JessC Posted January 14, 2021 Share Posted January 14, 2021 Hello, I'm new and there is so much good information here! But I'm stumbling through so if you see this and there's a link somewhere that could help, I'll happily take it! My mother (70) was diagnosed with stage 1B adneocarcinoma (we are very grateful it was caught early and through a heart CT screening that she herself suggested!). She had surgery to remove a mass in her lower lobe. The doctors are saying there are two smaller suspicious nodules that they think could also be cancerous and the plan is to treat them with SBRT now (instead of waiting to see if they might grow and and what rate). They have also suggested that she start Tagrisso - which would be considered preventative...to prevent the tumor that was removed from growing back. Our early investigation says that on medicare we would be paying at least a few thousand a month until she hits a deductible and then it would be $900 a month...until the next year when it starts all over! And they recommend she take the drug for two years. At our last appointment, the doctors were saying it was ultimately our decision and that there was some indication that the cost of the drug may outweight the benefits in her situation (because we are trying to predict the future and they are saying there's only a chance that that specific type of cancer will come back...there's no guarantee that it would or wouldn't) I have two questions for the community: Has anyone been in this type of situation where Tagrisso or a different targeted therapy was recommended preventatively and if so...was there anything that helped your family make the decision of what to do? And in general, if you are living in the US (and navigating our frustrating insurance system), did you find ways to lower the cost of the drug? (I realize a few thousand is coming down a lot from $15,000 a month sticker price, but that is still so much money!) Thank you for any help! Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.