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ColleenRae last won the day on April 22 2020

ColleenRae had the most liked content!


About ColleenRae

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    Over 100 Posts!

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    Lung cancer patient/survivor

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  1. ColleenRae

    Covid and me

    Thank you for sharing your story, Lisa...
  2. Thank you for sharing this, Rose. I am sorry you are experiencing this side effect. Both my surgeon and a second radiation oncologist I consulted with advised that SBRT will definitely change the appearance of future CT's (due to scar tissue from radiation) and that readings will need to be done by someone qualified and with the necessary skill to distinguish between a "mass" / concerning nodule and scar tissue. I was also advised that, yes, a side effect of radiation can impact the quality of one's breathing capacity (which is one reason why we're delaying radiation tx for a small slow-growi
  3. Thanks for the update and info Pattymac. You're giving me hope (and a bit more courage) as I look forward to doing this myself in the future. I'm glad to hear the side effects have been minimal for you. Good to hear what your RO has to say as well re: chances for a full recovery. Two down; one to go. You've got this! I hope this will take care of this as well for you. I felt so bad when I read about your father - far too young to have left this world. It is amazing how treatments have changed since his passing. You take care as well. Good luck tomorrow. Thinking of you! Colleen
  4. So glad it went well Pattymac! What a trooper you've been! Thank you for letting us know. I, personally, appreciate this as I will be heading in this direction in the future. Happy to hear no side effects, other than fatigue... maybe that is from the emotional anticipation preceding the treatment as well... Good luck with the remaining two tx's. Will look forward to hearing more from you and keeping fingers crossed they blow that nodule away!
  5. Will be thinking of you and wishing you the best, Pattymac. Hope all goes well; I believe it will. We look forward to hearing how it goes...! Colleen
  6. Congratulations! Very encouraging! I can easily imagine you felt stunned...! Very happy for you.
  7. Congratulations! Thanks to YOU for sharing your progress over the years... It gives the rest of us a lot of hope! As a WA native / resident, I heard the Spokane area has cyberknife available. Not sure if that is where you have been treated, but glad to know it is available in eastern WA. Congrats again on your remission! Wishing you many more years of news like this!
  8. Sheryl, I think it's amazing that you could even write an update this soon... That, to me, is encouraging in and of itself! I still think it's weird that part of my lung is gone (2 yrs since lobectomy)! I think the positive points that Babs pointed out pre-surgery are good to hang onto. Keeping you in my thoughts and hope you continue to do well each day.
  9. Excellent news, Lisa! Very happy to hear this outcome. Will be sending positive thoughts your way for your surgery
  10. Thank you, Tom & Teri. Your support helps me even more. I have learned so much from both of you since discovering Lungevity two years ago.
  11. Just an update... I had my second consult with a Radiation Oncologist in Seattle - same hospital network where I had my lobectomy in 2018. I am so glad I got a second opinion. Loved the R.O. I spoke with. The second sentence out of his mouth was that he was really surprised that our local cancer center was wanting to treat this suspicious spot so soon. He actually laughed and said how tiny it was. He did not talk at me - he talked with me. He did not dictate what the course of action would be but rather what route he believes is warranted - as long as I am comfortable with the plan.
  12. "I really HATE how insurance dictates our care and what we can have done." Could not agree more. So sorry you are having to go through this when you need to concentrate on keeping your immune system up and being well-rested prior to surgery. I agree with all of the advice you have received here. I have only had CT scans, tele-med visits/consults and a recent thyroid ultrasound, but no hospital procedures. I hope this can be resolved for you quickly and in your favor.
  13. Thank you for the update Barbara... I can "hear" your stress, but as others have said - You really can do this. You can get through the procedure and you can quit smoking. We are all here to support you. Sounds like your husband will as well since he's already taken that big step! One thing that worked for me (in addition to a firm mindset) was to breathe deeply whenever I thought I wanted a cigarette. I would just stop and take several deep breaths and it would relax me. It was actually very similar to what I used to do with a cigarette / why I smoked to begin with. The only thing missi
  14. Barbara... Just checking in! Sorry it's been a few days; dealing with some issues here at home but have not forgotten you. I'm not sure where you are in this process right now... You had mentioned you were going to get blood drawn - did that take place? How did it go? On August 16th you wrote: "Next week I'm going for a Wedgectomy (is that the right word?) with the possibility of a Lobectomy depending on the results after they take the first chunk out." I'm afraid I might have missed your date for this if it took place last week... If so, I am very sorry! When you get a ch
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