Sillycat1957

Thanks Roseann
great post on here and most helpful . Good to hear various options port versus peripheral vein 
This was second go at Etoposide and Cisplatin  I also had 29 radiation. 
2009 I had seminoma (testicular cancer) and had Cisplatin daily for 5 days eveyb4 weeks x 3 cycles , Etoposide and Bleomycin . I found that regime much more challenging I must say. Quite surprised how I got through the last 6 weeks with as little side effect as I did. We imagined much more significant disability 
. now we wait and see what happens with Durvalumab
Have a great week
grahame

Hi DFK,  Thank you, but no tough cookie here. My doc said I have good veins (hope they still are) and there was no need for a port unless I really wanted one. I get weak in the knees and was more afraid of a port so I declined. I will say some infusion staff were so good I never felt  the needle. 
Anyway, I think you got this and will breeze thru your port removal just fine. Remember you came out on top before and you will do it again. Sending good wishes and prayers your way.
Take good care,
Opal

Hey there Everyone, sounds like all is well in Durva land!
Well Hells bells! Been dealing with a whole lotta lotta personal crap, and just not feelin" it. Just came round to see what's going on round here lots I see 😃
Welcome Grahame! 😃 I had the same cocktail as you Cisplatin/Etoposide Yuk! Eh! Concurrent with 31 daily doses of radiation, then onto Durvalumab after 4 wks rest. I too have a port, would not want it any other way, no siree. Everyone here has lots of great things to offer and will never let you down when you have a question or what not so keep coming back now ya hear!
I had to skip Infusion #11, really upset me, seems I may have fallen into the 1% category of rare side effect of something called Uveitis? Another freaking "itis" that we as cancer patients have come to know all too well, well myself anyway. I have been complaining about my vision for about 2 months now. I was told to try eye drops or artificial tears. Which I would not, because a long time ago, an eye dr had told me never to use them because my eyes would become dependent on them and my eyes wouldn't make tears naturally. If that was true, idk. But I never used them only when I had hangovers LOL! To get the red out! Any way I have an appt to see an Opthamologistt on Wednesday. My eyesight is pretty important.
I sort of remember Charles I think it was having trouble with his eyes at one point? 
DFK you will not be having Twilight to have your Port removed? With my level of anxiety I could not handle that! When I had mine put in I told my surgeon, the way it goes in, is the way it comes out, he said of course! I hope so.
Tomm Congrats on still being NED!
Opal there are a few tough cookies as DFK says at my Cancer Ctr that have their infusion like you did, Nope I could never do that, I have the worse veins and I cringe at the site of needles still. I like your comment about motion lotion, it works.
You can beat me up, but ya can't keep me down!
Roseann
 

Hey there Everyone, sounds like all is well in Durva land!
Well Hells bells! Been dealing with a whole lotta lotta personal crap, and just not feelin" it. Just came round to see what's going on round here lots I see 😃
Welcome Grahame! 😃 I had the same cocktail as you Cisplatin/Etoposide Yuk! Eh! Concurrent with 31 daily doses of radiation, then onto Durvalumab after 4 wks rest. I too have a port, would not want it any other way, no siree. Everyone here has lots of great things to offer and will never let you down when you have a question or what not so keep coming back now ya hear!
I had to skip Infusion #11, really upset me, seems I may have fallen into the 1% category of rare side effect of something called Uveitis? Another freaking "itis" that we as cancer patients have come to know all too well, well myself anyway. I have been complaining about my vision for about 2 months now. I was told to try eye drops or artificial tears. Which I would not, because a long time ago, an eye dr had told me never to use them because my eyes would become dependent on them and my eyes wouldn't make tears naturally. If that was true, idk. But I never used them only when I had hangovers LOL! To get the red out! Any way I have an appt to see an Opthamologistt on Wednesday. My eyesight is pretty important.
I sort of remember Charles I think it was having trouble with his eyes at one point? 
DFK you will not be having Twilight to have your Port removed? With my level of anxiety I could not handle that! When I had mine put in I told my surgeon, the way it goes in, is the way it comes out, he said of course! I hope so.
Tomm Congrats on still being NED!
Opal there are a few tough cookies as DFK says at my Cancer Ctr that have their infusion like you did, Nope I could never do that, I have the worse veins and I cringe at the site of needles still. I like your comment about motion lotion, it works.
You can beat me up, but ya can't keep me down!
Roseann
 

Happy New Year to all! little late but none the less, I am still above dirt and that is a wonderful thing LOL!
I had infusion #10 on Monday no problems all is well on that front Yay me! However, my personal life is in the toilet, I would use other words but they would most likely get edited or whatever they do to people who curse! (ban me) LOL! for awhile from posting!  I filed for a divorce end of October, was final end of November. I had to do Pro Se since I could not afford an attorney, but we own no property or have anything of value so no big deal. I did have to put in the papers that I would be able to stay in our rental, rent and utility free until the lease is up in April,2020, since I am also on the lease. I am on a small SSDI, I had to withdraw my small pension, and  paid as many of my debts as I was able too, but am still left with a considerable amount of debt! My ex is now my ex, because he was never a fair person,  well, that's not the only reason, they say there are two sides to a story, well his ain't pretty 😃 anyway I believe my next step is chapter 7. What cancer patient wants to go thru this nonsense not me I tell you. But I thank the good Lord I am a strong and resilient woman. And I will somehow make it thru, maybe win the lottery LOL! I can always dream!
Barb, Your getting there! I blame EVERYTHING on Durvalumab, my Oncologist just looks at me and says I understand, but really, I do have those itchies, they drive me insane, they come and go, I have an arsenal of lotions. One will work one day another a different day, go figure. I do know a mixture of the 5 mgs prednisone and the Gabapentin has taken care of my back pain muscle pain, tingly hand and foot feeling and pain. So I am grateful 🌺
DFK, Thank you for that hauntingly lovely poem! I hope you hear from your Oncologist before that root canal, if not best of luck. I started losing teeth a few  years before my diagnosis, I mean, normally healthy teeth just falling out of my mouth, I was so malnourished, which was the only symptom my cancer presented. I had no shortness of breath, no coughing, no pain, just the weight loss, so it remained undetected for years. So I ended up with dentures which are the worst thing ever to get used to. So take good care of them there teeth madame 😃
Tomm, Glad your still boring LOL!
Oh and BTW, a new medicine added to my mix, a much needed anti-depressant I finally relented 
Take care everyone,
Roseann

Happy New Year to all! little late but none the less, I am still above dirt and that is a wonderful thing LOL!
I had infusion #10 on Monday no problems all is well on that front Yay me! However, my personal life is in the toilet, I would use other words but they would most likely get edited or whatever they do to people who curse! (ban me) LOL! for awhile from posting!  I filed for a divorce end of October, was final end of November. I had to do Pro Se since I could not afford an attorney, but we own no property or have anything of value so no big deal. I did have to put in the papers that I would be able to stay in our rental, rent and utility free until the lease is up in April,2020, since I am also on the lease. I am on a small SSDI, I had to withdraw my small pension, and  paid as many of my debts as I was able too, but am still left with a considerable amount of debt! My ex is now my ex, because he was never a fair person,  well, that's not the only reason, they say there are two sides to a story, well his ain't pretty 😃 anyway I believe my next step is chapter 7. What cancer patient wants to go thru this nonsense not me I tell you. But I thank the good Lord I am a strong and resilient woman. And I will somehow make it thru, maybe win the lottery LOL! I can always dream!
Barb, Your getting there! I blame EVERYTHING on Durvalumab, my Oncologist just looks at me and says I understand, but really, I do have those itchies, they drive me insane, they come and go, I have an arsenal of lotions. One will work one day another a different day, go figure. I do know a mixture of the 5 mgs prednisone and the Gabapentin has taken care of my back pain muscle pain, tingly hand and foot feeling and pain. So I am grateful 🌺
DFK, Thank you for that hauntingly lovely poem! I hope you hear from your Oncologist before that root canal, if not best of luck. I started losing teeth a few  years before my diagnosis, I mean, normally healthy teeth just falling out of my mouth, I was so malnourished, which was the only symptom my cancer presented. I had no shortness of breath, no coughing, no pain, just the weight loss, so it remained undetected for years. So I ended up with dentures which are the worst thing ever to get used to. So take good care of them there teeth madame 😃
Tomm, Glad your still boring LOL!
Oh and BTW, a new medicine added to my mix, a much needed anti-depressant I finally relented 
Take care everyone,
Roseann

Tomm,
Good to hear you're beautifully boring and that CBD and THC is helping you to the finish line. Well done.
Barb,
Yup, we know our bodies better than anyone. Getting shuffled from chemo and radiation to Durvalumab makes all of them suspect and a perfect scapegoat for all of our ills. I was told at the beginning of my treatment what was in store for me but who in their right mind can even begin to fathom the immense toll, both physically and emotionally, our diagnosis and treatments involved.
We’ve adapted well, by participating and going forward with our treatment plan. Hope remains primary and integral for a curative goal and a return (somewhat) to our lives. I love the idea that as long as we are "living" we need to live fully and gratefully. That's where my arsenal of coping and medications come in. Keeping it real and doable.
Take Care, DFK

Never had anything except dry skin until last night. It felt like pin pricks all over. Is this the “itch”?  Took Benadryl - it helped but this morning still a little itchy. 

Hi Barb, 
Like Opal and Michelle stated, you got this.
Yesterday I gathered all my notes since I was diagnosed and I was surprised at how far back my "complaints" of headaches, joint pain, chest muscle pain, back pain and fatigue went. In my daily journaling, most of my notes reflected symptom control with medications. I suppose, symptom control is high up there on the list as we head towards the finish line. That with a ton of patience and mental fortitude and a twisted sense of humor.......we are doing this together.
I get your worries about your kidney and liver with ibuprofen......I've been taking Motrin prescription strength 800mg tablets. One tablet seems to knock out all my ills for the day but I do alternate it with ES Tylenol. So I too am always very interested in my lab values as well as any possible tummy issues....so far, so good. 
Carry on Barb, I'll be joining Opal soon and we both will be waiting for you at the Durvalumab finish line. We’ll also be cheering on Tomm, Charles and SillyCat.....
Take Care, DFK
 

Wishing you all a very Happy and Healthier 2020.....We’ll remember the turbulence of 2019 but will let the year die for the rebirth of 2020.
Take Care, With much love and gratitude, DFK
RING OUT, WILD BELLS by Alfred Lord Tennyson - 1809-1892
Ring out, wild bells, to the wild sky,
   The flying cloud, the frosty light:
   The year is dying in the night;
Ring out, wild bells, and let him die.
Ring out the old, ring in the new,
   Ring, happy bells, across the snow:
   The year is going, let him go;
Ring out the false, ring in the true.
Ring out the grief that saps the mind
   For those that here we see no more;
   Ring out the feud of rich and poor,
Ring in redress to all mankind.
Ring out a slowly dying cause,
   And ancient forms of party strife;
   Ring in the nobler modes of life,
With sweeter manners, purer laws.
Ring out the want, the care, the sin,
   The faithless coldness of the times;
   Ring out, ring out my mournful rhymes
But ring the fuller minstrel in.
Ring out false pride in place and blood,
   The civic slander and the spite;
   Ring in the love of truth and right,
Ring in the common love of good.
Ring out old shapes of foul disease;
   Ring out the narrowing lust of gold;
   Ring out the thousand wars of old,
Ring in the thousand years of peace.
Ring in the valiant man and free,
   The larger heart, the kindlier hand;
   Ring out the darkness of the land,
Ring in the HOPE  that is to be.
( I took a little liberty and substituted HOPE for Christ)

Hey all!
Guess I'm the Durva baby here! Just had my 9th infusion on Monday, still plugging along. Have to say my Neurologist was absolutely on the mark, with putting me on Gabapentin, I take now 900 mgs at nite before I go to bed, no more middle back pain Yay! I have no more feelings of foot or hand neuropathy in my hands and feet Yay! Pretty much off the Oxycodone, I tried to just stop, but my body said no way, nope so I had to cut them in half first, now I take half every other day, I guess being an opiate you can't just stop. Oh well. TSH levels are good, WBC/RBC are good all in all no complaints today. Thank you Jesus!
DFK and RonH, Gotta love those new HE washers, beside being a Custom Windows associate, my job decided that our time as associciates would be better utilized if we also sold Appliances and Mattresses! Mind you, that was a joke as far I was concerned. I had extensive training, but still steered customers towards the older type, unless they were sure to purchase an extended warranty. Because they are notorious for the motherboard malfunctioning after the mfg warranty expires in 1 year. any type of liquid spill, turns it to pooh! They are so hard to program as well. I had customers come in, so upset, wanting to take a hammer to it LOL! I couldn't help them even with all the training I had, they are worse than your smartest smart phone! Thank goodness we got rid of appliances at our store!
And Great news on everyones' scans Tis the Season to be Jolly Wishing everyone a Very Merry Christmas!!! ☃️

Hey all!
Guess I'm the Durva baby here! Just had my 9th infusion on Monday, still plugging along. Have to say my Neurologist was absolutely on the mark, with putting me on Gabapentin, I take now 900 mgs at nite before I go to bed, no more middle back pain Yay! I have no more feelings of foot or hand neuropathy in my hands and feet Yay! Pretty much off the Oxycodone, I tried to just stop, but my body said no way, nope so I had to cut them in half first, now I take half every other day, I guess being an opiate you can't just stop. Oh well. TSH levels are good, WBC/RBC are good all in all no complaints today. Thank you Jesus!
DFK and RonH, Gotta love those new HE washers, beside being a Custom Windows associate, my job decided that our time as associciates would be better utilized if we also sold Appliances and Mattresses! Mind you, that was a joke as far I was concerned. I had extensive training, but still steered customers towards the older type, unless they were sure to purchase an extended warranty. Because they are notorious for the motherboard malfunctioning after the mfg warranty expires in 1 year. any type of liquid spill, turns it to pooh! They are so hard to program as well. I had customers come in, so upset, wanting to take a hammer to it LOL! I couldn't help them even with all the training I had, they are worse than your smartest smart phone! Thank goodness we got rid of appliances at our store!
And Great news on everyones' scans Tis the Season to be Jolly Wishing everyone a Very Merry Christmas!!! ☃️

Hey all!
Guess I'm the Durva baby here! Just had my 9th infusion on Monday, still plugging along. Have to say my Neurologist was absolutely on the mark, with putting me on Gabapentin, I take now 900 mgs at nite before I go to bed, no more middle back pain Yay! I have no more feelings of foot or hand neuropathy in my hands and feet Yay! Pretty much off the Oxycodone, I tried to just stop, but my body said no way, nope so I had to cut them in half first, now I take half every other day, I guess being an opiate you can't just stop. Oh well. TSH levels are good, WBC/RBC are good all in all no complaints today. Thank you Jesus!
DFK and RonH, Gotta love those new HE washers, beside being a Custom Windows associate, my job decided that our time as associciates would be better utilized if we also sold Appliances and Mattresses! Mind you, that was a joke as far I was concerned. I had extensive training, but still steered customers towards the older type, unless they were sure to purchase an extended warranty. Because they are notorious for the motherboard malfunctioning after the mfg warranty expires in 1 year. any type of liquid spill, turns it to pooh! They are so hard to program as well. I had customers come in, so upset, wanting to take a hammer to it LOL! I couldn't help them even with all the training I had, they are worse than your smartest smart phone! Thank goodness we got rid of appliances at our store!
And Great news on everyones' scans Tis the Season to be Jolly Wishing everyone a Very Merry Christmas!!! ☃️

I have been meaning to provide an update of my latest scan, but busy busy at work and dealing with the holidays, plus I am trying to figure out a new "high efficiency" clothes washer that is apparently smarter than I am. Just too many choices and buttons to push! 
The results from my latest CT were somewhat inconclusive after my first 6 weeks on Alectinib (Targeted Therapy for ALK+ NSCLC). The primary tumor showed a slight decrease in size with most everything else appearing to be "grossly" stable. (Got to love medical terminology).  I did develop some localized air bronchograms and a small pleural effusion. The one small lymph node that lit up on the most recent PET scan was now "obscured". The Radiologist also pointed out an area of either post radiation pneumonitis or possibly pneumonia.  My Med ONC believes it to be a slight case of pneumonia so I am now also on antibiotics for 10 days. I had contacted the Onc before the CT letting him know that I had a cold (sore throat, runny nose, sneezing and chest congestion, but he wanted me to proceed with the CT anyway. After 1 week now on antibiotics, I can feel an improvement in my shortness of breath (plus being over the cold helps). I guess that I will take the small reduction in primary tumor size, along with being mostly stable elsewhere as a good result. Have to go back in early January for a chest x-ray to check on things and get updated blood tests as after 7 months of induced hypothyroidism, the Med Onc is still slowly adjusting my thyroid hormone dosage upwards. All other blood tests were in the normal range, or near it.
Hope all have a wonderful holiday season.
~Ron

Wonderful news Barb 1260. Now that's a very special Merry Christmas to you. Relish in your good news and enjoy the Holidays.
Take Care, DFK
 

CT results compared to a year ago-from 6.8x5.8 to 2.8x1.9cm. The 5mm found in Sept on left lung is now 2mm. Nothing new.  I guess this expensive stuff is working. Happy Holidays!!!!

Hey!  Are all us Durvas feeling so good we’re running around doing holiday preps? No posts for a solid week. I’m going to take that as a good thing!!🥳

DFK.....Wonderful wonderful news! On NED!  AND Congrats on nearing the infusion finish line.  Welcome to the club. I think I read your post a few pages ago that you had no PDL nor mutation?? Same here.  Well how about that! Nix all the writings that one must have PDL and a mutation for Durva. 
Just want to say your posts have been most informative and tremendously helpful. Reading quite a few, I said to myself, OMG that's me, sans the voice changes. Side effects, weight gain, beliefs, treatment and boring infusions all so so similar. Your posts were quite comforting for me, thank you! Sending you all good wishes and many prayers.
Hugs, Opal.
 

Good Wednesday Morning to all,
#24 Infusion yesterday.....uneventful. Labs all normal. Usual annoying side effects present, tolerable and managed with my arsenal. My husband calls my arsenal of potions, my Felix the Cat bag.
I had my Neck and Chest Cat Scans two weeks ago. These scan were ordered to rule out any new or existing tumors that may have impinged on my left laryngeal nerve to cause my left vocal cord paralysis. I specifically relayed to my Oncologist and ENT docs that I did NOT want to know the results until my regularly scheduled appt., which was yesterday. I really really wanted to enjoy my Thanksgiving without my "Cancer" taking front and center stage should there be progression. My last chest scan was in May, 7 months ago.
Results:
Chest: Original Tumor no longer seen, Nodular parenchymal disease has resolved. No gross lesions are identified and no lymphadenopathy by size criteria. 
Neck: No masses or lesions. Vocal cord paralysis could be due to radiation therapy within the chest for patients known right lung neoplasm and subcarinal lymphadenopathy.
In Blessed simple terms: NED. 
Relief, joy, ecstatic gratitude does not even begin to describe how I felt sitting there in my doctors examining room, where as five minutes before, I braced myself for the worse news ever. Instead, I got the best news in this stage of the game, at the nearing end of my Durvalumab.
I inquired as to the possibility of deferring my #25 infusion until January, with the rationale of celebrating the remainder of December without any treatments. My oncologist said YES I MAY. Tears of joy streamed down my face as I hugged this very pragmatic man. I got just a wee bit of a smile from him.
Plan is to have my last two infusions in January, followed by a PETSCAN a month after my last infusion. I also dovetailed Cardiologist, Pulmonologist, Radiation Oncologist appts and Echocardiogram of my heart on the day of #26 Infusion. I followup with my ENT in 6 months. 
Oncologist said my port may be scheduled for removal pending the results of the PETSCAN.
And that my dear friends is in a nut shell, my reachable and foreseeable future, the light at the end of the tunnel, a sanguine postscript to the past 16 months.
History: Dx August 2018 NSCLC Stg 3b. Carboplatin/premetrexed x3 concurrent with 60 Gy radiation x30 over 6 weeks. Durvalumab initiated 2 weeks after last chemo.
Thank YOU all for your support.
Take Care, DFK

Hi Ron,
Nice to hear from you! Glad to hear you are still lurking around! I still consider myself a Durvalumab "Newbie"  only had 8 infusion so far. I have to say with the addition of the 5 mg of daily steroids, and my Neurologist adding Gabapentin to my mix of drugs I'm on, my side effects are down to quite a manageable level. My goal is to completely do away with the oxycodone for pain, this Sunday I will cut my 5mg pill in 1/2  and see how that works out.
With all the talk of heart issues, I think I may make an appointment with cardiologist like DFK did to establish a baseline. Both my parents had major cardiac issues and passed away at an early age because of them.
I hope your being on the TKI is doing right by you, I hear so many wonderful things about how people respond favorably to Alcencensa (alectinib) it must be nice to take a pill instead of having to have infusions 😃 I wish you and I and all of us here didn't have to take anything! But we all have this stupid nasty, blasted, disease we didn't ask for, for F**ks sake! But we got, and we are lucky we have the drugs available to us now, that just a few years ago were not. My daughters' father, my ex died from NSCLC in 2000. He probably would have had a better chance at survival, so I'm grateful 🙏
Anyway, enough ramblings, I will pray for a great scan on Monday and keep busy til Wednesday. Please keep us posted on your progress!
Be well and Take care,
Roseann

Hello to all, 
There is a lot of information regarding high heart rate in cancer patients after chemo and radiation.  I had mentioned this high heart rate concern in an earlier general post but not a lot of replies so I though I was the rare case but now after some research I know it is not true.  This can happen with just chemo alone. 
http://www.cancer.ca/en/cancer-information/cancer-type/childhood-cancer-information/watching-for-late-effects/heart-problems/?region=ab
I do not currently have blood pressure issues for now but after my 1st chemo I became dehydrated and all of the sudden my heart rate increased and anxiety really set in.  I was very concerned and after discussing this issue with my ONC I had a heart Echo done A+ heart is healthy.  Then after completing my 2nd infusion just two weeks ago Cisplatin/Paclitaxel now I have a higher heart rate at rest 80's - 90's and 120's after exertion.  I feel that my ONC thinks this is all from anxiety but I now know after reading this may not be true... 
We all have different stories but its is great to know we are all not alone in this 
Darla

Hi Folks,
thanks for all the feedback on blood pressure, I guess no one  is alone here with any side effects. I also have chronic Afib but am asymptomatic for 4 years, I see my cardiologist once a year and with no other health issues  She does not give me any medication. If my blood pressure is still up next month when I see her again that may change. 
I hope all scans are clear and side effect  a memory

Hi Ron,
Nice to hear from you! Glad to hear you are still lurking around! I still consider myself a Durvalumab "Newbie"  only had 8 infusion so far. I have to say with the addition of the 5 mg of daily steroids, and my Neurologist adding Gabapentin to my mix of drugs I'm on, my side effects are down to quite a manageable level. My goal is to completely do away with the oxycodone for pain, this Sunday I will cut my 5mg pill in 1/2  and see how that works out.
With all the talk of heart issues, I think I may make an appointment with cardiologist like DFK did to establish a baseline. Both my parents had major cardiac issues and passed away at an early age because of them.
I hope your being on the TKI is doing right by you, I hear so many wonderful things about how people respond favorably to Alcencensa (alectinib) it must be nice to take a pill instead of having to have infusions 😃 I wish you and I and all of us here didn't have to take anything! But we all have this stupid nasty, blasted, disease we didn't ask for, for F**ks sake! But we got, and we are lucky we have the drugs available to us now, that just a few years ago were not. My daughters' father, my ex died from NSCLC in 2000. He probably would have had a better chance at survival, so I'm grateful 🙏
Anyway, enough ramblings, I will pray for a great scan on Monday and keep busy til Wednesday. Please keep us posted on your progress!
Be well and Take care,
Roseann

Tomm, 
Hope you are doing well and the issue with the increased blood pressure becomes a non-issue. When I first learned a little over a year ago now that I would be placed on Durvalumab I also read just about everything I could on the "cardiac toxicity" of the Checkpoint Inhibitors. As I had a heart attack years before and had 5 stents placed, and was on all kinds of heart meds, including several for high blood pressure, I was naturally extremely concerned. On top of it, I was on blood thinners and anti-coagulants as I had went into chronic a-fib, so the first thing I did was consult directly with my cardiologist. He also consulted with his associated electrophysiologist cardiologist and both agreed that there was not enough information available to suggest not taking the Durvalumab. After a few months, I had a EKG and checkup with the cardiologist, who found no new concerns, and I was told just to monitor my heart rate and BP and to come back next year. When I said (somewhat jokingly) that I would if I was still alive, he said that I better be alive or he would kick my *ss. I don't know for sure, but perhaps my heart meds counteracted or minimized any adverse cardiac problems with the Durvalumab. I know my BP never increased, and in fact actually decreased to normal levels. Of course now being on a targeted therapy TKI "Alectivnib" since I was found to be PDL-1 Negative and ALK+, I switched over to having too slow of heart rate with too low BP at times, so my cardiologist cut my Metoprolol dose in half which seems to have helped. 
I have my first CT next Monday, with the results due on Wednesday, of my first scan after starting on the Targeted Therapy a little over 5 weeks ago. Hoping for the best. 
I just wanted to stop in to say hi to the Durva Club members and to say that I am still lurking around.
-Ron

Good Saturday morning Ron,
Nice to hear from you and thanks for chiming in on your personal experience with "Cardiac" concerns and follow thru. I truly believe our banter with our experiences are helping others know they are not alone on this journey and provide some guidance for the uninitiated.
There are a few of us here that got CTs recently and are awaiting results. Couldn't of said it better.....hoping for the best.
Take Care, DFK