Forums

  1. WELCOME NEW MEMBERS!

    1. INTRODUCE YOURSELF!

      Please introduce yourself here and then move on to the many other forums!

      33,436
      posts
  2. SURVIVOR STORIES

    1. SHARE YOUR LUNG CANCER STORY

      These are the inspirational and personal stories of the LUNGevity LCSC members.

      2,089
      posts
  3. DISCUSSION FORUMS

    1. GENERAL

      General discussion about all things lung cancer.

      96,718
      posts
    2. LC SURVIVORS

      A forum for anyone diagnosed with lung cancer, those in treatment and those who are not, to express their thoughts and issues from a patient's perspective.

      9,012
      posts
    3. NSCLC GROUP

      This is where thoughts or issues regarding NSCLC and sub-types of NSCLC can be found. Support is here for anyone facing this diagnosis.

      41,392
      posts
    4. SCLC GROUP

      This is where thoughts or issues regarding Small Cell Lung Cancer, extensive or limited stage can be found. Support is here for anyone facing this diagnosis.

      16,005
      posts
    5. LUNG CANCER MUTATIONS

      A forum to discuss anything related to lung cancer genetic testing and gene mutations.
      Share any news related to this topic here

      16
      posts
    6. IMMUNOTHERAPY

      Information, news and peer support

      38
      posts
    7. CAREGIVER RESOURCE CENTER

      FAMILY MEMBERS/CAREGIVERS: Air your feelings and get support and encouragement from others who have been co-survivors. Post and share resources for caregivers here

      30,445
      posts
    8. PALLIATIVE CARE

      Information about palliative care. Learn about palliative care for lung cancer survivorship and share resources here.

      6
      posts
  4. LUNG CANCER Q & A

    1. LUNG CANCER NAVIGATOR

      Do you have general questions about lung cancer? Post them here! We will reply with links and resources. This forum & site are NOT substitutes for professional medical advice. Please read all site disclaimers and consult your treating doctor about everything you read on the internet.

      33
      posts
    2. LUNG CANCER 101

      ALL expert blogs, podcasts webinars and expert events from LUNGevity and our experts will be posted here.

      454
      posts
  5. NEWS / ADVOCACY

    1. LUNG CANCER IN THE NEWS

      News posted here may not necessarily be endorsed or supported by LUNGevity in anyway, should NOT be taken as medical advice and are for informational purposes only.

      8,108
      posts
    2. CLINICAL TRIALS

      NEW TREATMENTS, TARGETED THERAPIES, RX info links &/or CLINICAL STUDY information may be posted here.

      2,968
      posts
    3. FOUNDATION NEWS

      News about LUNGevity, press releases, news about our volunteers, coordinators, event and initiatives.

      122
      posts
    4. ADVOCACY

      Advocate, raise awareness, participate in events and find volunteer opportunities in this forum.

      3,949
      posts
    5. CONFERENCES

      Conferences that are of interest to people impacted by lung cancer

      6
      posts
  6. LIVING WELL

    1. HEALTHY LIVING / RECIPES

      Nutritional information, exercise, diet and therapies. Links and newstories that may be beneficial to health and survival may be posted here. No advertisements.

      493
      posts
    2. HOPE

      Inspire us with your good news and hopeful articles!

      35,729
      posts
    3. JUST FOR FUN

      A forum for jokes, word games, and fun postings. "Air" your days events or concerns in the Daily "AIR".
      {Fun Found Here!}

      41,900
      posts
  7. SUPPORT / GROUPS

    1. SUPPORT RESOURCES

      Suggestions, links, recommendations and tools to help support you during the lung cancer journey

      51
      posts
    2. SUPPORT GROUPS

      Find local support groups and/or post your groups here.

      433
      posts
  8. GRIEF / RESOURCES

    1. GRIEF

      For anyone who has lost a loved one to LC. Post general updates, memorial notices and tributes here.

      42,014
      posts
  9. ABOUT THIS MESSAGE BOARD

    1. FEATURES AND SUPPORT

      You can create your own blog, chat, and more! Learn the basics and ask site support questions here.

      1
      post
    2. TERMS OF USE

      Terms of use and disclaimers are posted here. They can also be found in the REGISTRATION AGREEMENT that every member accepts when registering to post on this message board.

      2
      posts
  • Member Statistics

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    Total Members
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  • Forum Statistics

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    407,225
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  • Recent Discussions

    • At treatment yesterday my wife asked for a social worker to schedule a family meeting. She wants to tell everybody that she feels she has a timeline.  She told me again of how she wants to be at peace with her timeline. That she feels with treatment she is defined by the timeline that doctors are giving her. And I get it, she wants to make everyday count.  I try to not define our life by the hard moments. Coming home from chemo, and her body is worn out. My mind matches her body. My body feels the toll. And that she still wants me to be ready to begin to let go.  I asked the doctor about managing the discomforts. The pain options other than OxyContin. We discussed neurotin, to deal with nerve pain (as she has lived 30 years with MS). That I know I can't cure her as much as I would like to. But I want her to be in as least pain as possible. She recieved zometa for bone pain. If anybody has recieved this, if they can give me an idea of how their body handled it.  I asked the doctor if she has any of the mutations, just so I feel I have the idea of places to search for trials being run. Her testing came back negative for ALK and EGFR. They are going to order for the rest. She I guess chooses to know only what she wants- but I want the "silver bullet". Because it means the world to me if I can help her become a survivor story. Even if it's another year, or 5 or 10. I'm not ready to lose. I want to go know I gave it my all. Because any less, despite the outcome I will feel as if I failed her. 
    • Hi Josie ,
      New to the group , and am only 4 weeks post surgery . My experience was a Bronchoscopy to tattoo the tumor so the surgeon could . .visualize it . Then he did a VATS . Video assisted thoracoscopy ,and mediostinal lymph node dissection and biopsy . I didn't have a biopsy prior to the surgery ,my tumor was small and they were concerned about getting it with a needle. While I was asleep they sent it to pathology . The surgeon had told me if it was cancer he would remove the right upper lobe . It was adeno carcinoma and they did a lobectomy . Mine was Stage 1a , margins and lymph nodes were clear . The oncologist said I didn't need chemo or radiation , but I 'm to have a CT scan every 6 months for 2 years .
      I asked for physical therapy they came to the house for 3 weeks for endurance . My insurance won't pay for the facility that has the only pulmonary rehab . Outpatient . So I will be going to a conditioning program . My big problem is shortness of breath and fatigue . I am a pretty bad asthmatic as well . But they say the best thing is walking and use the incentive spirometer . I hope My experience helped some


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    • Dear Cynde,

      Being a caregiver to a loved one with late-stage cancer is not easy.

      Have you considered any in-person support groups for both of you? Counselling is often underutilized.

      Also, I wanted to echo Tom's words that there are often options every step of the way. So many with stage IV lung cancer are living much longer, happier lives than we could have imagined 10 years ago. If you use Twitter, you will find many writing online at #lcsm. If possible, try to stay aware of the clinical trials that may be available - they often offer great care.

      Kind Regards,
      I


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