BarbaraFi Posted January 4, 2010 Share Posted January 4, 2010 In 2004 had nodule in RUL removed complete upper lobe, no further treatment. In 2006 nodule in mediastitum inoperable, chemo and radiation. Now the new story, since May I have been through xrays, MRI's and CT's told stable nothing but scare tissue. Had stent put in this early November in my Vena Cava due to neck and facial swelling and trouble swallowing, told scar tissue caused this, after procedure immediate relief. Middle of Nov scan was done at Hospital rather than the sublet of the hospital where nothing but CT's and Pets are done and told not scar tissue a very large tumor 8 inches long and approx 3 inches wide from the supraclavical slanted down towards the mediastitum. Sent to radiation onc. can't be ratiated there again, but they will do cyberknife went last Monday had a bronoscopy and gold markers put in the tumor to get ready to cyberknife. (forgot to mention tumor is on the right and a nodule on left alot smaller showed up on Pet) liver, brain and adrenals are still clear. Told they will treat large tumor with cyberknife and chemo for the other small one. Was told at the end of last week when the pulmonary doctor inserted the markers my trachea that branches off to the right lung is about to cave in due to this tumors size and would cause me major problems so they will need to stent it first before they can begin cyberknife. I feel time is wasting, and how can something like this be missed for so long, I have been told stable stable stable, only scar tissue, I am not blaming my doctors as they must go by what the radiologist says and I could tell my doctor was very upset about it. I was told this cannot be cured they can only maintain what is going on. At first there were no tears but now all I can do is cry, can't sleep I am only 49 years old, I look but do not see very many sucess stories on cyberknife although they say it will get this large tumor, my concern is this will be the 3 rd time around with this cancer in 6 years, I need words of hope and encouragement from all of you, and stories to keep me going as I feel at times like giving up. Please help me get back my fighting mode. Quote Link to comment Share on other sites More sharing options...
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