Sheila Cu Posted September 2, 2020 Share Posted September 2, 2020 I was diagnosed with Stage IV NSCLC two days after Christmas of 2017. I have the NRG 1 Fusion mutation which only occurs in .2%-.3% of solid tumors. I am being treated at UC Irvine. Had VATS surgery to remove tumor on LLL but have remaining nodules on both lungs. I’m on my second clinical trial and thankful each day to be alive! Anyone else with NRG 1 and what treatment are you on? Happy to be on this site for support and information sharing. Tom Galli 1 Quote Link to comment Share on other sites More sharing options...
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