Joppette Posted March 19, 2012 Share Posted March 19, 2012 Since my Monday Air was so lonely, I am changing it to Tuesday and seeing if maybe it won't feel so lonely today! My posts lately haven't been much fun, and certainly not "off topic", but it seems that this forum has become "the" place to come share our daily lives, and I am so thankful for it right now. Thank you to everyone that responded to my posts this weekend. They educated me, and assured me that I'm going to be okay. That is just awesome. Bud, thank you especially about the Cisplatin vein issue. It is swollen and red today and it reasurred me to read your post. I did go to Cancer Grace, and Dr. West did advise me to call my Doctor and talk about it. I did. They said to wait until Wednesday. It is red, and hot and hurts, but I am icing it and doing okay with it I guess. Dr. West also said I can go off Cisplatin and that there are other options. He said I could go back to Carboplatin, though using it again can cause cummulative issues, and I remember that drug before, and it was one that caused a tremendous amount of muscle and bone pain, and other issues. He said a non-platinum doublet with two agents that are often paired with a platinum can be used, like gemcitabine and navelbine, or some others. They are certainly fine alternatives and reasonably comparable in efficacy for advanced NSCLC (some may be a shade less active, but certainly in the same ballpark), though not as well studied or commonly used. I don't know what Gemcitabine is but my next job is to look it up. Today? Ears still rininging. More aches in the muscles today. Nausea okay since I called this weekend and got on Zofran. A friend recommended Ativan for it too. At this point I'll take anything and everything. I need to keep my weight up, and my appetite is zilch as it is. My pain doctor did up my doses of medications. I'll take the extended release as he prescribes to keep an even keel. Then I have the immediate release to help me with those flare ups such as my right arm right now. It's nice to have these options. It's supposed to get to 82 tomorrow (Tuesday that is almost here). Insane. But it's so gorgeous with zero humidity. I hope the rest of you are getting this beautiful stuff. I may have to break down and turn the air on for the first time tomorrow. When that afternoon sun beats in on my Western exposure, it does get a bit warm in here. No complaining though. MI Judy Quote Link to comment Share on other sites More sharing options...
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