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Hi Josie , New to the group , and am only 4 weeks post surgery . My experience was a Bronchoscopy to tattoo the tumor so the surgeon could . .visualize it . Then he did a VATS . Video assisted thoracoscopy ,and mediostinal lymph node dissection and biopsy . I didn't have a biopsy prior to the surgery ,my tumor was small and they were concerned about getting it with a needle. While I was asleep they sent it to pathology . The surgeon had told me if it was cancer he would remove the right upper lobe . It was adeno carcinoma and they did a lobectomy . Mine was Stage 1a , margins and lymph nodes were clear . The oncologist said I didn't need chemo or radiation , but I 'm to have a CT scan every 6 months for 2 years . I asked for physical therapy they came to the house for 3 weeks for endurance . My insurance won't pay for the facility that has the only pulmonary rehab . Outpatient . So I will be going to a conditioning program . My big problem is shortness of breath and fatigue . I am a pretty bad asthmatic as well . But they say the best thing is walking and use the incentive spirometer . I hope My experience helped some
Being a caregiver to a loved one with late-stage cancer is not easy.
Have you considered any in-person support groups for both of you? Counselling is often underutilized.
Also, I wanted to echo Tom's words that there are often options every step of the way. So many with stage IV lung cancer are living much longer, happier lives than we could have imagined 10 years ago. If you use Twitter, you will find many writing online at #lcsm. If possible, try to stay aware of the clinical trials that may be available - they often offer great care.
Hi everyone I really promise to work on learning this blog lol. Well anyhow July 23rd was the big day for me I started the trial. So far so go with side effects just alittle dizziness and a slight new cough. Oh and alittle more sleep than normal but that could be all in my head. Hope everyone is doing great. And good luck with the screening Martin