rose.vining

If you do not have a lung cancer oncologist I would suggest getting one. There are great resources on the LUNGevity website. It is really scary to get an lc dx. Many lc survivors are living longer now though due to the progress being made in research & treatments!
I would suggest attending the LUNGevity Hope Conference in April. There will be many LC survivors there who have amazing stories of survival!
It is a good place to hear what is happening in lung cancer treatment! As a Stage IV survivor, attending did much to alleviate my fear and increase hope. (I have been Stage IV for almost five years)


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If you do not have a lung cancer oncologist I would suggest getting one. There are great resources on the LUNGevity website. It is really scary to get an lc dx. Many lc survivors are living longer now though due to the progress being made in research & treatments!
I would suggest attending the LUNGevity Hope Conference in April. There will be many LC survivors there who have amazing stories of survival!
It is a good place to hear what is happening in lung cancer treatment! As a Stage IV survivor, attending did much to alleviate my fear and increase hope. (I have been Stage IV for almost five years)


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If you do not have a lung cancer oncologist I would suggest getting one. There are great resources on the LUNGevity website. It is really scary to get an lc dx. Many lc survivors are living longer now though due to the progress being made in research & treatments!
I would suggest attending the LUNGevity Hope Conference in April. There will be many LC survivors there who have amazing stories of survival!
It is a good place to hear what is happening in lung cancer treatment! As a Stage IV survivor, attending did much to alleviate my fear and increase hope. (I have been Stage IV for almost five years)


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If you do not have a lung cancer oncologist I would suggest getting one. There are great resources on the LUNGevity website. It is really scary to get an lc dx. Many lc survivors are living longer now though due to the progress being made in research & treatments!
I would suggest attending the LUNGevity Hope Conference in April. There will be many LC survivors there who have amazing stories of survival!
It is a good place to hear what is happening in lung cancer treatment! As a Stage IV survivor, attending did much to alleviate my fear and increase hope. (I have been Stage IV for almost five years)


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I completed chemo before having a scan. Also did the same a few laters with recurrence. (Carboplatin & Taxol)


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Isaut,
Traveled during active treatment, why yes, we've done that!  A Hawaii Island cruise, 3 transatlantic cruises with long jaunts in Europe after, an eastern and western Caribbean cruise.  Why cruising?  They have doctors, safe drinking water, safe food preparation and the ship is a destination with entertainment, activities, and other passengers to meet and interact with.  Here is what my oncologist did to insure we had a medically safe journey.
composed a letter to be used, if necessary, by shipboard doctors to explain my medical condition in detail. prescribed a "take along just in case" broad spectrum antibiotic (Levaquin - 500mg) to take at the first sign of a chest cold or congestion. In addition, my doctor gave me sound advice on purchasing broad coverage travel insurance.  Moreover, he strongly suggested I not purchase insurance issued by the cruise line because of the weak medical coverage limits and a lack of medical evacuation coverage.  We buy Travel Insured International policies.  Buying their Worldwide Trip Protector policy waives pre-existing condition coverage if the plan is purchased within 21 days of making your vacation deposit payment.  There are other companies who offer similar coverage but be careful of the fine print.  We've filed a claim for trip interruption and it was paid pronto.  But read every word of the policy language before you purchase any coverage from any company.
Others have offered excellent advice and Katie's suggestion for over-the-counter medication for headache, colds, sore throat, digestion and other minor illness makes a great deal of sense. They have these items on a cruise ship but since you are a captured customer, you'll pay a high price for them.  One more suggestion about cruising.  All ships today have a multitude of automated hand sanitizing stations.  We never fail to pass one without sanitizing.
Go have some fun in the sun!
Stay the course.
Tom

Wonderful news that it is not lung cancer, Chet !
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Hi
My name is Rose. I am a 31/2 year cancer survivor of Stage 4 non small cell adenocarcinoma. I had one lobe of my lung removed in 9/11. My cancer recurred and the rest of my lung was removed in 3/13. No cancer has shown up in scans since then.
I recently signed up to be added to the LUNGevity mentor list. I am trying to learn my way around in this Tapatalk app. Hopefully I will be a quick learner .
Six months after removal of my lung and two months following my last chemo treatment I walked a 5K, was not tired, and could have walked longer! I was 63 years old at the time and had been a couch potato most of my life.
I mention all that to say how very impressed I was with the results of the oncology rehab program I participated in. My physical and occupational therapists both walked the 5K with me. For me, regular exercise has helped me tremendously!
This cancer journey has sure been a roller coaster.
Connecting with others along the way has helped me so much. I looked forward to getting to know all of you!
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Thanks Cindy. I signed up to go to the Hope Summit last week and was approved for the grant. A wonderful blessing! I look forward to meeting all of you [emoji3]
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Hi Rose, 
I am so excited that you signed up as a mentor. You play a vital part in providing hope. That's very ADMIRABLE! Will you be attending the HOPE Summit? 
 I just wanted to personally invite you to LUNGevity's 5th Annual HOPE Summit. I was told we still have a few hotel rooms available. Once you register please let me know and I can contact my colleague and let her know that I personally invited you.  It's a great opportunity to learn about which treatments are available and connect with others who are going through this journey as well. I will post the link below.
 
www.LUNGevity.org/dchope
 
The $50 registration fee will cover materials, and meals for the weekend. Upon approval the travel grant would cover round trip airfare and 2 nights hotel stay.
 
After you register, then complete the travel grant application which is separate from the registration. http://lungevity.donordrive.com/assets/lungevity/files/$cms$/100/1140.pdf
 
I look forward to hearing back from you. -Best, Cindy

Hi Rose.  Wow you had two surgeries on the same side of your chest. 
Isn't it something how our bodies can adapt ?  I have a friend who also had lung cancer and had a lobe of lung removed,
then a few years later a tumor showed up on the other side.  So the took a lobe off that side also.  Bothe were different kinds of NSCLC !
She is doing well and goes to exercise everyday. Glad you are here to share your survival story and give support to those just starting.
 
Donna G

Hi Pixie
Very sorry to hear of this new cancer challenge you are facing. I agree, not knowing was one of the hardest parts for me as well.
You have come to a great place to learn more about lung cancer. Lungevity offers some good resources and links to other sites that are helpful.
I have been through two lung surgeries. The second one was much easier for me even though I thought it was not going to be!
One thing that helped me the last time that I did not do the first time was start home PT as soon as I was able...I recovered much faster the second time.
TX has some great hospitals! My husband and I lived there many years ago. I worked at Children's Medical Center and he worked next door at Parkland.
Do you have a date set for your surgery yet?
Glad to connect with you here,
Rose
Rose
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Hi
My name is Rose. I am a 31/2 year cancer survivor of Stage 4 non small cell adenocarcinoma. I had one lobe of my lung removed in 9/11. My cancer recurred and the rest of my lung was removed in 3/13. No cancer has shown up in scans since then.
I recently signed up to be added to the LUNGevity mentor list. I am trying to learn my way around in this Tapatalk app. Hopefully I will be a quick learner .
Six months after removal of my lung and two months following my last chemo treatment I walked a 5K, was not tired, and could have walked longer! I was 63 years old at the time and had been a couch potato most of my life.
I mention all that to say how very impressed I was with the results of the oncology rehab program I participated in. My physical and occupational therapists both walked the 5K with me. For me, regular exercise has helped me tremendously!
This cancer journey has sure been a roller coaster.
Connecting with others along the way has helped me so much. I looked forward to getting to know all of you!
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Hi Cindy
I have never been to MA but hope to visit there someday, especially in the Fall.
I can really relate to what you wrote about deciding how much to share with friends & family. I had a difficult time letting some of my friends see I was hurting at times. I was always known as 'the strong one' in my circle of friends. It was hard for me to let them see I had days that I was most definitely not feeling strong!
I have a couple of friends who are guidance counsellors. I am always amazed at their wisdom and the way they connect with their students.
Blessings,
Rose
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