Forums

  1. WELCOME NEW MEMBERS!

    1. INTRODUCE YOURSELF!

      Please introduce yourself here and then move on to the many other forums!

      34,424
      posts
  2. SURVIVOR STORIES

    1. SHARE YOUR LUNG CANCER STORY

      These are the inspirational and personal stories of the LUNGevity LCSC members.

      2,140
      posts
  3. DISCUSSION FORUMS

    1. GENERAL

      General discussion about all things lung cancer.

      97,054
      posts
    2. LC SURVIVORS

      A forum for anyone diagnosed with lung cancer, those in treatment and those who are not, to express their thoughts and issues from a patient's perspective.

      9,026
      posts
    3. NSCLC GROUP

      This is where thoughts or issues regarding NSCLC and sub-types of NSCLC can be found. Support is here for anyone facing this diagnosis.

      41,948
      posts
    4. SCLC GROUP

      This is where thoughts or issues regarding Small Cell Lung Cancer, extensive or limited stage can be found. Support is here for anyone facing this diagnosis.

      16,063
      posts
    5. LUNG CANCER MUTATIONS

      A forum to discuss anything related to lung cancer genetic testing and gene mutations.
      Share any news related to this topic here

      31
      posts
    6. IMMUNOTHERAPY

      Information, news and peer support

      45
      posts
    7. CAREGIVER RESOURCE CENTER

      FAMILY MEMBERS/CAREGIVERS: Air your feelings and get support and encouragement from others who have been co-survivors. Post and share resources for caregivers here

      30,497
      posts
    8. PALLIATIVE CARE

      Information about palliative care. Learn about palliative care for lung cancer survivorship and share resources here.

      6
      posts
  4. LUNG CANCER Q & A

    1. LUNG CANCER NAVIGATOR

      Do you have general questions about lung cancer? Post them here! We will reply with links and resources. This forum & site are NOT substitutes for professional medical advice. Please read all site disclaimers and consult your treating doctor about everything you read on the internet.

      72
      posts
    2. LUNG CANCER 101

      ALL expert blogs, podcasts webinars and expert events from LUNGevity and our experts will be posted here.

      455
      posts
  5. NEWS / ADVOCACY

    1. LUNG CANCER IN THE NEWS

      News posted here may not necessarily be endorsed or supported by LUNGevity in anyway, should NOT be taken as medical advice and are for informational purposes only.

      8,134
      posts
    2. CLINICAL TRIALS

      NEW TREATMENTS, TARGETED THERAPIES, RX info links &/or CLINICAL STUDY information may be posted here.

      2,971
      posts
    3. FOUNDATION NEWS

      News about LUNGevity, press releases, news about our volunteers, coordinators, event and initiatives.

      130
      posts
    4. ADVOCACY

      Advocate, raise awareness, participate in events and find volunteer opportunities in this forum.

      3,965
      posts
    5. CONFERENCES

      Conferences that are of interest to people impacted by lung cancer

      9
      posts
  6. LIVING WELL

    1. HEALTHY LIVING / RECIPES

      Nutritional information, exercise, diet and therapies. Links and newstories that may be beneficial to health and survival may be posted here. No advertisements.

      496
      posts
    2. HOPE

      Inspire us with your good news and hopeful articles!

      35,731
      posts
    3. JUST FOR FUN

      A forum for jokes, word games, and fun postings. "Air" your days events or concerns in the Daily "AIR".
      {Fun Found Here!}

      41,910
      posts
  7. SUPPORT / GROUPS

    1. SUPPORT RESOURCES

      Suggestions, links, recommendations and tools to help support you during the lung cancer journey

      56
      posts
    2. SUPPORT GROUPS

      Find local support groups and/or post your groups here.

      436
      posts
  8. GRIEF / RESOURCES

    1. GRIEF

      For anyone who has lost a loved one to LC. Post general updates, memorial notices and tributes here.

      42,019
      posts
  9. ABOUT THIS MESSAGE BOARD

    1. FEATURES AND SUPPORT

      You can create your own blog, chat, and more! Learn the basics and ask site support questions here.

      1
      post
    2. TERMS OF USE

      Terms of use and disclaimers are posted here. They can also be found in the REGISTRATION AGREEMENT that every member accepts when registering to post on this message board.

      4
      posts
  • Member Statistics

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  • Recent Discussions

    • Carol, Hi! I am also stage IV adenocarcinoma. I was on Alimta for about six months between my standard first line chemo and the immunotherapy I am on now. My creatinine levels were always normal on Alimta, but started fluctuating about a year after starting Nivolumab. What are his numbers? I took a treatment break at 1.8 and took prednisone for a short time to see if that would get it back under control. It has lowered a little and stabilized around 1.4, but they won't give me IV contrast with my scans unless it is <1.3 (?) I have a referral from my PCP to a nephrologist, but need to reschedule the appointment because I have a conflict. Make sure he dos drink the proper amount of water, don't use ibuprofen, get plenty of sleep, stay active and try eating things like: cauliflower, berries, cucumber, cherries, dried apricots and incorporate chamomile tea, cinnamon, lemon juice, cranberry juice and limit salt intake, dairy and other foods high in potassium and calcium. Maybe if I was more diligent about those things, mine would be lower too. I'll let you know if I get in to see a specialist soon.   cindy
    • Thanks, Big Heart! I feel the prayers.  And thanks, Vivian, for the good advice. It does seem like the more he drinks the higher his creatinine, and now the infusions of fluid are not doing very much to bring it down. We're being treated at a comprehensive cancer center, and our oncologist is very good about referring us to other docs. Will ask about endocrinologist and/or nephrologist.  I'm concerned that too much fluid will deplete his system of vitamins and minerals he needs. And thanks for the prayers. Carol   
    • Carol,
      I remember they used to give my husband IV fluids before infusion and his creatinine numbers went way high. I would suggest seeing an endocrinologist for sure to monitor and control the creatinine numbers. If necessary they may refer him to a Nephrologist.

      It is possible to drink too much water, ask doctor about recommended intake for his condition.

      Will keep y'all in our thoughts and prayers. Hope this helps.

      Vivian



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