jack14 Posted August 13, 2020 Share Posted August 13, 2020 Does anyone know how / where I can find out if there is any new therapies for genomic findings (pharmacogenomic testing)? Also, how does one find out if there's a trial that they might benefit from that is "showing promise"? Link to comment Share on other sites More sharing options...
jack14 Posted August 13, 2020 Author Share Posted August 13, 2020 I have found this link through the Mayo Clinic: https://www.mayo.edu/research/clinical-trials/search-results?keyword=NSCLC&studySiteStatusesGrouped=Open/Status Unknown Link to comment Share on other sites More sharing options...
Rower Michelle Posted August 13, 2020 Share Posted August 13, 2020 Good timing Jack! On Tuesday the Go2Foundation will feature Dr Ben Levy on the latest and greatest in testing and treatment. You can find this in YouTube which streams live or is recorded. I watch the recorded versions. As for clinical trials, that’s a wee bit challenging, www.clinicaltrials.gov allows you to search but frankly I don’t find it to be a valuable resource. Generally I poke around the ASCO Meeting Abstracts, they have nice summaries available. Link to comment Share on other sites More sharing options...
jack14 Posted August 14, 2020 Author Share Posted August 14, 2020 Thank you RM I found this: https://www.facebook.com/hopkinskimmel/posts/dr-ben-levy-and-rasheda-persinger-adams-from-sibley-memorial-hospital-johns-hopk/2492971184114820/ https://ascopost.com/issues/august-10-2020/incorporating-immunotherapy-into-treatment-of-early-stage-nsclc/ Link to comment Share on other sites More sharing options...
Rower Michelle Posted August 14, 2020 Share Posted August 14, 2020 Hi Jack- Yes, that’s a Lung Cancer Living Room episode from last year with De Levy. He’s going to update this talk on Tuesday. If you watch it live there is an opportunity to ask questions directly via a chat option. I think it’s also on FB too- https://m.youtube.com/user/BonnieJAddario Heres the ASCO search tool I like- https://meetinglibrary.asco.org/results;page=0?filters=JTVCJTdCJTIyZmllbGQlMjIlM0ElMjJNZWRpYVR5cGVzJTIyJTJDJTIydmFsdWUlMjIlM0ElMjJBYnN0cmFjdHMlMjIlMkMlMjJxdWVyeVZhbHVlJTIyJTNBJTIyQWJzdHJhY3RzJTIyJTJDJTIyY2hpbGRyZW4lMjIlM0ElNUIlNUQlN0QlNUQ%3D&meetingView=2020 ASCO Virtual Scientific Program Link to comment Share on other sites More sharing options...
LUNGevityKristin Posted August 14, 2020 Share Posted August 14, 2020 Hi Jack, LUNGevity has a Clinical Trial Finder that will help you find any trials that you would qualify for: https://lungevity.org/for-patients-caregivers/lung-cancer-101/find-clinical-trial You can also be partnered with a Clinical Trial Ambassador if you would like to speak with someone who has gone through the process: https://app.emergingmed.com/lcctal/home Link to comment Share on other sites More sharing options...
jack14 Posted August 14, 2020 Author Share Posted August 14, 2020 Thanks RM and Kristin! I am not looking for a trial at this time, as I am currently being treated with Keytruda. I am just trying to think ahead and keep up with the advancements. Particularly those that might be appropriate for me should the immunotherapy fail. I have been told that should that happen, that chemo would be the only therapy left at this time. My Foundation One Panel didn't reveal any mutations that are targetable. If I am undrstanding this correctly, there could be a discovery that gives me some alternative treatments? Like MET amplification; CCND1-amplification; SMARCB1-RC374Q-subclonal; or MTAP-loss? Link to comment Share on other sites More sharing options...
Rower Michelle Posted August 15, 2020 Share Posted August 15, 2020 Hi Jack We’re definitely on the same path! In addition to the Lungevity conference next week which has some really fabulous experts, here’s another conference about the latest & greatest in new treatment https://cancergrace.org/post/join-us-september-12-2020-rescheduled-targeted-therapies-patient-forum I pretty much gave up on Google a while ago & prefer these types of resources. Link to comment Share on other sites More sharing options...
jack14 Posted August 15, 2020 Author Share Posted August 15, 2020 Awesome! Thanks for the link Michelle! Link to comment Share on other sites More sharing options...
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