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Julie in SoCal

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Julie in SoCal last won the day on April 15

Julie in SoCal had the most liked content!

About Julie in SoCal

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  • Birthday March 19

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    Huntington Beach
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  • Interests
    Jesus, Anthropological research, Culture and stuff, Photography.

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  1. Rash with Carbo + Pem

    Hi Susan, Yes, Chemo Care is awesome! I've used them for various questions I've had and it's been so helpful! I posted here mostly because skin blisters wasn't listed in the side effect lists of Carbo-Pem and so I wondered if this was a "rare" one. Who knows, eh? Rashes are no fun! Trust you've got a handle on yours. Julie
  2. Rash with Carbo + Pem

    Thanks, Tom! I checked Google too and didn't see anything either. I've talked to my chemo nurse (she's amazing!) and as long as there's no infection, there's no problem. So no problem. And they are slowly healing. Thanks again! Julie
  3. Rash with Carbo + Pem

    Good morning, friends! Last week I had my second round of Carboplatin and Pemetrexed and have had very predictable side effects (fatigue, nausea, vomiting, diarrhea, mouth sores). At the end of the first round I started to get small blister type sores on my arms and the back of my hands. The blisters would then pop and become crusty sores. Gross, I know, but they take a long time to heal. Other than being gross, and an ever present reminder of this "time of life" they're not a problem. Should I be concerned? Thanks! Shalom, Julie
  4. Carbo / Pem Round 1 Questions

    Hi JulieG. I'm a Julie G also. How about that! Are you also a JAG? I sure appreciate your insight into the Carbo/Pem cycle. I'm finding a similar pattern Day 2 I'm ok. Day 3-5 I have the hit by truck tiredness, nausea and vomiting (so lovely). Then Day 6-7 my GI track would get involved. But today is day 8 and I feel pretty good. I ate breakfast and am back to work as "normal". I too have an amazing boss and coworkers. So maybe this is doable!!! It's good to know that this will be the normal cycle. I'm planning a getaway next month and want to put it at a time when I can enjoy it. Thanks again!! Julie
  5. Carbo / Pem Round 1 Questions

    Thanks Tom, Yes, this is the object of the game: safely planning enjoyable activities. So far day 2-4 has been nausea and vomiting and of course not wanting to eat. The nausea is the most alarming as it's fairly unpredictable. Wouldn't mind if that stopped. I haven't hit the joint pain phase, but that's a fairly normal state for me anyway. Thanks again!! Julie
  6. Carbo / Pem Round 1 Questions

    Dear Friends, I started my first round of Chemo (carboplatin and alimta) on Tues. and I'm wondering what the timing is like for the cycle. Obviously, the farther away you get from the poison, the better you'll feel, but how long does it take to feel better? Anyone have any experience with this? Thanks for your help, Julie
  7. Rash w/ immunotherapy?

    HI there, I've had 4 types of immunotherapy for melanoma treatment but have never had a rash. Some of my melahomies have had them, though. Check out this search results page of a melanoma site I'm on. There's lots of posts on immunotherapy and rashes and some possible good ideas. Shalom, Julie
  8. Treatment plan is in place

    Greetings Friends! We have a plan!!! And it's a good one! Next Tues afternoon I will start my first (of four) rounds of a chemo combo (carboplatin and pemetrexed). The thinking is that this is the treatment that makes treating two cancers comparatively simple. It's quick (only 12 weeks) and very well known. After being in the land of amazing new medicine, it is strangely comforting, knowing that there shouldn't be any mystery side effects to deal with. After chemo I will start 35 or so sessions of radiation. Then Larry the lung cancer will have been cut, poisoned, and burned. This has been one long, scary roller coaster ride and I've hated waiting to figure things out. But this waiting time has given me opportunity to think and pray about what I want in treatment. It's easy to say that I want to be cured (and my 23 year old body back as a side effect). But it's much harder to figure out what I'm potentially willing to give up. This extended time has helped me figure this out. And I'm so grateful. Shalom, Julie
  9. Pain between shoulder blades?

    Thank you Snowflake! This is encouraging to hear. Your signature tag lines are also amazing! Thanks again, Julie
  10. Pain between shoulder blades?

    Thanks all. I'll let you know what the Doc says on. Monday. shalom, Julie
  11. Untreated stress - source of relapse?

    Yes, this sounds like another version of blame the patient or maybe a more "sophisticated version" of sell healing to the vulnerable. Maybe I'm more sensitive to this than others, but I hate it when people hear I have lung cancer and then ask if I smoked. Now I get the connection, but why would anyone ask. We wouldn't ask a breast cancer patient if they nursed their babies! How is it socially ok to ask if I smoked? Because if I smoked then in the mind of the theoretical asker, I could be blamed for my lung cancer and if I sun bathed, I can be blamed for my melanoma. And since the asker theoretically didn't do these things, he or she will be ok. Yes this is dog wash. So, with Respect to Mitch the above poster, what do you intend with your post? Are you selling us healing? Blaming us for our illness? What's your connection with cancer? Are you free of psychotraumaic stimuli? Or are you posting a service? And by the way, no, I didn't smoke or sun bathe! Julie
  12. Mental and emotional exhaustion

    Hey Cheryncp123, I've been doing this cancer thing now for almost 10 years (I have another cancer life- Melanoma 3c, so I've been doing this for awhile) and it gets me every time. Scans, treatment decisions, transitions, yup all of them send me to crazy town. So I pray and bleed my heart out to the One I know cares more than anyone. I also intentionally plan fun things with friends. My friends know I go crazy before scans or decisions or any transition time, so they're happy to provide a temporary distraction for awhile. I remind myself that I have many people who I love and who love me. I also use the "trip to crazy town" as my friends call it, it to help me figure out what I want. Yes, I want to be healed, truly cancer free with my 23 year old body again (HAAA!), but often the crazy talk in my head is also telling me something else. I think I'm just returning from crazy town. Right now I'm trying to make treatment decisions and, while they're an educated guess at best, I'm complicated because of two active cancers, so figuring out the way to go is complicated (and of course seems to have taken a long long time to make this decision). But as I reflect on the decision making process, I've realized what I want in the treatment. I've figured out my priorities and what I'm comfortable risking. At the beginning of this I didn't know what priority I put on things. I couldn't answer the question, "what do I want" with more than "to be healed". This is a given. of course I want to be healed! But how much quality of life am I willing to give? If I am completely deafened (I am near deaf, now) is this ok? If I can no longer walk because of inflammatory arthritis everywhere, is this ok. What am I willing to trade? Wrestling with these questions and coming up with some kind of squishy answer has been huge. The decision is still coming (we'll decide on Monday) but I have found peace with it. Or at least for now, I'm not on the indefinite loop riding around crazy town in my head--off ramp found! And this is huge. So I guess my strategy is to : Acknowledge God plus nothing is enough because I was loved before I was born! (I think of this as taking God to crazy town with me). Be good, kind, and gentle with myself. Lean into my friends Listen to hear if I'm telling myself anything in the crazy and learn from it. Be good, kind and gentle with myself and tell the committee in my head that I've heard them so "thank you , you can shut up, now". Continue being good, kind and gentle with myself and love others. I wish you peace (and an appropriate off ramp) Shalom, Julie
  13. Pain between shoulder blades?

    No. I can call and text, but there's no direct way of reporting all this strangeness. I'll see him on Monday, and will definitely ask him about it. Just wondering if this was normal.
  14. Pain between shoulder blades?

    Greetings Friends, I'm a month out of successful VATs lobectomy (upper left lobe). I still have the weird tight feeling in my ribs, and a bit of sensitive skin below my ribs. These I understand are a result of the chest tube and will eventually go away. What I don't quite understand is a pain I have between my shoulder blades. I'm assuming it's VATs related, yes? Sometimes it hurts a lot (like now) sometimes not at all. Am I doing something to aggravate something? Thanks for your help, Julie
  15. Keytruda

    I had about 24 treatments of Keytruda and found that the tiredness and wretched "flu like symptoms" go away after a few days to a week. The only thing that I found was cumulative was the joint aches and pains and I wish I had gotten on that sooner (hindsight!). Watch for a GI issues that don't stop, a brain piercing headache, and joint pain. And of course complain, err, I mean tell your mom's medical team about everything. I'm not sure how long they'll wait to scan your mom. but Keytruda often presents a pseudo-progression at first. So on early scans it looks like the tumors are growing. This is alarming, but fairly common for Keytruda. I have no idea if this is medically correct, but I've envisioned my immune system attacking the tumor and surrounding it, thus making it bigger. So I'd guess that they'll wait a little while 4-6 rounds before thinking about scanning. Shalom, Julie