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mhutch1366

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About mhutch1366

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    dogs, horses, plants, Irish dance and music, 2 daughters (one dances, one rides). Live in the suburbs of Wash. DC. Raised in Ct.

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  1. I too have trouble sleeping. I have to sleep sitting up. I have enough post nasal drip that either I'm coughing all night or else my already narrowed airway is further narrowed by mucus, so I don't get much air. It never ends, does it? At least sitting up I am not putting pressure on the surgical site where the rib nubs protrude. Stay strong and stay well. XOXO MaryAnn
  2. Happy Holidays to you too, bucky! And everyone else. XOXOX MaryAnn
  3. Hey! Sorry to be awol. Just trying to keep body and soul together. Taking on that little dog (a rescue) and dealing with one 13 year old daughter and one almost 20 in college with no $$ sense.... I'm hanging in there. Feeling older all the time. But I'm still here and more or less functioning, holding down a full time job. Then go home and fall asleep watching the early news!! Don't sleep real well; have had for years seems like a chronic sinus thing, so I can't sleep flat. I sleep in the recliner, so I don't cough all night. Radiation -- gotta love it. Keeps giving and giving..
  4. Try Dr. David Schrump at NIH. He did my surgery, and Kasey's , and has been very generous about second opinions. He was voted the best in the area over Hopkins and the DC hosp. (Gtown, GW, etc) for thoracic surgery. He works with Dr. Steve Rosenberg at National Cancer Institute. His Research nurse is Tricia Kunst, or Anna (?), and they move quickly to set up an appt or arrange to see your scans. I'll pm you his phone and his nurse's phone. Good luck! XOXOXOX MaryAnn
  5. Way to go , Katie... You and Rick have just leaned into it and gotten it done, because you care. You've more than earned an award. You've earned the love and respect of all of us over the years. We appreciate that you will be publicly honored. It certainly is well deserved, and it wasn't always easy. But you did it. Thank you. XOXOOXOXOXOX MaryAnn
  6. Wahoooooooo! Nonni! Way to go. !!!! Almost down to yearlys.... MaryAnn
  7. Congratulations, Joe. You have a beautiful family. I like to think that He has a plan for me, and so is keeping me around. He just doesn't want to tell me about it! I'm okay with that. Many more, Joe... MaryAnn
  8. Well, I made it another year. Scary, with what they're telling me now. Yes, I've paid a physical price with this "new normal", but I'm here in fact. That says it all. Thank you all for your kindnesses, and your forgiveness for my more recent neglect of everybody here -- I have to use computer at work, and we all know how that goes. Meanwhile, I understand they've improved on the technique used in my surgery, so the next guy won't be shrinking and have to lose the collarbone. That seems to be working out well. I am counting my blessings that I have a job -- too many friends been RI
  9. I was diagnosed 8 years ago. They pulled a 13 lb tumor , mostly dead, out of my chest. Chemo, radiation. I'm still here. Although if I were told I was going to die, I might just have turned to the wall and done that! Nobody, but nobody on this earth knows when your time is up. Attitude is everything. Don't give up on your dad just yet. MaryAnn
  10. Wishing you the best for another fifty!!! Free of Monsters under the bed, bats in your attic, Ber trucks at the top of your hill..... With my kids one had foxes under the bed, the other had dinosaurs in the kitchen. BE WELL!! DAMMIT! XOXOXOXOXOXOX MaryAnn
  11. Thank you for the update. Katie, you're a gem for flying up there. Prayers for our Connie to have a quick and uneventful recovery. XOXOXOX MaryAnn
  12. and I am still here... almost 8 years from diagnosis. Hang in there. Something to be said for cautious optimism.!! XOXOX MaryAnn
  13. Oh, Ry! I am so very sorry to hear... Prayers go out to you and the children. XOXOXOOXX MaryAnn
  14. Someone posted this week ( don't remember who to save my life) whose mother was vomiting constantly, and the dr. told her to try taking off the patches (I am assuming fentanyl) and the vomiting stopped. Alternative medication was required. Take care, XOXOX MaryAnn
  15. If the lesions are so small, I would think perhaps they could do a wedge resection and just nip that bit out, which means you would lose minimal lung tissue. There may be other routes the surgeon is considering that I know nothing about. People in otherwise good health can lose one lung and function very well; studies show that healing is such that loss of an entire lung stimulates cytokines and growth factors such that one has better breathing after loss of the entire lung than loss of half of one lung. In any case, if there is severe lung loss, the surgeon and pulmonist will most likely
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