that they use when going in to do a biopsy). He orders another ct because you can see more magnified with it. We go home, a few days later the doctor calls and says, 'whatever it was is gone'. PRAISE GOD! Wonderful news. He said that what he saw must've been really bad pneumonia, or he was the luckiest man ever.

    But over the next few days, while I'm so relieved.. I'm soo ANGRY with this crazy doctor for telling us this, without KNOWING. HOW COULD HE? It doesn't really matter, I don't guess, but it does to me.. He took years off our lives with that scare!

    The doctor does want a follow up ct in three months because of 'enlarged lymph nodes' in the chest area. On a positive note, my husband has quit smoking. He's done wonderful and I'm so proud of him. I don't know what I'd do without him.

    I know how it feels to have a mom with lung cancer, and it's beyond horrible, but now I had a taste of what it's like to have a spouse with it... I want no part of it. My heart goes out to all you spouses, and my poor Daddy... And to the survivors.. my husband had a week where he really thought he had it, and that it was going to be so bad, and spread everywhere... He was so worried about ME through all this..

    It's just terrible, all the way around, for all invovled..

    I'm sorry for this being so long. I think it did me good to get it all out though.. So, thank you.. for listenig, and for always being here for me, you are all wonderful people, my lc family.

    Christy

    We didn't get good news either..

    in MEMBER UPDATES

    Posted

    The cancer is coming back in mom's lung. There's no tumor yet, thank God, but the PET showed a 'hot spot'. I was just so scared it would be in her gallbladder and/or pancreas as well, with all the gastro problems she's having these days.. So, that's one good thing.

    So, on to Tarceva again. I pray it works.. I just want my mom to feel like my mom again.. :(

    Thanks for your thoughts and prayers.

    Christy

    Update on my mom

    in MEMBER UPDATES

    Posted

    *I really didn't know where to put this, so feel free to move it* :)

    Ok, this has been a hard year. Last Christmas eve mom was in the ER with nausea and vomitting. They never really found out what it was. She was treated for dehydration, low bp. She's had numerous tests this year. She's found out she has a groin and a hiatal hernia. She has ulsers, in her esophagus, and her stomach. She had a precancerous polyp removed from her stomach a month or so ago. She's been given nexium and other things to 'coat' the problem areas, AND STILL the nausea continues. She's had loss of appetite and weight loss, that just continues. Her cancer marker goes up each time she has blood work. They finally did a gallbladder test and found it's functioning at 48%, but upon meeting with the surgeon yesterday, he's not so sure it is her 'cure all', and wants to wait on removing it. He recommends seeing the gastroenterologist again and having more tests.

    Oh, and she also her adenoids biopsied because of enlagement, but they turned out fine.

    As you can imagine, my poor mom is so sick of all this testing, doc appts, feeling sick all the time...

    Today she woke up with her stomach hurting her again. She has to have her PET at 11:00.

    IT's ALL SO FRUSTRATING!!! WHY haven't they found out what is causing this yet?? WHY are docs not aggresive enough, WHY don't they care enough?

    I think she had a pet six months ago and it was fine, but with the marker going up, and all her symptoms, something is going on. :(

    (If you pray, keep us in your prayers.)

    And my dad's brother, he's not doing well either. They couldn't remove the cancerous lung, (after trying for 5 hours!) and he can't breathe good at all now. He has night fevers, they're treating him with antibiotics and inhalers.

    Ok, enough for now. I'm sorry for not coming her as often as I should. I do love and pray for you all.

    I'm still working hospice, and love it. So far I have had no cancer pts, most of mine are just old and nature is just taking its course.

    Christy

    Mom's having a PET and CT this week.

    in MEMBER UPDATES

    Posted

    This has been a rough year for mom. But I'll go into that in a different thread!

    Thursday she will have a PET scan, and Friday a CT scan. She says it's just too much to do all in one day.

    The lc hasn't been back since jan 'o5, but she's had a loss of appetite, and weight loss.. Her gallbladder isn't functioning right (only took a YEAR for 'em to figure that one out!! :evil:) Anyway, I'm scared..

    Christy

    Any Lymph node success stories?

    in GENERAL

    Posted

    My mom had lymph involvment as well, and that was seven years ago and she's doing great, even though she had a recurrence two years ago, with more lymphs involved as well. Today, she's NED! :)

    So, get back up to the top of that ladder! Stay Positive!!!

    Hi!!

    in GENERAL

    Posted

    Hi Peeps!

    Haven't been here in so long! I have missed you!

    Now that I work, I don't have much time for surfing around like I used to!

    A lil update for ya:

    My mom is doing pretty good. Last scans showed NED!!! Praise God! She is having some colon troubles, diverticulitis. Some bone degeneration is giving her back/neck some troubles, but all in all she's good! :)

    My uncle, with lc, went in to have surgery to remove the cancerous lung, they worked on him for over five hours and couldn't get it out. It's too close to the major artery. :( So heart breaking. He can't have any more radiation and hasn't decided yet if he wants more chemo or not.

    My job as a home health/hospice aide is going great. I love it. I love the people, it's been a wonderful experience so far. (the only bad part is buying gas for all the traveling I do...)

    Feel free to update me on YOU, cause Lord knows I don't have time to go back and read all these posts!! lol

    Love to you all,

    Christy

    (((hugs))) for Katie!! :wink:

    She's gone

    in GRIEF

    Posted

    OMG.. :( I'm so so sorry.. I haven't been here in forever; just seeing this.. :( I don't have any words either, I'm just so sad for your loss. My prayers are with you and your family.

    Christy

    Mom is back in the hospital

    in MEMBER UPDATES

    Posted

    Well, spent the morning with her. They have her on a heart monitor and a constant blood pressure reading too because her bp is so low.. 74/47.. It was 90/55 when I left. The doc is thinking dehydration is the cause of that so they have her on iv fluids. I don't know how she could be because she is so good to drink lots of water... Anyway, we still know nothing.. I know she's edgy and wanting outa there real bad! lol I bet we won't know much since it's the weekend...

    I'll update ya when I know more.. :) thanks for listening and thinking of us.

    ya'll are great.

    Christy

    Mom is back in the hospital

    in MEMBER UPDATES

    Posted

    She went night before last because of pain in the heart area and not being able to breathe. She hasn't felt good ever since they drained that fluid a few weeks ago.

    She's on her way right now to a different, much better hospital. They're saying inflammation. They don't really know anything yet. She'll have blood cultures done again because the hospital she just left said soemthing was growing, but that it could be from contamination...??? o..k... So, who knows...

    I just want her to feel good again..

    I'll update ya'll when I know more...

    Christy

    My grandma..Obit link added

    in GRIEF

    Posted

    My grandma passed yesterday morning. I'm so lost this morning.... She was not only my grandma, but my morning buddy, every day for over a month, I've taken care of because I was blessed to be her hospice aide. I've got to keep busy this morning...

    The last few days, I knew the end was so near. I thanked her for allowing me to care for her. 'You're welcome' was the last clear words I heard from her. :(

    The house had been full of family the last two days, and I knew she went yesterday morning at 7:45, an hour before I usually get there, because she didn't want to go Home with everyone around, just my poor little grandpa... He took good care of her, He'll be so lost... Please keep us all in your prayers.

    I'll try to post the obit when it comes out.

    God bless,

    Christy

    Here's the obit:

    http://www.muskogeephoenix.com/obituari ... 31619.html

    House of Cards- Tuesday Update

    in MEMBER UPDATES

    Posted

    OMG I'm so behind on posts and so lost! First, CONGRATS on things being good with you medically! :)

    And new job opportunities and moving??? LEAVING ME?? :( We never got to have lunch yet..:( I'm so excited for you! so much going on!

    You still have my number?? call me sometime after 2:00 if ya can!! :)

    C.

    Update on Mom's heart

    in MEMBER UPDATES

    Posted

    Hi Kasey!! Thank you!!

    Job is going great! My gramma isn't doing too good, but she has a bladder infection we just got meds for, so hopefully that will help some. She's not much interested in eating or drinking. :( She mostly sleeps. But I love that I'm with her every day.

    My other guy is starting to crack jokes with me. He's sweetie pie, one of our jokes. :wink:

    I love it. I just thank God for using me in this way.

    Love,

    Christy

    Update on Mom's heart

    in MEMBER UPDATES

    Posted

    Well, mom finally got to come home yesterday. She's very tired and sore, but glad to be home!

    Praise God, the fluid came back negative for cancer! SO.. now there's the question: WHY?? The doctors are puzzled and concerned because of her history.

    She goes back wed. for a sonogram and see if the fluid is coming back or not.

    thanks for those prayers!

    Christy

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