MayFrog Posted September 16, 2004 Share Posted September 16, 2004 Well, had my latest CT scan on 9/13 (after completing 6 rounds of Cisplatin/VP-16), and saw the Onc today: "stable" disease (I never thought I'd be so happy over such a simple word!). I'm having follow-up Bone Scan and Brain MRI in October.....I have had some tingling/numbness in my hands/legs and loss of hearing; Onc feels it is result of Cisplatin, but would rather be safe than sorry (me, too--although the thought of having my brain in a basket for that MRI freaks me out a little....I can get through it ) Plan now is to monitor status....will have regular check-ups/scans. Onc states that the usual time frame for recurrance/re-growth is somewhere between 6 months and 2 years.....we'll just have to wait and see. Radiation is not an option since my liver is involved, and as of right now he sees no need for PCI or WBR (of course, that may change depending on Brain MRI results, we'll just keep our fingers crossed) Since "stable" seems to be a first cousin of NED, I am happy happy happy! Also, thanks to the wonderful people on this board, I felt confident that I was asking the right questions and my stress level wasn't nearly as bad as it had been with previous scans.........THANK YOU ALL!! Mary Quote Link to comment Share on other sites More sharing options...
Donna G Posted September 16, 2004 Share Posted September 16, 2004 Yes , stable is a wonderful sounding word, and a relative of NED. Thanks for sharing. Donna G Quote Link to comment Share on other sites More sharing options...
TeeTaa Posted September 16, 2004 Share Posted September 16, 2004 Quote Link to comment Share on other sites More sharing options...
Don Wood Posted September 17, 2004 Share Posted September 17, 2004 Great news, Mary. Quote Link to comment Share on other sites More sharing options...
dede Posted September 17, 2004 Share Posted September 17, 2004 Keep your sunny side up. I hope NED replaces stable soon. Denise Quote Link to comment Share on other sites More sharing options...
patut Posted September 17, 2004 Share Posted September 17, 2004 This is wonderful news. Way to Go!! Quote Link to comment Share on other sites More sharing options...
paddy Posted September 17, 2004 Share Posted September 17, 2004 That Great Word "stable"! Good for you Mayfrog! Paddy PS. I would love to know where that cute username comes from! Quote Link to comment Share on other sites More sharing options...
karenl Posted September 17, 2004 Share Posted September 17, 2004 Good job, Mary!!! Karen Quote Link to comment Share on other sites More sharing options...
MJ Posted September 17, 2004 Share Posted September 17, 2004 hi mary, stable is definitely good news! i hope that the mri/bone scan come up empty too. take care. God bless, mj Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted September 17, 2004 Share Posted September 17, 2004 Hi Mary, Good news! congratulations! I was a little edgy for those 18 months, but they did pass..... They will for you too. XOXOXOXOX Prayers always, MaryAnn Quote Link to comment Share on other sites More sharing options...
Melinda Posted September 21, 2004 Share Posted September 21, 2004 Mary, I love your def. of "stable" ! Happy dancing for you here in NYC. Melinda Quote Link to comment Share on other sites More sharing options...
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