AleHondaa

Hi ale 
Sorry your going through this it really is crap but lou is right it will grow back and you will beat this keep fighting and stay strong all the best Take care Justin 

Ale,
Sorry to hear about the hair...but you're correct, it will grow back.  Just know that you are fighting this damned thing and you will win.  And also remember that many women find Bruce Willis very attractive.  So, even before your hair grows back you'll be able to look good.
Lou

Well, the thing I didn’t want is actually happening. My hair is going away, down the drain, all of it. This is really affecting me mentally now, self esteem just down the drain. I know it’s for the better and it will be coming back it’s still one of those things that consistently reminds me of what I’m fighting. My beard seems to be staying 🤷🏻‍♂️.  
 
Other news, I get my second dose on Tuesday then scans afterwards. I hope this is all worth it. I hope this actually does something. 
 
Hope everyone is well and fighting their battles with success. 
 
Sad Ale 😕

Well, the thing I didn’t want is actually happening. My hair is going away, down the drain, all of it. This is really affecting me mentally now, self esteem just down the drain. I know it’s for the better and it will be coming back it’s still one of those things that consistently reminds me of what I’m fighting. My beard seems to be staying 🤷🏻‍♂️.  
 
Other news, I get my second dose on Tuesday then scans afterwards. I hope this is all worth it. I hope this actually does something. 
 
Hope everyone is well and fighting their battles with success. 
 
Sad Ale 😕

Hey Guys,
So far I’ve been handling chemo way better than I thought. I barely have any nausea, I’ve been eating and I have a good amount of energy. The only thing I have is like a slight ache in my abdomen area. Is this something normal anyone has experienced? I also have a slight ache in my bones but I know that’s a side effect from neulasta. 

So today I can say the aches have gone away, I was having bowel movements though. I’ll be bringing it up to my doc once I see him next week.

So today I can say the aches have gone away, I was having bowel movements though. I’ll be bringing it up to my doc once I see him next week.

So today I can say the aches have gone away, I was having bowel movements though. I’ll be bringing it up to my doc once I see him next week.

So today I can say the aches have gone away, I was having bowel movements though. I’ll be bringing it up to my doc once I see him next week.

So today I can say the aches have gone away, I was having bowel movements though. I’ll be bringing it up to my doc once I see him next week.

Good to hear, Ale. I don't remember having an ache but I hope you'll let your chemo team know. They might want to do an abdominal CT scan just in case. 

Are you constipated Ale? That sometimes gave me a bit of a tummy ache after infusions. If no bowel moment for 24 hours, Senekot gently helps. Of course always ask doctor/nurses. Happy things are much easier than you feared! 

Hi ale
That's great news your doing well on the treatment glad it's not as bad as you thought take care Justin 

Hey Guys,
So far I’ve been handling chemo way better than I thought. I barely have any nausea, I’ve been eating and I have a good amount of energy. The only thing I have is like a slight ache in my abdomen area. Is this something normal anyone has experienced? I also have a slight ache in my bones but I know that’s a side effect from neulasta. 

Hey Guys,
So far I’ve been handling chemo way better than I thought. I barely have any nausea, I’ve been eating and I have a good amount of energy. The only thing I have is like a slight ache in my abdomen area. Is this something normal anyone has experienced? I also have a slight ache in my bones but I know that’s a side effect from neulasta. 

Ale,
Sluggish and nauseous is par for the course.
I recorded the start and ending of all my side effects during my second line chemo. Side effect onset and departure was nearly the same from infusion to infusion. This allowed me to plan "near normal life" events around my chemo downtime. 
Stay the course.
Tom

So quick update after my first infusion yesterday, after being poked and chemo’d up I felt fine most of the day. I’m assuming it’s because of the steroids. However, today I do feel sluggish and nauseous after waking up. About how long can I expect this to go on and does it get worse through out the week? I am going to “medicate” if you know what I mean hahaha as it always helps with my nausea. Thanks again to everyone for y’all help and input for everything. 

Last time I started enhertu, I was told I was going to lose my hair but it fell but didn’t go away. So that may happen again I hope, I don’t want to look sick/baby face. 

Last time I started enhertu, I was told I was going to lose my hair but it fell but didn’t go away. So that may happen again I hope, I don’t want to look sick/baby face. 

Hi guys,
Well tomorrow is my first day on the treatment, I’m very nervous and anxious. I really don’t want to be on it, mainly from how sick I’ll feel and losing my hair. My biggest thing is I don’t want to look sick, right now if you see me you wouldn’t expect me to have what I have. I don’t know what to expect out of this and I’m kinda scared. Could I get any tips of being on these drugs and things to do Improve quality of life? Im hopeful it will do the job and work but I’m very scared at the same time. Doc mentioned it would be just 3 months and then I’d be just on keytruda but I feel like these 3 months are gonna be long. If any has suggestions or advice, please share.
Thank you,
Ale

FWIW, I’m a carbo-taxol grrrl and never lost any hair. Like the good patient I (sometimes) try to be, I filled Rx for a drawerful of anti-nausea meds. Nurses told me the order in which to use them, and they said to absolutely take them at the first sign of discomfort. So I did. I wish you much luck. 

You got this Ale! Hair will come back. They told me mine won't fall but it is falling by the droves and at times I start crying in the shower then I remember that this just  means the chemo is working and killing cancer cells. I even started finding amusing facts such as the pesky grey hairs that started to grow during the pandemic years are way overrepresented in those hairs that do fall and my hair is now darker  
Please seek pain and symptom management care as I mentioned earlier. We can share what worked for us based on your complains and you can ask your doctors about them if that helps.
I am off to my infusion in a couple of hours and my stress is so high (woke up super energetic and made breakfast for my family then crashed and feel so tired now, go figure!), so you are not alone in this tough journey.
BTW, I fought for extra hydration after my terrible first cycle: before, during and after infusion. It makes a lot of difference.  Akynzeo and Dexa stops any nausea for me in early infusion days. Rescue nausea meds are helpful if needed rest of the week. Tramadol works for pain. If I only can sleep better though!
Keep us posted!

Hi ale
Goodluck tomorrow and stay strong it's worth fighting and you certainly aren't alone, we are all 100% with you
all the best Justin 

Hi guys,
Well tomorrow is my first day on the treatment, I’m very nervous and anxious. I really don’t want to be on it, mainly from how sick I’ll feel and losing my hair. My biggest thing is I don’t want to look sick, right now if you see me you wouldn’t expect me to have what I have. I don’t know what to expect out of this and I’m kinda scared. Could I get any tips of being on these drugs and things to do Improve quality of life? Im hopeful it will do the job and work but I’m very scared at the same time. Doc mentioned it would be just 3 months and then I’d be just on keytruda but I feel like these 3 months are gonna be long. If any has suggestions or advice, please share.
Thank you,
Ale

Ale,
You'll be getting input from those with the right experience soon, but I just want to tell you to stay as strong as you can.  One thing a lot of folks here have recommended when doing chemotherapy of many kinds is "palliative care" they could add a member to your medical team who monitors all your symptoms and does their best to minimize them for you.  The goal is to get you through the treatment as comfortably as possible.  Please check into it.
Lou