bcbcbc Posted October 17, 2005 Share Posted October 17, 2005 Hi again-- Happy to report I'm feeling better each day the farther I get from Alimta. That stuff really hammered me. I tolerated Gemzar/Carboplatin much better. Different strokes for different folks. Or maybe my immune system was stronger back then. Nobody seems to understand how any of this stuff really works. Why should I? I started Tarceva last Tuesday--one 150MG pill daily. So far the only reaction is dry skin and dry mouth. If all this entails is drinking water and using hand cream I'll be a carefree tourist. Tomorrow I have a follow-up appointment with a radiation oncologist I first saw six weeks ago just prior to my Alimta/pneumonia episode. At that time my health was robust. This guy was struck by the fact that it was then a year since diagnosis and I appeared to be in great shape--just a little SOB. So after examination and review of my records, etc. the guy asks me if I ever heard of Prophylactic Irradiation of the Brain. I hadn't. So he explains the course of treatment--8-10 daily treatments on successive days as I recall. Maybe it was 14. Frankly I was more amused than interested in having this dude zap my brain, which seems to be working about as well as it ever did, thank you. Arguably that may not be saying much. So this guy said if I was interested he would talk to my medical onc/treatment team/tumor board to see if this should go forward. I told him to go ahead and check it out--mostly curiosity. BTW since then I have had an MRI of the brain because of headaches I had with the pneumonia. Clear. Nothing there. Before I decide to let this guy or anybody else beam my bean I'm gonna have to see/hear a very persuasive argument with lots of supporting evidence. Have any of you folks out there heard of this treatment or had experience with it? Thanks as always for feedback and support. Quote Link to comment Share on other sites More sharing options...
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