Forums

  1. WELCOME NEW MEMBERS!

    1. INTRODUCE YOURSELF!

      Please introduce yourself here and then move on to the many other forums!

      33,430
      posts
  2. SURVIVOR STORIES

    1. SHARE YOUR LUNG CANCER STORY

      These are the inspirational and personal stories of the LUNGevity LCSC members.

      2,089
      posts
  3. DISCUSSION FORUMS

    1. GENERAL

      General discussion about all things lung cancer.

      96,715
      posts
    2. LC SURVIVORS

      A forum for anyone diagnosed with lung cancer, those in treatment and those who are not, to express their thoughts and issues from a patient's perspective.

      9,012
      posts
    3. NSCLC GROUP

      This is where thoughts or issues regarding NSCLC and sub-types of NSCLC can be found. Support is here for anyone facing this diagnosis.

      41,389
      posts
    4. SCLC GROUP

      This is where thoughts or issues regarding Small Cell Lung Cancer, extensive or limited stage can be found. Support is here for anyone facing this diagnosis.

      16,005
      posts
    5. LUNG CANCER MUTATIONS

      A forum to discuss anything related to lung cancer genetic testing and gene mutations.
      Share any news related to this topic here

      16
      posts
    6. IMMUNOTHERAPY

      Information, news and peer support

      37
      posts
    7. CAREGIVER RESOURCE CENTER

      FAMILY MEMBERS/CAREGIVERS: Air your feelings and get support and encouragement from others who have been co-survivors. Post and share resources for caregivers here

      30,442
      posts
    8. PALLIATIVE CARE

      Information about palliative care. Learn about palliative care for lung cancer survivorship and share resources here.

      6
      posts
  4. LUNG CANCER Q & A

    1. LUNG CANCER NAVIGATOR

      Do you have general questions about lung cancer? Post them here! We will reply with links and resources. This forum & site are NOT substitutes for professional medical advice. Please read all site disclaimers and consult your treating doctor about everything you read on the internet.

      33
      posts
    2. LUNG CANCER 101

      ALL expert blogs, podcasts webinars and expert events from LUNGevity and our experts will be posted here.

      454
      posts
  5. NEWS / ADVOCACY

    1. LUNG CANCER IN THE NEWS

      News posted here may not necessarily be endorsed or supported by LUNGevity in anyway, should NOT be taken as medical advice and are for informational purposes only.

      8,108
      posts
    2. CLINICAL TRIALS

      NEW TREATMENTS, TARGETED THERAPIES, RX info links &/or CLINICAL STUDY information may be posted here.

      2,968
      posts
    3. FOUNDATION NEWS

      News about LUNGevity, press releases, news about our volunteers, coordinators, event and initiatives.

      122
      posts
    4. ADVOCACY

      Advocate, raise awareness, participate in events and find volunteer opportunities in this forum.

      3,949
      posts
    5. CONFERENCES

      Conferences that are of interest to people impacted by lung cancer

      6
      posts
  6. LIVING WELL

    1. HEALTHY LIVING / RECIPES

      Nutritional information, exercise, diet and therapies. Links and newstories that may be beneficial to health and survival may be posted here. No advertisements.

      493
      posts
    2. HOPE

      Inspire us with your good news and hopeful articles!

      35,729
      posts
    3. JUST FOR FUN

      A forum for jokes, word games, and fun postings. "Air" your days events or concerns in the Daily "AIR".
      {Fun Found Here!}

      41,900
      posts
  7. SUPPORT / GROUPS

    1. SUPPORT RESOURCES

      Suggestions, links, recommendations and tools to help support you during the lung cancer journey

      51
      posts
    2. SUPPORT GROUPS

      Find local support groups and/or post your groups here.

      433
      posts
  8. GRIEF / RESOURCES

    1. GRIEF

      For anyone who has lost a loved one to LC. Post general updates, memorial notices and tributes here.

      42,014
      posts
  9. ABOUT THIS MESSAGE BOARD

    1. FEATURES AND SUPPORT

      You can create your own blog, chat, and more! Learn the basics and ask site support questions here.

      1
      post
    2. TERMS OF USE

      Terms of use and disclaimers are posted here. They can also be found in the REGISTRATION AGREEMENT that every member accepts when registering to post on this message board.

      2
      posts
  • Member Statistics

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    Total Members
    255
    Most Online
    Mary McLoughlin
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    Mary McLoughlin
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  • Forum Statistics

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    407,209
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  • Recent Discussions

    • I am curious for all of you that have non small cell adenocarcinoma stage 2A... Seems many sites I go to. There aren't many with stage 2A like myself..I had surgery last year to have a.lung resection done with a couple lymph.nodes positive so I had chemo following the durgery.Approximately 7 months later they found some lymph nodes in mid chest positive. They think.it was there.before but to small to see on a scan..    30 radiation treatments and chemo completed in May..pet scan in July...no cancer detected....exhale.. My question is to all of you scan the same adenocarcinoma stage 2A..what treatments have you had ?  Was it successful?  Any local recurrence? Future treatments? Or periodically having scans every three months like me?? Just trying to connect and see how others in my situation and  Stage are doing??   Much appreciated.. Thank you Merilee
    • Mary, I've been exactly where you are.  Lung cancer is persistent and like you I did not expect a reoccurrence.  Indeed, I had 4 recurrences following treatment that produced no evidence of disease or NED.  It took a total of 5 distinct treatments to finally achieve a long period of NED and these were administered over the course of 3 years.   Perhaps you are interested in learning how frequent lung cancer recurs.  A recent National Cancer Institute study suggested about 33% of stage 1A and 1B experience a recurrence; 66% of state IIA, IIB or IIIA have a recurrence; and stage IIIB and IV have about a 33% recurrence rate. But this late stage percentage is skewed because of the competing risk of mortality. Here is the article in case you want the details.  http://jnci.oxfordjournals.org/content/107/6/djv059.full.pdf+html  So where does that leave you? You've got to reclaim your mojo, put your game face on, and move out to battle the beast.  Do you have squamous cell or adenocarcinoma NSCLC?  There are emerging targeted therapies for people with certain forms of adenocarcinoma.  If your tumor was biopsied, them perhaps your tumor was tested to see if it would respond to targeted therapy.  Here is a concise explanation of targeted therapy: https://www.lungevity.org/about-lung-cancer/lung-cancer-101/treatment-options/targeted-therapy If you have squamous cell, there are new immunotherapy treatment methods that are very effective against recurrent disease.  Here is information on immunotherapy: https://www.lungevity.org/about-lung-cancer/lung-cancer-101/treatment-options/immunotherapy I'm not knowledgable about the Irish Medical System, but in the US tumor samples are preserved so it is often possible to have a new pathological exam of your previously biopsied tumor to see if your cancer will respond to targeted therapy or immunotherapy.  Bottom line Mary, if I can live more than 12 years after my stage IIIB NSC Squamous Cell Lung Cancer diagnosis, so can you. Questions?  Feel free to ask them here. Stay the course. Tom      
    • hi i was 18th months after treatment for stage 3b nsclc and doing great all chest xrays and scans going really great, until a scan last month just before my 50th birthday showed recurrent cancer in my right lung this time a lymph node in my neck and lower pelvic area feeling really scared and down. I had just started to put all this behind me and get on with my life now my world is turned upside down again really have lost my mojo.If anyone out there has been through a similar situation and would like to chat that would be great.