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Showing results for tags 'lung cancer'.
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The demands of lung cancer caregiving can be overwhelming, especially if you feel you have little control over the situation or you have little or no help. Let's chat about it! Have you ever felt helpless and powerless in your role as caregiver? It's important to watch for warning signs and take action right away to lighten your load and avoid serious burnout. TOPIC: Lung Cancer Caregiver Stress, Burnout, and Depression We will chat about signs and symptoms of caregiver stress and burnout. How can you recognize the signs of caregiver stress and burnout? What resources are available to help ease the burdens on lung cancer caregivers? Ways that families and friends can help their loved ones and share experiences and tips that may help others. DETAILS: Date: Wednesday, August 3, 2016 Time: 5pm Pacific/7pm Central/8pm Eastern This chat is open to ALL lung cancer caregivers, patients, survivors, and professionals. Are you a patient seeking help for your caregiver? This chat is for you too. TWITTER CHAT TIPS: A great online tool for Twitter chat participation is http://www.tchat.io/ Just log into your Twitter account from this site and then enter our chat hashtag #LCChat. You'll be able to follow right along and read everyone's tweets, retweets, likes, and replies!
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Sometimes, people don't realize how much their words can hurt. It's important for us to educate and raise awareness among family, friends, and social networks. This is an enlightening piece about what NOT to say to someone who has been diagnosed with cancer. If you'd like to add anything, please comment below! http://holisticlifetransitionsinstitute.com/what-not-to-say-to-a-cancer-patient/
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Join us for the next Caregiver Twitter Chat: Topic: How Can Lung Cancer Caregivers Communicate with the Healthcare Team? Date: Wednesday July 6, 2016 Time: 5pm Pacific/7pm Central/8pm Eastern This chat is open to ALL lung cancer caregivers, patients, survivors, and professionals. Are you a patient seeking help for your caregiver? This chat is for you too. Twitter Chat tips: A great online tool for Twitter chat participation is http://www.tchat.io/ Just log into your Twitter account from this site and then enter our chat hashtag #LCChat. You'll be able to follow right along and read everyone's tweets, retweets, likes, and replies!
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For the first time, cancer researchers are offering patients with early stage lung cancer either surgery or stereotactic ablative radiotherapy (SABR) and comparing the results in a phase III clinical study called the Stablemates Trial. SABR is a specialized form of radiation that has evolved in recent years to treat patients with just a few sessions – in this case just three treatments spread over eight days or less – using advanced imaging to deliver a higher dose. An early study has shown that SABR could be as effective as surgery among patients who did not qualify for surgery. The primary objective of this study is to test the hypothesis that the 3-year overall survival in high risk operable patients with Stage I NSCLC is greater in patient who undergo SAbR as compared to standard sublobar resection (SR). The new study now offers the same treatment to patients who are eligible for surgery but are at high risk for complications. To learn more and see a list of participating institutions, visit the trial web site.
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Do you have questions about how a cancer diagnosis might affect you or someone you care about? Join the Cancer Legal Resource Center for a Summer 2016 Webinar Series to learn about important legal issues that stem from a cancer diagnosis in four different webinars. July 13, 2016: 5 Legal Tips for Recently Diagnosed Cancer Patients Join us for a webinar on Jul 13, 2016 at 12:00 PM PDT. Register now! Find out about the various legal issues that can stem from a cancer diagnosis, including employment law, insurance options, and disability insurance, and the laws that protect cancer patients. July 27, 2016: 5 Legal Tips for Young adult Cancer Patients Join us for a webinar on Jul 27, 2016 at 12:00 PM PDT. Register now! Learn about what types of protections are available to higher education students with cancer or students who are cancer survivors both during the application process and once the students have started college, graduate school, and beyond. Additionally, learn about ways for students or alumni with disabilities to manage or possibly discharge their student loans and applying for jobs with cancer history, etc. August 10, 2016: 5 Legal Tips for Advanced Stage Cancer Patients Join us for a webinar on Aug 10, 2016 at 12:00 PM PDT. Register now! Join us and learn about advance planning, SSI/SSDI/compassionate allowances, etc, in addition to estate planning topics such as wills and trusts. We will talk about advance healthcare directives and tools you can use to make sure that your wishes regarding medical treatment are upheld, even when you are no longer able to make decisions for yourself. August 24, 2016: 5 Tips for Caregivers of Cancer Patients Join us for a webinar on Aug 24, 2016 at 12:00 PM PDT. Register now! Find out what your rights are under the Family and Medical Leave Act (FMLA), the federal law that provides caregivers with options for taking time off work, and learn about additional protections available under state law, and about other issues involving caregivers, such as SS survivor benefits, probate, advanced healthcare directives, etc. After registering, you will receive a confirmation email containing information about joining the webinar. For questions about these webinars, please contact the CLRC at [email protected]<script data-cfhash='f9e31' type="text/javascript">/* */</script> or call (213) 736-1100. To Ensure this email does not end up in your junk mail, please add [email protected] to your address book or safe list.
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Let's talk about Long Distance Caregiving! Topic: Long Distance Lung Cancer Caregiving/Sharing Responsibilities More information: What is Long Distance Caregiving? Can you participate in your loved ones care when you don't live with them? We will discuss ways that families and friends can help from a distance and hear from others who have experience being long-distance caregivers. Date: Wednesday June 1, 2016 Time: 5pm Pacific/7pm Central/8pm Eastern This chat is open to ALL lung cancer caregivers, patients, survivors, and professionals. Are you a patient seeking help for your caregiver? This chat is for you too. Twitter Chat tips: A great online tool for Twitter chat participation is http://www.tchat.io/ Just log into your Twitter account from this site and then enter our chat hashtag #LCCaregiver. You'll be able to follow right along and read everyone's tweets, retweets, likes, and replies! -
Good morning Members, For some of you that have followed my last post or not, here is the background info. My mom was diagnosed Stage 3A NSCLC. Her tumor is 6cm, 4.1x 3.8 x 5.8, located in the central upper left lobe and beginning to invade left main pulmonary artery. I was told that resection is possible following neoadjuvant therapy. I was given a choice of standard chemotherapy for three months OR 2 infusions of nivolumab as a trial for 4 weeks. I contemplated which first line therapy choice I would use for the last five days. However, I received a call and now was told that upon further review of the case, the team wants to move forward straight to surgery and do adjuvant chemotherapy afterwards due to fear of disease progression leaving my mom unresectable. I was not informed of what kind of resection is planned just yet. I’d like to know the risks/recovery expected with a resection of this size and location. How quickly must chemotherapy be initiated after a surgery? Is there a strong chance of hidden disease spreading as a result of surgery without having systemic chemo first? If members can weigh in with their thoughts and experiences, that would be great!
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Hello All, I'm glad to be a part of this group. I heard about it on a FB post and thought it would be beneficial for me. I was diagnosed in September with non small cell and they removed my left lung on October 19th. I am now in treatment once a week for 4 months. The chemo has been very challenging and have been in bed most of the time. I live alone and grateful that I have friends that at times take care of me and feed me. After my chemo, I have a month of rest, then 6 weeks of radiation. That I my fear, because there is a possibility that I might be oxygen dependent. My faith is strong and I am looking for possible groups and persons who would want to connect and share stories and recoveries. Thank you.
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Hello Friends! Please see below a PDF of an article featuring me in Roy Castle Lung Cancer Foundation's Inspire Magazine where there is a wee mention of Lungevity! Hope you enjoy the read. To Read Click Here Eric -
They finally diagnosed my husband at the VA. It is stage IV Sarcomatoid carcinoma of both lungs with the entire chest wall involved and the lymph nodes. From what little I can find out about this on line it is very, very aggressive. In 14 days I've watched him go from normal to skinny, pale shaking and dying. They sent us home from the hospital last night with hospice. All these machines and all these medicines are terrifying. I feel so overwhelmed. They are giving him 6-8 weeks most likely. I am scared and want to talk to someone who has been through this. Last month we were on a cruise ship having a great time. How could something like this happen so fast? Thanks in advance for any help or support you can offer.
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Hi. My husband ( 66 and a smoker for over 50 yrs.) has been diagnosed by the VA as having lung cancer. They didn't yet know the stage or type. Today we are going to see a pulmonologist. I was wondering what role one of those plays in the health care. I can't say how scared and worried I am. My husband has withdrawn and is spending a lot of time sitting on the patio by himself. He doesn't want to talk about it and I won't force him. Which leaves me feeling pretty alone. My family are all gone or far away so I don't have a lot of local support. Sorry, I didn't mean to run on. Just please answer the original question if you can.
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Hi...My name is Sandra Mainero. I am a 48 year old mother of three grown boys and 5 grandchildren. In November of 2013 I became sick with what I thought was a cold. I went to the E R and the doctors told me that I had an Upper Respiratory Infection. They gave me a "Z pack" and sent me on my way. Every thing seemed to be fine. Then in May of 2014, I became sick again to the point where I could not even walk without help from my husband. Once again I went to the ER. The doctors took x-rays and told me that I had a spot on my left lung that didn't look good and that it had not grown since November of 2013, I told them that I had not been told of any spot being on my lung back in November. They told me I needed to make an appointment with my primary doctor to get it checked. At the time, I didn't have a primary doctor...had never even thought about having one because I was rarely sick. They gave me a prescription for an antibiotic. Two days went by and I seemed to be getting worse. So I decided to go to "Urgent Care". The P.A. that was on duty, quickly had an x-ray taken and saw the spot. She immediately sent me for a PET Scan. She said she didn't want to assume what it was so she wanted to do the test immediately. She called me in the next day...It was cancer . I could feel my whole world crumbling right at my feet. My mom had died at age 55 with cancer. She found out and immediately gave up. I told my kids I was going to fight with all I had. Here I was weighing 110 lbs soaking wet and fixing to have the battle of a life time. The doctor immediately sent me to the doctors I needed to see...her mother had also been battling with cancer so she knew what an urgency it was for me to get to the right doctors. Test after test, week after week, tear after tear, it seemed like it was all a bad dream. To make a long story short, I went through surgery on October 7th, 2014, The doctor used the Da' Vinci' robot to remove the cancer in my left lung. He had said there was a spot on my lower lobe that was positive for cancer and a spot on my mid lobe that they wanted to check. When the surgery was over, they told my husband that they had to remove three nodules. They told him that two of the spots were Stage I and the other spot was Stage IV. It has me totally confused. I stayed in the hospital 7 days. I went to the doctor on the 20th and the RN removed the staples...but when he removed the first bandage, he asked me twice if they had already removed the staples because there were no staples under the first bandage. He removed the other three bandages and removed the staples. He put what looks like butterfly stitches in one of the spots and the one that he had asked about first, he just put a bandage back over it. I go back to the surgeon on the 27th and I am compiling questions to ask. It just doesn't seem right that his RN had to ask me if they had already taken out the staples when I remember him being there when they removed the tubes on the day I came home. When I took a shower tonight I changed the bandage and noticed that the spot was about the size of my husbands thumbnail and it looked like it had puss on it...and the old bandage looked like it had a little green look on the leakage. I go to see the Radiation oncologist tomorrow because he put radiation mesh in the spots where the cancer was removed. He will be the first doctor I question about what is going on. Thank you for taking the time to read my Introduction. God Bless
