[LexieCat/Teri Updates]

Hi everyone! We had my Mom's celebration of life yesterday. We recorded the whole thing for those who were unable to attend. You can watch the recordings here: https://www.dropbox.com/scl/fo/p6murlvilouoyyr5o448g/h?dl=0&rlkey=zsmdwv7sy13igagcfj3fzpqxn

If you would like to watch the slideshow we did during the event, it can also be viewed here: https://youtu.be/bizeOk8X3CE

[LexieCat/Teri Updates]

Hi all,

Mom passed peacefully without any pain or discomfort today at noon EST after 2 days in hospice. She spent her final hours with myself, my brother, and her cousin Robin.

We're all mourning but we're all so happy She was comfortable and not in pain, and that she never has to suffer again. 

In her last few waking hours I told her I gave you all the updates and that you all loved her dearly and she wanted me to tell you all she feels the same.

[LexieCat/Teri Updates]

Thanks everyone. It does mean a lot. If anyone wants to connect with me directly you can send me a friend request on Facebook at Stephanie Alexis Burzynski. I'm on there much more frequently and happy to chat about anything anyone has on their minds.

Tom - Yes, we are a unique breed that's for sure! My brother and I grew up in Oaklyn, NJ.

[LexieCat/Teri Updates]

Hi everyone,

Sorry I haven't been doing a good job with regular updates here.

Mom discharged home from the SNF and was home for a couple weeks.

She was having a lot of problems with her mobility and standing up and getting around on her own. But we were improvising and finding solutions as we went.

She had 2 more weekly carboplatin infusions but this Friday, 4 days after the 2nd infusion, she went to the bathroom and it was almost entirely blood.

I took her back to the Hospital of the Univeristy of Pennsylvania ED and they admitted her. However, at this time she's declining all diagnostic procedures to identify the source of the bleed and stopping it. She's adamant on transferring to inpatient hospice care and discontinuing all treatment and procedures unrelated to pain management, as is her right.

It's unlikely she will post here again. I know you all understand how difficult of a time this is for her and the rest of our family and that I don't anticipate being very active here at least in the short term.

However, I promise I will update you all if/when anything happens or changes. I know she loved this community dearly and it helped her a lot and she truly enjoyed being able to help others in their journeys as well.

I'll keep you all in my thoughts and I know you'll do the same for her. ❤

[LexieCat/Teri Updates]

Hey all,

Mom is making a lot of progress. Things are going slowly but she's making all the right progress she should.

The doctors are hopeful they will be able to discharge her to a rehab/SNF on Friday to start getting some strength back so she can come home and not require 24/7 nursing.

[LexieCat/Teri Updates]

Hey everyone!

My apologies, I did not realize she had not been posting and had a couple people reach out expressing concern that they hadn't heard from her.

Mom was in some pretty severe GI discomfort the 15th and 16th. She wound up asking to go to the hospital early AM on Monday the 17th. She was admitted in patient for severe constipation and was there until Friday the 21st when she discharged home.

Unfortunately it was a pretty short stay as she began having bloody diarrhea and was passing clots in her stool. So we went back to the hospital yesterday morning. She's currently admitted at Penn. They're still trying to figure out the details but they don't think she's actively bleeding at the moment.

Her care team sounds confident they can get it sorted and get her back in good shape. It's possible she may need to discharge to a rehab or SNF before she can go home.

Feel free to send me a direct message if you want to talk further, otherwise I'll update here as things progress or if anything changes.