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bluebayou

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Everything posted by bluebayou

  1. Hello Denise, I'm sorry your mother is having such a hard time of it. This is a dreadful, horrible disease which no one should have to undergo. My prayers for your mother for emotional peace are headed up as we speak. God Bless us all...
  2. Thank for responding Don. One other thing I can add to that and that is after researching radiation therapy protocols (which I just finished doing), it seems that, generally speaking, the American oncologists tend to go for 10 single treatments and the Canadians' (being less aggressive) standard is five.
  3. Thanks Becky....You just saved my doctor from a very agitated patient's phone call. That is what is so wonderful about this site. You get some bad news or you question some treatment and with all of your combined experiences, you can have them addressed and alleviated right here!!!! I was stressed out about this and now u have taken that all away but simply pointing out a few facts that I was unaware of. Thank God for this wonderful site. I am only now FULLY appreciating how lucky we are to have this board. Thank you Rick and Estrea..thank you mr and mrs moderators...thank you all for being here.
  4. Looking for past experience with radiation treatment for bone mets. As some of you know, my cancer has travelled the the spine. Now my oncologist who is one of those who is inclined when pushed to admitting that advanced stages are incurable. (He does this even tho he has admitted to me to having seen a few cures along the way). I prompted him about that and in the end he agreed that perhaps what he should do is explain the odds (abysmal) all the while leaving a little window of hope. I told him I wanted an oncologist who will treat me aggressively and he has promised that he would do that. Which brings me to my question: When I saw him a few days ago and he told me of the spread he outlined what he wanted to do. Initially he (or rather the radiation oncologist) would give me five days worth of radiation. Then scans etc then he mentioned a Clinical trial which begins at end of month. Will question him further about this when I see him next. I'm finally getting to my question: He has agreed to treat me aggressively and yet I have to wonder why only five treatments??? I've gone over so many of your posts and all I see are 10/20/30 rounds of radiation and more!! Now of course i'm afraid he is not putting his money where his mouth is?? Please can u tell me a bit about your radiation treatment and why so many if you know?? Or, in some cases, why so little if that has been the case?? I apologize for the rambling...am looking for any info you can give me. Thx in advance.
  5. I guess this is a perfect example of what we mean when we talk about the roller coaster ride!! Hang on tight..things will turn. In the meanwhile..tons of prayers heading up.
  6. Thank you Eileen and Cheryl..am raiding the fridge as we speak...
  7. You know I could be in deep doo doo here. After having it confirmed the cancer had spread to bones..and that i would undergo radiation and that i would probably lose weight....my husband, at my request, immediately went out and purchased two gallons of jamoka almond fudge!!! My alltime favorite most fattening ice cream. Have been having the time of my life eating all of this!!! Just an hour ago, came back from visit to oncologist who talked about my radiation and oh yes...mentioned that it has spread elsewhere i.e.. adrenal glands in my chest. Got back to the apt.. and tore open a Coffee Crisp chocolate bar..(that my daughter brought over last night to cheer me up as they are another no no as a rule..) .but hey!! I'm going to lose weight anyway right???? Well....the joke will be on MOI if the losing weight part doesn't materialize Food for thought!!!!!!!!!!!!!!! the non-fattening kind. Will leave now to update my profile with more bad news
  8. Can't argue with that logic . Hang tough Sam. My prayers weren't answered when I prayed for myself, so maybe if I pray for YOU..it will work this time..
  9. Three cheers for the Chairman of the Empty Headed Club. May his reign be long and prosperous
  10. You both have been thru way way too much. Its time for some GOOD news and I'm having a serious talk with the Man up there as we speak and he'd better listen!!!!!!!!!!!!!!!!!!!!!
  11. I have just been, this day, diagnosed with mets to the bone and I can tell you that I've been in constant 24/7 pain in that area where they found the tumor.. Sorry for your pain. I will pray that you get relief from that one way or another.
  12. bluebayou

    Sad

    Posted this earlier but got caught up in cyber space... I have returned with bad news, i.e. cancer has spread to bone in the spine. Will undertake 5 rounds of radiation and then we shall see. I hate that this is back...
  13. I asked my doctor two things (after he had confirmed my cancer had spread to the spine)...not to Stage me (altho as you can see frm where i'm posting, i'm under no illusions) and not to tell me how long I have to live. No disrespect intended, but i'm horribly saddened to have travelled from early stage to late stage. That being said...as you so often mention here, there is hope (albeit slim if non existent according to my doctor)..and I will continue to count by blessings as they are plentiful and take this news one day at a time. Am numb right now...........will inform more later as treatments etc. commence. Please continue to pray for me as I do for all of you day and night. God Bless us all!!
  14. bluebayou

    D-Day

    I have been waiting five long weeks since doctor said he saw a *hot spot* on my bone scan and three weeks since my CT Scan. Tomorrow I find out. I remember someone once said on this board that maybe *no news is good news*. I hope truer words were never spoken. I could have called but there was such a huge snafu last time I did (given wrong info by doc's assistant..) that I didn't go that route this time...hence the long wait. Please please can I ask you to keep moveable parts crossed and prayers fwd up to the Big Man!! I am so scared...I'm sure u all know THAT feeling. Will post when I found out.
  15. My heart breaks for you Joe...If only words could comfort, then I would write you a book...if arms could comfort, then I would wrap them around you and never let go. I'm so very sorry..
  16. Do you believe in miracles Sam??? Well i'll be praying very hard that one will come your way. God Bless!!
  17. Praying hard as i type!! God Bless
  18. Remember to keep pillows around you. Have one at the ready to hug if you are about to sneeze or cough or such things!! They help a lot. Good luck and here's to a quick recovery.
  19. I can't even get passed the signing in. It keeps coming back quote log in error unquote!!
  20. Sure wish I had the magic words that would make sense of all of this and bring you comfort. Hang in there please...miracles do happen..
  21. I did not know your mother (relatively new to the board) but am nevertheless very saddened by the news. Thank you for transmitting her message to us of never giving up. I will try to heed her very good advice. God Bless!!
  22. What a wonderful son u have.. You must be so proud. Prayers and good wishes to you!!
  23. Ginny!!!!!!!!! I meant negative of course...duh
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