Forums

  1. WELCOME NEW MEMBERS!

    1. INTRODUCE YOURSELF!

      Please introduce yourselves here & then move on to the many other forums!!!

      33,303
      posts
  2. SURVIVOR STORIES

    1. SHARE YOUR LUNG CANCER STORY

      These are the inspirational and personal stories of the LUNGevity LCSC members.

      2,089
      posts
  3. DISCUSSION FORUMS

    1. GENERAL

      General discussion about all things lung cancer.

      96,679
      posts
    2. LC SURVIVORS

      A forum for anyone diagnosed with lung cancer, those in treatment and those who are not, to express their thoughts and issues from a patient's perspective.

      9,003
      posts
    3. NSCLC GROUP

      This is where thoughts or issues regarding NSCLC and sub-types of NSCLC can be found. Support is here for anyone facing this diagnosis.

      41,311
      posts
    4. SCLC GROUP

      This is where thoughts or issues regarding Small Cell Lung Cancer, extensive or limited stage can be found. Support is here for anyone facing this diagnosis.

      16,001
      posts
    5. LUNG CANCER MUTATIONS

      A forum to discuss anything related to lung cancer genetic testing and gene mutations.
      Share any news related to this topic here

      15
      posts
    6. IMMUNOTHERAPY

      Information, news and peer support

      29
      posts
    7. CAREGIVER RESOURCE CENTER

      FAMILY MEMBERS/CAREGIVERS: Air your feelings and get support and encouragement from others who have been co-survivors. Post and share resources for caregivers here

      30,424
      posts
    8. PALLIATIVE CARE

      Information about palliative care. Learn about palliative care for lung cancer survivorship and share resources here.

      6
      posts
  4. LUNG CANCER Q & A

    1. LUNG CANCER NAVIGATOR

      Do you have general questions about lung cancer? Post them here! We will reply with links and resources. This forum & site are NOT substitutes for professional medical advice. Please read all site disclaimers and consult your treating doctor about everything you read on the internet.

      33
      posts
    2. LUNG CANCER 101

      ALL expert blogs, podcasts webinars and expert events from LUNGevity and our experts will be posted here.

      453
      posts
  5. NEWS / ADVOCACY

    1. LUNG CANCER IN THE NEWS

      News posted here may not necessarily be endorsed or supported by LUNGevity in anyway, should NOT be taken as medical advice and are for informational purposes only.

      8,108
      posts
    2. CLINICAL TRIALS

      NEW TREATMENTS, TARGETED THERAPIES, RX info links &/or CLINICAL STUDY information may be posted here.

      2,968
      posts
    3. FOUNDATION NEWS

      News about LUNGevity, press releases, news about our volunteers, coordinators, event and initiatives.

      122
      posts
    4. ADVOCACY

      Advocate, raise awareness, participate in events and find volunteer opportunities in this forum.

      3,945
      posts
    5. CONFERENCES

      Conferences that are of interest to people impacted by lung cancer

      1
      post
  6. LIVING WELL

    1. HEALTHY LIVING / RECIPES

      Nutritional information, exercise, diet and therapies. Links and newstories that may be beneficial to health and survival may be posted here. No advertisements.

      493
      posts
    2. HOPE

      Inspire us with your good news and hopeful articles!

      35,729
      posts
    3. JUST FOR FUN

      A forum for jokes, word games, and fun postings. "Air" your days events or concerns in the Daily "AIR".
      {Fun Found Here!}

      41,886
      posts
  7. SUPPORT / GROUPS

    1. SUPPORT RESOURCES

      Suggestions, links, recommendations and tools to help support you during the lung cancer journey

      49
      posts
    2. SUPPORT GROUPS

      Find local support groups and/or post your groups here.

      430
      posts
  8. GRIEF / RESOURCES

    1. GRIEF

      For anyone who has lost a loved one to LC. Post general updates, memorial notices and tributes here.

      42,013
      posts
  9. TECHNICAL / SITE SUPPORT

    1. TECHNICAL SUPPORT / HOW TO USE THIS FORUM

      Basic site support questions from users may be posted here.

      1
      post
    2. SITE CONTENT/DISCLAIMERS/ANNOUNCEMENTS

      Website Disclaimers posted here. They can also be found in the REGISTRATION AGREEMENT TERMS in which every member agreed to and signed when registering to post on this message board.

      4
      posts
  • Today's Birthdays

    1. Dave Eveler
      Dave Eveler
      (72 years old)
    2. the1truereblangel
      the1truereblangel
      (50 years old)
  • Recent Posts

    • I was diagnosed with stage 4 non small cell lung cancer 1/13/16. I had 10 sessions of radiation for cancer in my hips and 6 sessions of taxol/carbo. The hips are healing and the pain is minimal. CT scan showed the tumor on my lung and the tumor on my sternum had both shrunk. My oncologist was very happy with the progress. I just had my 4th infusion of Opdivo. After the next session, I will have my 1st CT scan since starting the Opdivo.  No side effects from the Opdivo, but after my last treatment of the platinum base, I have developed peripheral neuropathy in my feet and taking gabapentin. I have two questions:
      Anybody else on Opdivo and if you are, how is it going?
      Is there any other relief/cure for peripheral neuopathy besides gabapentin? 
    • HI Ric, Recovery can sometimes depend on your age and overall health before surgery and other times there seems to be no logic in the recovery process.  There will be some practical physical things to recover from but there can also be psycho social /emotional issues that follow a diagnosis and surgery as well.  We can put you in touch with others who have been thru surgery recently if you want to chat with someone one on one just request it here www.lungevity.org/lifeline  but there just isn't a one size fits all answer to this.   I know a stage 2b retirement age male who is a long distance cyclist and was out riding his bicycle 3 weeks after surgery.  He also did chemotherapy and radiation- He continues to ride hundred of miles a week.   I know a 25 year old "healthy" young lady who lost most of her lung (no other treatment besides surgery) and between physical and emotional issues, her recovery was several months long.   It may help to know the best case and worst case scenarios so you won't be surprised at how your body responds after surgery.  And patience is definitely important.  We tend to be really hard on ourselves.   Working from home might be doable if it isn't physically taxing but give yourself the time your body needs to heal.   Please keep us posted on you! Best hopes, K      
    • Hard anybody had this treatment?
    • Hello RicKoehn.  Welcome.  I am sorry you have been diagnosed with the Lung Cancer but am so happy that it was done early Stage I and that your doctor has quickly set a plan of care.   I like Tom was Stage 3B .  I had to have chemo and radiation before it shrunk enough to do surgery.  So I was still in recovery from that when I had surgery on top to also recover from.  I had  the surgery in the spring of 1998.  I had to have chemo after surgery too so with all that it took a while to recover.   I hope your recovery goes smoothly .  I also agree with Tom though that you should follow the Doctors instructions.  Be patient.  Even what I went through was worth it.  Here I am over 18 years later talking to you !  What's 4-6 weeks compared to that ?   Please keep us posted on how you are doing. Donna G  
    • Welcome here Rickoehn! If there is any celebration possible with a lung cancer diagnosis it is a stage I discovery.  I know there are stage I discoveries but I hear about so few that I can't begin to predict how long surgical recovery might be.  What type of surgery is to be performed? Is your doctor including post surgical chemo in the 4 to 6 week recovery projection?  Is post-surgical chemo even prescribed for stage I lung cancer (question to myself....)? I was diagnosed stage IIIB and had pre-surgical radiation and chemo to shrink the tumor to allow the surgeon to completely remove my right lung.  Even given the seriousness of that surgery, I was discharged to home 5 days after surgery and advised to avoid strenuous activity for 2 weeks.  I was on track to return to work until I caught an infection that landed me back in the hospital.  So my plan with a complete pneumonectomy was return to work in 3 weeks.   Knowing what I know about lung cancer, I'd advise strict adherence to your doctor's suggestions.  It is a nasty disease and your stage of discovery yields the best possible treatment outcome.  But, it is still nasty! Stay the course. Tom