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TBone

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Posts posted by TBone

    Update

    in NSCLC GROUP

    Posted

    Hi,

    Congrats on the good news.As for the nausea and loss of appetite I can really sympathize with you.I have been that way for almost two months until this past week.My nausea was intermittent but I did not eat anything solid for over 2 months.I lost 30 lbs too.I was making myself drink the shakes and had trouble getting them down.Last week my doctor prescribed promethazine for nausea and megestrol acet for appetite.It could be that it was just time for me to get straightened out anyway but about 3 days after I started on those I was eating and not nauseous any more.Could be just pure timing.Not sure.But it may be worth a try.Praying that you get your appetite back soon.If not at least rid yourself of the nausea and force yourself to eat something.You have to.Take care.TBone

    Brain Surgery update from 4-6-04

    in NSCLC GROUP

    Posted

    Hi,

    I am so glad that all our prayers were answered and your surgery went well.I did not have surgery but I did have WBR.I think it was 15 treatments.I was on 6mg/day of decadron to start,then down to 4 then 2 and then to 2 every other day and then to zero.I am still off decadron but if subsequent MRI shows growth I will start back I guess.The radiation really wore me out bad.I hope it does not effect you in the same way or quite as bad.It didn't really bother me until it was all over.About a week after the last treatment is when the fatigue set in.I did loose all my hair during treatment but no other real problems.After the last treatment my head blistered and the tops and insides of my ears blistered bad.I used Swell Cream for that with success.I was just starting to return to normal in about 3 weeks after treatment and I started on more radiation to the chest and that I when my appetite left me.I don't want to be negative at tall.I would not be here if not for the WBR.It did shrink the tumors and relieved my awful headaches,noises,and loss of movement in my fingers.I just want you to be prepared to rest a bunch afterwards if it does you like it did me.I had a sinus problem at the time which I think aggravated my response.I was already really congested when I started and that got worse too.This sounds terrible.I am sorry.I don't feel any of those effects now and I pray that the tumors remain shrunk.Praying for the best for all of us.TBone

    Bull testicles

    in JUST FOR FUN

    Posted

    An American couple were vacationing in Madrid.After taking in a bullfight at the local bull ring they decided to stop in the next door restaurant for dinner.The waiter explained that the restaurant had a special that consisted of fresh braised testicles taken daily from the next door bull ring.Not wanting to be picky American tourists they decided to do as the Spaniards do and try the special.It was delicious.It was so good that they decided to return the next afternoon.After the meal the American man remarked to the waiter that the testicles were again delicious but were much smaller today.The waiter said,"Si senor.The bullfighter does not always win". :twisted:

    Duke of Earl - Chapter 60 - Just an update

    in GENERAL

    Posted

    Hi Ginny,

    I had been stuck from recliner to bed to couch for a while too.As soon as I got my appetite back and started walking outside a bit I felt a lot better.The first couple of days I was sore but it is helping my attitude for sure.I see that he is excited about PT now.That is good.Just a little helps me a lot.I pray for the best for all of us.TBone

    dotted and crossed.....

    in NSCLC GROUP

    Posted

    Hi y'all,

    Did you really get tatoos?I only got blue markers and tape.They would replace the tape and mark it over a blue mark that was on my skin also.So I had a marked piece of tape over a blue mark.In case the tape came off.Your posts are getting racier and racier Fay.I am too far away to be the man on the street and on one of your last posts I was going to say that I would never sacrafice the whole banana.LOL.Y'all have a great weekend.I wish and pray for the best for all of us.TBone

    Curtis?

    in GENERAL

    Posted

    I am sure that they need their alone time now.I have a 9 year old daughter.When I look at the pic of Becky and her daughter I just can't hold back the tears.I pray for them both all the time.Curtis knows where we are and I am sure he will be back in time.TBone

    Radiation to the brain--PLEASE HELP!!!

    in NSCLC GROUP

    Posted

    Hi,

    I am sorry for being so late with this post.I didn't see it earlier.I had whole brain radiation treatment for 3 tumors in my brain which began on 1/14/04 and ended on 2/03/04.My situation is different in that my disease presented itself as symptoms of brain metasis.I had no symptoms til 12/24/03 at which time I went to the ER with severe headache,noises in head and loss of use of my fingers on right hand.I HAD to have it.A matter of life or death.I am so glad that I did.The tumors shrunk.I lost all the symptoms and probably would not be here had I not had it.It was not easy though.I don't want to scare you but I am going to be truthful about my experience.The treatments are quick and painless.I was in and out of the clinic within 15 minutes most days.I felt no effects whatsover until day 10.I got home that day and all my hair fell out.I didn't mind that.I just didn't know that it would all come out at once and it was actually funny.Me and the kids pulling my hair out.I think this was the only thing I noticed until about a week after treatments.At that time I got really fatigued and started loosing my appetite.I don't know how long that would have lasted had I not started radiation to my chest right away.Anyway I stayed fatiqued,(super exhausted).from then until now.I am just starting to get some energy and appetite back but I did have 18 radiation treatments to the chest too.If you decide to do just be prepared to catch up on some sleep.Get some skin cream.I forgot to mention that my head did burn.Especially inside my ears and tops of ears.Good luck whatever you do.I have read others on here that didn't have the hard time that I did.But without it I would not be talking to you probably either.And I have regained tha fighting attitude in the last couple of days.Going for some more radiation and some chemo possibly.Keep posting.I am praying for us all.TBone

    Bob Mc.

    in GENERAL

    Posted

    Hi,

    I miss you too Bob.I have been doing a lot of praying for you buddy.You mean a whole lot to the people here.Post when you can and get strong and lets go fishing again.TBone

    Pet results

    in MEMBER UPDATES

    Posted

    Hi everyone,

    My doctor ordered a PET scan so we could see if I had an easily accesible tumor for the GVAX clinical trials.I had talked to the GVAX people and that is what they needed to know first.The results show a tumor in my right groin and another in my left armpit that are probably suitable.I called GVAX back and found out I am disqualified now because I have more than 3 active tumors.They knew that to begin with so I don't know if they have changed criteria or what.I have 3 in my brain,3 in right lung,1 in left lung,1 on each adrenalin gland to go along with the newly scanned ones.For right now I am going to take the path less traveled and see if I can gain some strength back.I felt much better today than I have for a while.Thanks for all your thoughts and prayers.Love all of you.TBone

    TBone

    in GENERAL

    Posted

    Hi Angie,

    I did my PET scan last week and will get results tomorrow I think.I have been exhausted and without appetite for a long time but I feel it getting better slowly.I am guilty of signing on and reading without posting.So much bad news on here lately it has just torn me up.I plan on posting more often now as I realize that it is through all posts,sad and glad,that we surive.And I appreciate each and every one of you.Love and prayers.TBone

    You're Worth It....

    in GENERAL

    Posted

    Thank you Fay for such beautiful words.I woke up yesterday feeling good for a change.Signed onto the board and just went into shock with the news of Becky and others.I just cried myself back to sleep.I worry about Bob as well.This is a tough road.Tougher than I realized it would be.But we have each other and I don't know what I would do without all of you.Thanks to all of you for keeping on posting.I have gotten bad about reading and leaving.I intend to post more now.Everything we say means something to someone.And for me sometimes it is just one little thing that raises my chin and makes me go on.Love to you all.TBone

    Hello Friends

    in INTRODUCE YOURSELF!

    Posted

    Hi Dusty,

    I am glad you checked in to this place.I wish we both had had a place like this when we were dealing with severe depression.It is amazing what these people and the love and care and hope have done for me.And I am sure it will help you in dealing with the death of your sister.Take care.TBone

    Mental Health Holiday

    in NSCLC GROUP

    Posted

    Hi,

    I hope that you two have a wonderful time.Hurry back though.I plan on taking one in April and don't want to be away from your humor and support for that long.Be careful and I will play nice while you are away.TBone

    Judy B has passed

    in NSCLC GROUP

    Posted

    Hi Stephanie,

    My heart aches for you as you go through this time of grief.Your mother was an inspiration to me and I cry with you.I am glad to know that she was with you,that she was at peace and that she knew what was coming and didn't suffer.I wish you the best in your move and please stay with us if you can.Take care.TBone

    TBone

    in GENERAL

    Posted

    Hi Howard,

    I am back.My computer was down for a few days.I am going ok.I had a PET scan day before yesterday and am awaiting results to see what do think about doing next.I am finally gaining strength from the radiation treatments and feel a bit better every day.I hope that you are doing good too.Take care and I am praying for us all.TBone

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