Helpingmom

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About Helpingmom

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    Unite
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  1. Thank you, Julie!
  2. Mom had her first round of keytruda yesterday . she said she was very tired yesterday and this morning and she felt aches and pains . She seemed much better this afternoon. Praying this works! I'm wondering if the side effects will remain mild or get worse as she has more treatments. I was also wondering how many treatments she will have before they do a scan?
  3. Thanks so much for the information, Julie! Being able to work is very important to my mother, so I'm glad to know that may be possible for her. She also has a short cruise planned for the fall so I am really hoping she can still do that even though I'll worry every second she is gone .
  4. Wow! Thank you Suzanne and Woodburn for your replies also. My mom is such an active, positive person so I was hoping the side effects were manageable. Your posts help me a great deal and give me a little more hope. I will be praying for you both and look forward to your updates on your successful treatment!
  5. Thank you. Yes. they are that size based on what my mom has told me they look like. I will keep that option in mind if needed.
  6. My mom was diagnosed with NSCLC and was approved for keytruda. She has a small tumor in her lung and an even smaller, hardly visible one in her liver. Everything else came back clear. The keytruda will be her first treatment. What can we expect from this? Side effects? I know all cancer is different , but I would love to hear from someone who has taken it. Is it even possible this could shrink her liver tumor so they can operate on her lung or lead to remission? She is obviously stage IV so I know it is very serious and I'm worried about how much time I have left with her. My other question is, they never told her the size of the spots in her lung and liver. This may be a dumb question, but do the size of these matter at all or give any indication how advanced it is? She doesn't ask any questions during appointments so I'm trying to learn as much as possible. Thank you in advance for any help you can provide .
  7. I have mentioned taking notes to her, she doesn't do it. It is frustrating and to be honest, I feel like she isn't telling me the truth about what is going on sometimes. There is nothing anyone can do to change how she is about things like this. I know her. I think part of it is she is embarrassed about the smoking and everything and what it has done to her because so many people have been telling her for so long that she needed to take better care of herself. I am trying my best to be positive , but I would feel so much better to talk to her doctors and hear from them, good or bad, what is really happening. I have told her this and she just says she needs her privacy. I am trying not to be selfish and make her angry and upset just to make me feel better. At some point, she is going to have to tell us what is happening if things do not get better. She has all the support she needs from me as she knows I'm there for whatever she needs, but she only tells me what is going on so I am very much alone trying to process all this. My fiance knows because there was no way i could even get up in the morning and function without his support. This site is starting to help though and thank you all and know that i pray everyday for a cure for everyone who is going through this.
  8. Thanks so much for your response. I will take a look at the information you have suggested. She has Adenocarcinoma. She has 1 small spot in her lung and one in her liver that is barely visible on the scan. She was until a few weeks ago a very heavy smoker and drinker, so it's not really all that surprising unfortunately. I asked her if they knew where it originated and she said no. is this something they can tell? Does it matter?
  9. So found out today the cancer is in one lung and just the tiniest spot in her liver. The doctor is running tests on the biopsy tissue because his hope is to start her on keytruda instead of chemo. If anyone can share some experiences with this treatment , I would be very grateful . everything I have read about it sounds promising .
  10. Thank you. I wish my mom would let me or someone go with her, but she won't allow it which makes it much more difficult for those who care about her. I will keep your mom in my thoughts as well. I'm getting married in a few months and I want so much for my mom to be there and be healthy .
  11. Wow. Thank you so much for the quick response. I will check on all of those things. I am so glad I found this site. It is frustrating as my mom doesn't ask many questions and no answers are given voluntarily. she had a CT and biopsy last month. They did her PET scan finally just a few days ago. she can see the results online and it it doesn't say anything different that the CT. This is all so new and I've been trying not to Google too much, but it's hard when she doesn't ask for more info from her doctors.
  12. Hi. My mom was recently diagnosed with lung cancer, well, they did a biopsy and found cancer in her lung. we don't know yet the stage or origin. she is a long time smoker, but only 53. I am really hoping they found it early, even though I know that is rarely the case. My question today is she has an appointment set and it lists 3 different departments she is meeting with. Radiation/Oncology, Hematology/Oncology, and behavioral medicine. the radiation oncology is obvious , but can anyone tell me what roles the other 2 have in treatment of lung cancer ?