Guest bobp Posted June 26, 2003 Share Posted June 26, 2003 Well the good news first, my grandson was born healthy on fathers day, he and my daughter are home and he is a delightful, mellow baby. I had a followup CT for my chemo last week and got the results yesterday, mixed news, mild progression of lymph disease, same as previous scan 6 weeks ago, so the Taxotere isn't working, progression on two scans in a row. Whatever they saw on my remaining kidney in the last scan has apparently resolved, so at least I don't have permanent kidney damage. The Onc says we can try Navelbine or Irinetocan, I am going to take a couple weeks and see if I feel any better. I have been in pain basically ever since my diagnosis 2 years ago and over the last several months it has been getting progressively worse. The doctors don't seem to be able to figure out what is causing me all the pain. I had a bone scan and it was clear. I also had an MRI of the thoracic spine, there is something on it, but they say it isn't cancer. The doctors don't think I need to see a neurologist at this point, but I may ask for a referral anyway. I also have had digestive system problems, which started with my first chemo last year and have been up and down. It cleared up for a while then while I was on Iressa last year it got bad enough to cause me to stop the Iressa. It cleared up some again and now has returned worse than ever, the Onc doesn't think it is from the Taxotere and the Pain Doc doesn't think it is from the pain meds. All I know is it is debilitating at this point between the pain and stomach problems I haven't worked in months and have used up all my vacation and sick pay. I was working half time for a former business partner who was being very flexible, but I can't expect him to pay me if I am never there. I was told that Stage IV NSCLC should qualify me for Social Security Disability so I went and applied this week, there is a 6 month waiting period even if you are approved and from what I hear they often deny claims, requiring you to fight them to get paid. In the meantime we are living of my savings and my wife's salary. So the ups and downs of my life continue. Quote Link to comment Share on other sites More sharing options...
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