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My spouse was diagnosed almost exactly a month ago. Went in for ER visit believing it was a kidney stone causing pain in pelvic area. Through extensive tests and second opinions, it came back as stage 4 non small cell lung cancer (2.6 cm mass) with bone mets to the right pelvic bone (2.7 cm mass).
shes currently finishing round 1 of chemo- alimta and carboplatin. The next round will add avastin. Four rounds total followed by radiation. As hopeful as I try to be, she is very doom and gloom. The dr talked at the last visit of when she is remission, and I take that as a sign that the team of Drs wouldn't talk of remission if they didn't believe it was possible. Biopsy of pelvic bone done at ER visit came back as not being The mutation suitable for tarceva, and confirming adenocarcinoma. He talked that if after remission she would relapse the next step would be opdivo.
At the initial appointment, she was told that without treatment she would have six months to live.
I guess what I am seeking is advice from other spouses/caregivers on how to keep it all together everyday. And if anybody has any survivor stories that they are willing to share- to possibly help her keep hope that there are tomorrows.
Apologies for the slow response. I have my appointment next week with the pulmonologist, I'm nervous but hoping I get some kind of productive result as well. I went to an outpatient facility a couple of weeks ago, in the hopes of at least tempering the cough, but the doctor there told me to go to the ER since the coughing and pain were/are chronic. Needless to say, the ER trip was totally unhelpful - the doctor treated me like a hypochondriac and the angiography he scheduled came back clear for cardiac issues, but no solutions as to the cough and pain. I'll check back in next week after my pulmonologist appointment and let everyone know how it went.
Hope you and everyone on this are doing OK.