Forums

  1. WELCOME NEW MEMBERS!

    1. INTRODUCE YOURSELF!

      Please introduce yourself here and then move on to the many other forums!

      34,564
      posts
  2. SURVIVOR STORIES

    1. SHARE YOUR LUNG CANCER STORY

      These are the inspirational and personal stories of the LUNGevity LCSC members.

      2,147
      posts
  3. DISCUSSION FORUMS

    1. GENERAL

      General discussion about all things lung cancer.

      97,094
      posts
    2. LC SURVIVORS

      A forum for anyone diagnosed with lung cancer, those in treatment and those who are not, to express their thoughts and issues from a patient's perspective.

      9,022
      posts
    3. NSCLC GROUP

      This is where thoughts or issues regarding NSCLC and sub-types of NSCLC can be found. Support is here for anyone facing this diagnosis.

      42,067
      posts
    4. SCLC GROUP

      This is where thoughts or issues regarding Small Cell Lung Cancer, extensive or limited stage can be found. Support is here for anyone facing this diagnosis.

      16,105
      posts
    5. LUNG CANCER MUTATIONS

      A forum to discuss anything related to lung cancer genetic testing and gene mutations.
      Share any news related to this topic here

      31
      posts
    6. IMMUNOTHERAPY

      Information, news and peer support

      49
      posts
    7. CAREGIVER RESOURCE CENTER

      FAMILY MEMBERS/CAREGIVERS: Air your feelings and get support and encouragement from others who have been co-survivors. Post and share resources for caregivers here

      30,497
      posts
    8. PALLIATIVE CARE

      Information about palliative care. Learn about palliative care for lung cancer survivorship and share resources here.

      6
      posts
  4. LUNG CANCER Q & A

    1. LUNG CANCER NAVIGATOR

      Do you have general questions about lung cancer? Post them here! We will reply with links and resources. This forum & site are NOT substitutes for professional medical advice. Please read all site disclaimers and consult your treating doctor about everything you read on the internet.

      75
      posts
    2. LUNG CANCER 101

      ALL expert blogs, podcasts webinars and expert events from LUNGevity and our experts will be posted here.

      455
      posts
  5. NEWS / ADVOCACY

    1. LUNG CANCER IN THE NEWS

      News posted here may not necessarily be endorsed or supported by LUNGevity in anyway, should NOT be taken as medical advice and are for informational purposes only.

      8,136
      posts
    2. CLINICAL TRIALS

      NEW TREATMENTS, TARGETED THERAPIES, RX info links &/or CLINICAL STUDY information may be posted here.

      2,962
      posts
    3. FOUNDATION NEWS

      News about LUNGevity, press releases, news about our volunteers, coordinators, event and initiatives.

      130
      posts
    4. ADVOCACY

      Advocate, raise awareness, participate in events and find volunteer opportunities in this forum.

      3,948
      posts
    5. CONFERENCES

      Conferences that are of interest to people impacted by lung cancer

      9
      posts
  6. LIVING WELL

    1. HEALTHY LIVING / RECIPES

      Nutritional information, exercise, diet and therapies. Links and newstories that may be beneficial to health and survival may be posted here. No advertisements.

      497
      posts
    2. HOPE

      Inspire us with your good news and hopeful articles!

      35,732
      posts
    3. JUST FOR FUN

      A forum for jokes, word games, and fun postings. "Air" your days events or concerns in the Daily "AIR".
      {Fun Found Here!}

      41,910
      posts
  7. SUPPORT / GROUPS

    1. SUPPORT RESOURCES

      Suggestions, links, recommendations and tools to help support you during the lung cancer journey

      55
      posts
    2. SUPPORT GROUPS

      Find local support groups and/or post your groups here.

      436
      posts
  8. GRIEF / RESOURCES

    1. GRIEF

      For anyone who has lost a loved one to LC. Post general updates, memorial notices and tributes here.

      42,019
      posts
  9. ABOUT THIS MESSAGE BOARD

    1. FEATURES AND SUPPORT

      You can create your own blog, chat, and more! Learn the basics and ask site support questions here.

      1
      post
    2. TERMS OF USE

      Terms of use and disclaimers are posted here. They can also be found in the REGISTRATION AGREEMENT that every member accepts when registering to post on this message board.

      4
      posts
  • Member Statistics

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  • Forum Statistics

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  • Recent Discussions

    • I have had 3 rounds with cancer. My first was in 1992, I was diagnosed with Gallbladder cancer. No symptoms, just one gallbladder attack. For whatever reason, the doctor decided not to wait but to remove it. I had surgery two weeks later. The strange thing was that when I went back for the follow up, I came to a complete stop when we were walking into the building. I can still  remember it so clearly. I had such a feeling of dread pass through me. I told my husband that I had a bad feeling that they found something bad, of course he thought I was being silly. They had, the pathology report came back ,found cancer. Now, it is very rare and they didn't know how to handle. Some research was done and another surgery to clean up and take samples. It was contained to the gallbladder and no further treatment was needed. Then in 2008, I had a routine appointment with my PCP, normal yearly chest x-ray was done. They found a small spot in my left lung. So, tests and more tests. They removed my upper left lobe in April 2008, stage 1B, N0, M0. I started feeling very sorry for myself, moping around the house and eating and gaining so much weight that I could hardly move. One night I decided that I had survived cancer twice but I was going to let the weight kill me. So, I started working out and watching what I ate. I lost the weight and started running. I have done countless 5k's, 10k's and 2 1/2 marathons.  There was still a place inside me that felt guilty for surviving without having to go through treatment.   I was hesitant to tell anyone that I was a lung cancer survivor, still such a strong stigma  attached to it. Fast forward to 2017. Routine blood work, except my PCP ordered a different one that my oncologist didn't order. The numbers were on the high side, wait a couple of months and repeat, higher yet. OK, the start of all the tests again. Small nodule in my upper right lung. Saw a new oncologist (mine had retired), he said let's wait and see, next day it went in front of the tumor board, change of plans, lets get rid of this now. June 20th they removed my upper right lung, stage 1A, N0, no  further treatment need just monitor for the next 5 years. I am walking more and getting ready for my first 5k post surgery. I have decided that I can become a voice for early detection. I have lost family and friends because they waited until it was too late. Former smokers and people with a family history of cancers should get regular check ups so anything can be caught early in the game.I want to let people know that you can have life after lung cancer, it is not always a death sentence. My first 5k is on September 10th and it is for cancer patients, all money raised goes to support the patients in need. I have had a special shirt made up just for my runs. I can't attach a picture of the shirt, but the back reads: Early detection works 1992- gallbladder cancer 2008 Lung cancer - upper left lobe 2017 Lung cancer - upper right lobe.  The front simply states that there is always hope.   Thank  you for letting me share.
    • How do you deal with family members whom you normally only see a few times a year who now decide they need to make multiple visits???? Short of telling them all where to go. We have tried to set boundaries & time frames. We have a schedule we are on and they get very offended when I tell them NO and turn around and call my husband who wants everyone to get along. He is afraid to hurt someone's feelings. I on the other hand could care less. These people are not left with the aftermath of their visits.  I get left with the totally wiped out shell of the person who is sick. It would be nice if they would offer help or bring a meal or offer to run an errand. Instead they come in plop down dissect our life and need to know everything and cruise back out the door only to reappear a few days later. I am just pissed off, frustrated and want to smack some of them. It is like they have no common sense. A good example is our Sunday morning trip to ER @ 5:30 a.m.where we stayed till 10:30 a.m.. Planned visitors called ahead and when I said we just got back from ER they said we will be there in a half hour for a visit. Meanwhile I still had to feed him and get him settled back in. Common sense would have had me saying I will pass on the visit. 
    • Hi everyone,  I got the news last week that my mom has stage 3 lung cancer. It really tore me apart, she's my best friend and I owe everything I have, and every part of who I am to her. When she was younger she also battled and won the battle with lymphoma. I've always been so proud of her for that, but I wasn't around to see her go through all of the treatments and how they can change a person. I'm scared to see how the treatment for her lung cancer will affect her. My dad is her primary caregiver but we will all be helping her through this as much as possible. He was by her side through her cancer the first time so I'm happy he will be with her again. He is good at staying positive. I've been doing a lot of crying in private, but staying positive around the family, especially my mom herself. She herself is staying positive, saying today that "she's got this" after we learned after her MRI showed that she had no other tumors in her body as of now besides in her lung. After learning this I felt a big sense of relief, but then it slowly faded once I realized how hard this was still going to be to fight. I don't feel right for allowing myself to breathe and feel hopeful, I feel like I should take this as realistically as possible but I'm not informed enough to even know what that entails.  Tomorrow she sees a surgeon to see if she should do chemo and surgery or chemo and radiation. At first glance before the MRI they didn't think surgery would be an option at all, so I feel a bit of optimism that maybe surgery can happen after chemo now. I know people have beaten lung cancer with just chemo and radiation. I also know a family friend's mother just had half of her lung removed and is in remission doing very well. These things make me feel so much better but I know every single case is different. My mother is the most resilient, strongest, and most selfless woman in the world. Everyone who meets her loves her and her smile lights up the room. I want to know what I can do to make this easier on her, my brothers, my dad, and myself as well. What are the steps to take? What can I expect to change in our lives? She's always taken care of me and been my rock and I plan to do the same for her. Any advice, thoughts, anything would be good.  Thank you!!!