Komal Posted March 3, 2019 Share Posted March 3, 2019 Hi Everyone, I am here to get some treatment advise and information for my father, who got his PET scan report and then biopsy done. We are waiting for biopsy results, though the doctors treating him have already warned us that by the looks of it, he has Stage3 Lung Cancer. The PET report says this: "FDG avid well defined modular lesion, measuring~1.4 x 1.3 cm is seen in the posterior basal segment of left lung lower lobe" "Multiple enlarged FDG avid discrete and coalescent lymph nodes with necrosis and calcification noted in tracheoedophageal groove, largest nodal mass measuring ~4.8 x 4.7 cm in subcarinal region, closely abutting thoracic edophagus and pushing it laterally causing luminal narrowing" (There is other stuff also, but this looks to be most imp to me.) Since he is overseas I cannot talk to doctors directly, I am trying to figure out how bad his case his and from this group members what should be the treatment for him. My dad also has diabetes, heart disease and COPD and has been a smoker for 40 years. I am feeling very anxious about this bad news coming to us from the blue as he used to get regular chest x rays and was pretty fit till November. Please do share some thoughts from your experience for his recovery based on this groups very helpful members. Thanks so much, Komal Link to comment Share on other sites More sharing options...
LexieCat Posted March 3, 2019 Share Posted March 3, 2019 Hi, Komal, and welcome. I'm sorry about your dad's diagnosis. As far as treatment goes, it's unlikely that surgery will be an option--at this point, anyway. Most likely he will be offered chemo and/or radiation, and depending on the results of biopsy and any molecular testing, targeted and/or immunotherapy might be options. We have several members here who are long-term survivors with advanced cancer, and the good news is that new treatments are being developed all the time. You will know more after the biopsy results come in and the doctors make their initial treatment recommendations. Usually initial treatments are fairly standardized and geared toward the particular type of lung cancer involved. Can you tell us what country he is in? Link to comment Share on other sites More sharing options...
Laurel Posted March 4, 2019 Share Posted March 4, 2019 I am so sorry about your dad's diagnosis. Before surgery Feb. 2018, it was stage 1....after surgery...stage 3. All cancer removed but due to lymph nodes involved, chemo followed by radiation was recommended. Once you find out what the doctors recommend, this is the place to get information on how to deal with surgery...treatments. I received a lot of good advice through my 18 months of surgery and treatment. I am currently NED- no evidence of disease. Bless you and your family. Link to comment Share on other sites More sharing options...
Komal Posted March 4, 2019 Author Share Posted March 4, 2019 Thanks so much Lexicat and Laurel for your kind replies. We are eagerly waiting for the details coming up in Biopsy report, will share once we have. He is in India ( New Delhi) and my sister is taking care of him right now and we are very happy the way his case is managed till now. I am also concerned that some therapy that is available in US might not be available in India, I will check in the forums if anyone has experience with LC treatments in India. Link to comment Share on other sites More sharing options...
BridgetO Posted March 4, 2019 Share Posted March 4, 2019 Hi Komal and welcome, I'm also sorry about your dad's illness. i agree with LexieCat that chemo and or radiation are more likely to be recommended than surgery and that immuno- or targeted therapy might be options depending on results of molecular testing. Let us know what the biopsy shows. I don't have any information about what treatments are available in India. The first question I would hve is whether biomarker testing is available to him. (This is sometimes called tumor genetics). You can read about biomarker testing, immuotherapy and targeted therapy in Lung Cancer 101 on the main Lungevity site. If you haven't seen that site, I recommend it. There's a lot of good information there. The link is https://lungevity.org/for-patients-caregivers/lung-cancer-101. Bridget O Link to comment Share on other sites More sharing options...
hope16 Posted March 4, 2019 Share Posted March 4, 2019 4 hours ago, Komal said: Thanks so much Lexicat and Laurel for your kind replies. We are eagerly waiting for the details coming up in Biopsy report, will share once we have. He is in India ( New Delhi) and my sister is taking care of him right now and we are very happy the way his case is managed till now. I am also concerned that some therapy that is available in US might not be available in India, I will check in the forums if anyone has experience with LC treatments in India. Hey komal I am also in India. Please don't worry about your dad, we gave a fantastic medical system in place. Everything that's available in US is also available in India including clinical trials. I wish you all the best. Link to comment Share on other sites More sharing options...
Komal Posted March 5, 2019 Author Share Posted March 5, 2019 Hello Hope16, I am glad I found someone from India! Good to know that the treatment is at par with US. If possible, can you please share some good Lung Cancer specialists around New Delhi area? If there is a separate forum / site for India, pls let me know that as well. Thanks so much everyone, this site is my #1 reference point now. Link to comment Share on other sites More sharing options...
hope16 Posted March 6, 2019 Share Posted March 6, 2019 Hi Komal I am staying in bangalore but in I had been to Mumbai for a second opinion and consulted doctor Advani who is a Padam shree in the field of oncology. So I feel you can do that too. Again in Mumbai Tata hospital can also be visited. They are the best in oncology andhave hands on experience as they treat thousands of patient on the daily basis. I know its difficult to move from Delhi to Mumbai but for a second opinion dr advani is the best. You can meet him at Raheja hospital. Link to comment Share on other sites More sharing options...
Komal Posted May 4, 2019 Author Share Posted May 4, 2019 Hello Hope16, How do I look for clinical trials in India? is there a separate website you use? I searched in https://clinicaltrials.gov/ and some others and do not find any open ones in India for NSCLC. Also I am looking for information on how to get Durvalumab in India. We were told that it is no longer available. Do you have any info? Any help will be appreciated. Thanks much. Komal Link to comment Share on other sites More sharing options...
hope16 Posted May 6, 2019 Share Posted May 6, 2019 Komal Your doctor's will let you know about the suitable clinical trial which are going on . So don't worry about it. First let the doctor treat your dad and later God forbid if needed he will let you know the clinical trials. But I wish your dad doesn't need one. My husband is stage one and doctor told him about a clinical trial for stage one patient to stop recurrence but we opted out. Link to comment Share on other sites More sharing options...
Komal Posted May 17, 2019 Author Share Posted May 17, 2019 Thanks a lot Hope! Or doctors have not told us of any CT's so I think there might not be any. God luck for your husband, hope he gets fully cured. Link to comment Share on other sites More sharing options...
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