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Terri welcome here.
I know well about the daze you are in. This is a good place to learn about folks who've been right where you are and have survived and have fulfilling lives. Read some of our survival stories. I'm a 12-year survivor and there are many here like me. If we can live, so can you.
So, how does one face the daze? I've found spending time to learn about my disease to be effective. Knowledge for a lung cancer patient is power. Here is a good source of information on CT scans: https://www.lungevity.org/about-lung-cancer/lung-cancer-101/diagnosing-lung-cancer/imaging-tests
I'm a Texan also and know many who've benefited from the treatment expertise at MD Anderson. So, you are in a good place. You'll have many questions and this forum is a great place to ask. Tell us about the type of lung cancer you have and folks on this site with the same type will be able to share their treatment experience. Tell us also the name of the chemotherapy drugs you are receiving. Again, we might be able to help you anticipate effects and side-effects.
You are not alone in this battle. We understand what you are facing and most importantly many of us have survived to blog about it.
Stay the course.
Found out in may I have stage 4 small cell lung cancer, I just finished my 4th treatment , feeling pretty good ... Until I read my CT. scan.. Which I don't understand.
It doesn't sound very good, I won't see my oncologist for 3 more weeks. I started treatment at UTMB Galveston but have now gotten into MD Anderson for my 4th treatment. I'm hopeful but in a daze on what's to come next .
looking forward to all the info I can get and support would mean so much !
Jg welcome here!
I also had taxol and carboplatin as first line treatment along with radiation and developed a peripheral neuropathy (some call it taxol toes) that still bothers me after 12 years of survival. Is there relief? Not that I've found. Here is what I do to ease the discomfort. I wear wool lined slippers to bed and this guards my toes from the bed covers. I also wear wool lined shoes (wool under the toes and heal) and this reduces the discomfort when I walk. I've tried gabapentin and Lyrica but neither worked for me. I tolerate the pain during the day and take Xanax (1 mg) that makes me drowsy enough to fall asleep. Occasionally, my wife cuts lidocaine patches that she applies to my toes and first joints of my feet and I put on a wool sock to hold the patches in place.
I've never received Opdivo so I can't help you there.
I hope you receive clean scans and NED after your forthcoming CT scan.
Stay the course.
I was diagnosed with stage 4 non small cell lung cancer 1/13/16. I had 10 sessions of radiation for cancer in my hips and 6 sessions of taxol/carbo. The hips are healing and the pain is minimal. CT scan showed the tumor on my lung and the tumor on my sternum had both shrunk. My oncologist was very happy with the progress.
I just had my 4th infusion of Opdivo. After the next session, I will have my 1st CT scan since starting the Opdivo.
No side effects from the Opdivo, but after my last treatment of the platinum base, I have developed peripheral neuropathy in my feet and taking gabapentin.
I have two questions:
Anybody else on Opdivo and if you are, how is it going?
Is there any other relief/cure for peripheral neuopathy besides gabapentin?