Forums

  1. WELCOME NEW MEMBERS!

    1. INTRODUCE YOURSELF!

      Please introduce yourselves here & then move on to the many other forums!!!

      33,304
      posts
  2. SURVIVOR STORIES

    1. SHARE YOUR LUNG CANCER STORY

      These are the inspirational and personal stories of the LUNGevity LCSC members.

      2,089
      posts
  3. DISCUSSION FORUMS

    1. GENERAL

      General discussion about all things lung cancer.

      96,679
      posts
    2. LC SURVIVORS

      A forum for anyone diagnosed with lung cancer, those in treatment and those who are not, to express their thoughts and issues from a patient's perspective.

      9,003
      posts
    3. NSCLC GROUP

      This is where thoughts or issues regarding NSCLC and sub-types of NSCLC can be found. Support is here for anyone facing this diagnosis.

      41,311
      posts
    4. SCLC GROUP

      This is where thoughts or issues regarding Small Cell Lung Cancer, extensive or limited stage can be found. Support is here for anyone facing this diagnosis.

      16,001
      posts
    5. LUNG CANCER MUTATIONS

      A forum to discuss anything related to lung cancer genetic testing and gene mutations.
      Share any news related to this topic here

      15
      posts
    6. IMMUNOTHERAPY

      Information, news and peer support

      32
      posts
    7. CAREGIVER RESOURCE CENTER

      FAMILY MEMBERS/CAREGIVERS: Air your feelings and get support and encouragement from others who have been co-survivors. Post and share resources for caregivers here

      30,424
      posts
    8. PALLIATIVE CARE

      Information about palliative care. Learn about palliative care for lung cancer survivorship and share resources here.

      6
      posts
  4. LUNG CANCER Q & A

    1. LUNG CANCER NAVIGATOR

      Do you have general questions about lung cancer? Post them here! We will reply with links and resources. This forum & site are NOT substitutes for professional medical advice. Please read all site disclaimers and consult your treating doctor about everything you read on the internet.

      33
      posts
    2. LUNG CANCER 101

      ALL expert blogs, podcasts webinars and expert events from LUNGevity and our experts will be posted here.

      453
      posts
  5. NEWS / ADVOCACY

    1. LUNG CANCER IN THE NEWS

      News posted here may not necessarily be endorsed or supported by LUNGevity in anyway, should NOT be taken as medical advice and are for informational purposes only.

      8,108
      posts
    2. CLINICAL TRIALS

      NEW TREATMENTS, TARGETED THERAPIES, RX info links &/or CLINICAL STUDY information may be posted here.

      2,968
      posts
    3. FOUNDATION NEWS

      News about LUNGevity, press releases, news about our volunteers, coordinators, event and initiatives.

      122
      posts
    4. ADVOCACY

      Advocate, raise awareness, participate in events and find volunteer opportunities in this forum.

      3,945
      posts
    5. CONFERENCES

      Conferences that are of interest to people impacted by lung cancer

      1
      post
  6. LIVING WELL

    1. HEALTHY LIVING / RECIPES

      Nutritional information, exercise, diet and therapies. Links and newstories that may be beneficial to health and survival may be posted here. No advertisements.

      493
      posts
    2. HOPE

      Inspire us with your good news and hopeful articles!

      35,729
      posts
    3. JUST FOR FUN

      A forum for jokes, word games, and fun postings. "Air" your days events or concerns in the Daily "AIR".
      {Fun Found Here!}

      41,886
      posts
  7. SUPPORT / GROUPS

    1. SUPPORT RESOURCES

      Suggestions, links, recommendations and tools to help support you during the lung cancer journey

      49
      posts
    2. SUPPORT GROUPS

      Find local support groups and/or post your groups here.

      430
      posts
  8. GRIEF / RESOURCES

    1. GRIEF

      For anyone who has lost a loved one to LC. Post general updates, memorial notices and tributes here.

      42,013
      posts
  9. TECHNICAL / SITE SUPPORT

    1. TECHNICAL SUPPORT / HOW TO USE THIS FORUM

      Basic site support questions from users may be posted here.

      1
      post
    2. SITE CONTENT/DISCLAIMERS/ANNOUNCEMENTS

      Website Disclaimers posted here. They can also be found in the REGISTRATION AGREEMENT TERMS in which every member agreed to and signed when registering to post on this message board.

      4
      posts
  • Today's Birthdays

  • Recent Posts

    • Found out in may I have stage 4 small cell lung cancer, I just finished my 4th treatment  , feeling pretty good ... Until I read my CT. scan.. Which I don't understand. It doesn't sound very good, I won't see my oncologist for 3 more weeks. I started treatment at UTMB Galveston but have now gotten into MD Anderson for my 4th treatment. I'm hopeful but in a daze on what's to come next . looking forward to all the info I can get and support would mean so much !  
    • Thank you Tom for your reply. I will give the wool socks a try. I am hopeful for a great (clear) scan. I live to battle on!
    • Jg welcome here! I also had taxol and carboplatin as first line treatment along with radiation and developed a peripheral neuropathy (some call it taxol toes) that still bothers me after 12 years of survival.  Is there relief?  Not that I've found.  Here is what I do to ease the discomfort.  I wear wool lined slippers to bed and this guards my toes from the bed covers.  I also wear wool lined shoes (wool under the toes and heal) and this reduces the discomfort when I walk.  I've tried gabapentin and Lyrica but neither worked for me.  I tolerate the pain during the day and take Xanax (1 mg) that makes me drowsy enough to fall asleep.  Occasionally, my wife cuts lidocaine patches that she applies to my toes and first joints of my feet and I put on a wool sock to hold the patches in place. I've never received Opdivo so I can't help you there. I hope you receive clean scans and NED after your forthcoming CT scan.  Stay the course. Tom
    • I was diagnosed with stage 4 non small cell lung cancer 1/13/16. I had 10 sessions of radiation for cancer in my hips and 6 sessions of taxol/carbo. The hips are healing and the pain is minimal. CT scan showed the tumor on my lung and the tumor on my sternum had both shrunk. My oncologist was very happy with the progress. I just had my 4th infusion of Opdivo. After the next session, I will have my 1st CT scan since starting the Opdivo.  No side effects from the Opdivo, but after my last treatment of the platinum base, I have developed peripheral neuropathy in my feet and taking gabapentin. I have two questions:
      Anybody else on Opdivo and if you are, how is it going?
      Is there any other relief/cure for peripheral neuopathy besides gabapentin? 
    • I was diagnosed with stage 4 non small cell lung cancer 1/13/16. I had 10 sessions of radiation for cancer in my hips and 6 sessions of taxol/carbo. The hips are healing and the pain is minimal. CT scan showed the tumor on my lung and the tumor on my sternum had both shrunk. My oncologist was very happy with the progress. I just had my 4th infusion of Opdivo. After the next session, I will have my 1st CT scan since starting the Opdivo.  No side effects from the Opdivo, but after my last treatment of the platinum base, I have developed peripheral neuropathy in my feet and taking gabapentin. I have two questions:
      Anybody else on Opdivo and if you are, how is it going?
      Is there any other relief/cure for peripheral neuopathy besides gabapentin?