Kleo

Haahaa I'm here Bridget! 
I just don't have anything interesting to report. 😝 I go in today for my 3rd infusion. Nothing as far as side effects yet really except I have gotten some nasty muscle spasms in my back. Might not even be related. Could just be a side effect of getting old! LOL 
I think Bob gets his scan results this week so maybe he'll check in after and let us know how it goes!

Haahaa I'm here Bridget! 
I just don't have anything interesting to report. 😝 I go in today for my 3rd infusion. Nothing as far as side effects yet really except I have gotten some nasty muscle spasms in my back. Might not even be related. Could just be a side effect of getting old! LOL 
I think Bob gets his scan results this week so maybe he'll check in after and let us know how it goes!

Kleo
My bet is this time next week you can stop looking but maybe still scratchin. If you can avoid the cough and mine is very slight not even a concern to the doctor and your still good to Go, Your are on your way  for the four infusion blue ribbon 😉
 

Ok now y'all got me scratchin and lookin for rashes. 🤨

I found that coffee was a problem for me until I started the Tagrisso.  It gave me dry mouth and irritated my throat.  I believe my issue was the radiation treatement that focused on my lymph nodes next to my trachea.  I was a major robust coffee drinker before the chemo and radiation.   It seems like I am finally healing from the radiation and can drink my favorite coffees again.
I had 7 treatments of Durvalumab(Imfinzy) before I had to stop.  It is no fun to have to do the infusion every two weeks and the blood work that goes with it.  For me, I noticed shortness of breath getting worse as the treatment progressed.  Stairs were particularly a problem.  It got so bad I had to start using the elevator to go up 1 floor.  Finally during my 7th treatment visit I asked what I could do for relief. Inhaler, oxygen concentrator etc....   that is when I was told the onc would have to defer to the pulmonologists if I wanted those things.  I went to the pulmonologist, he told me I had ~gallon of fluid and sent me to the ER for a Thoracentisis.  That started to road to Tagrisso.

I'm drinking water! Ok and coffee too but that is just flavored water in my book. LOL I've only had the one infusion so I guess there hasn't been time enough yet for side effects to show up. Hopefully none will! 🤞
 

....itspread to my lymphnode so isn't that still metatastic?
I am not a physician.  The definition of metastatic is when the cancer moves from the oringinal location to any other location in the body.   Don’t be afraid to get a second opinion from a specialist in lung cancer.   The treatment is was given was not working for me.  I asked my onc for a referral to a specialist.  That is when my onc ordered the biomarker testing on my drained fluid.  The test results and consultation with another totally separate cancer treatment facility is how my treatment changed.  I also had a totally separate 3rd consultation with a no kidding Lung Cancer Specialist at another cancer treatment facility to confirm that the Tagrisso was the right choice for my situation.  I was fortunate enough to find what appears to be the right treatment for me.  At least so far.  I am hopeful that it will be a long time before the Tagrisso stops working.  I am told that at some point the cancer will prevail and I will have to switch treatment.  The 3rd opinion specialist said he was hopefully it would be a few years or more.   That was very encouraging.

It is like any other drug works for some and not for others , Doctor ever asked if you were allergic to Penicillin .

Eagle...I'm glad they got you sorted out! 
I asked my onc if they did any genetic testing on my samples. She said no...that's only done if it's metatastic. wha? But....it spread to my lymphnode so isn't that still metatastic? Locally metatastic maybe? I dunno.
I think right now they give the durvamulab regardless of PDL1 levels. 
Anyway I'm happy to hear the tagrisso is working so well for you!
 

I didn't lose my hair- but I didn't get the taxol! I'll be glad when your hubby gets the chemo over and done with too and y'all can join the Pacman party!.😀 

I didn't lose my hair- but I didn't get the taxol! I'll be glad when your hubby gets the chemo over and done with too and y'all can join the Pacman party!.😀 

Got my start date finally! This Wed October 10. Eeep! Excited but nervous. LOL
 

I didn't lose my hair- but I didn't get the taxol! I'll be glad when your hubby gets the chemo over and done with too and y'all can join the Pacman party!.😀 

Oh well, it's only hair! Have you seen Susan C's photo with the t-shirt "My oncologist does my hair"?

This is very intresting recent article on this drug.
https://www.astrazeneca.com/media-centre/press-releases/2018/imfinzi-receives-positive-eu-chmp-opinion-for-locally-advanced-unresectable-non-small-cell-lung-cancer-27072018.html

Same routine but the doc thinks we should go monthly with the checkup but still bloodwork every two weeks.

No nothing much really yet. I was a bum yesterday. I just couch potatoed all day....but that's probably not the durva...that's more likely just me being lazy!😁   Today I've been out walking in the hood and went out for pizza with my son. Doing ok so far!  
Hoping it stays that way!
Doc has me coming back just for a checkup & bloodwork Wednesday.

You durvalumab twins are  a crack-up!

I have officially been infused. LOL I was pretty nervous. I ate a bag of cheesy poofs during the infusion....nervous snacking I guess. I got the orange cheesy powder all over everything. On the blanket and the chair....the nurse. It was even in my hair.🤣  Picture Pigpen from Charlie Brown..only orange. LOL
Infusion was an hour, prep was an hour...so not too bad. Kinda nice to only get ONE bag-o-drugs after all the bags of stuff they had to give with chemo before!
They didn't weigh me prior though. But I'd been weighed the week before. Recommended dosage of this stuff is 10 mg per kg.... I got 475 mg so that sounds about right I guess!
So far so good...🤞
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Soooo...Bob, not only are we on the same treatment schedule, we are actually getting our infusions on the same days now!?🤣
 

I have officially been infused. LOL I was pretty nervous. I ate a bag of cheesy poofs during the infusion....nervous snacking I guess. I got the orange cheesy powder all over everything. On the blanket and the chair....the nurse. It was even in my hair.🤣  Picture Pigpen from Charlie Brown..only orange. LOL
Infusion was an hour, prep was an hour...so not too bad. Kinda nice to only get ONE bag-o-drugs after all the bags of stuff they had to give with chemo before!
They didn't weigh me prior though. But I'd been weighed the week before. Recommended dosage of this stuff is 10 mg per kg.... I got 475 mg so that sounds about right I guess!
So far so good...🤞
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Kleo,
Sounds like all went well! Sending healing thoughts your way!
 
Ro

I have officially been infused. LOL I was pretty nervous. I ate a bag of cheesy poofs during the infusion....nervous snacking I guess. I got the orange cheesy powder all over everything. On the blanket and the chair....the nurse. It was even in my hair.🤣  Picture Pigpen from Charlie Brown..only orange. LOL
Infusion was an hour, prep was an hour...so not too bad. Kinda nice to only get ONE bag-o-drugs after all the bags of stuff they had to give with chemo before!
They didn't weigh me prior though. But I'd been weighed the week before. Recommended dosage of this stuff is 10 mg per kg.... I got 475 mg so that sounds about right I guess!
So far so good...🤞
-
 
 
 

I have officially been infused. LOL I was pretty nervous. I ate a bag of cheesy poofs during the infusion....nervous snacking I guess. I got the orange cheesy powder all over everything. On the blanket and the chair....the nurse. It was even in my hair.🤣  Picture Pigpen from Charlie Brown..only orange. LOL
Infusion was an hour, prep was an hour...so not too bad. Kinda nice to only get ONE bag-o-drugs after all the bags of stuff they had to give with chemo before!
They didn't weigh me prior though. But I'd been weighed the week before. Recommended dosage of this stuff is 10 mg per kg.... I got 475 mg so that sounds about right I guess!
So far so good...🤞
-
 
 
 

I have officially been infused. LOL I was pretty nervous. I ate a bag of cheesy poofs during the infusion....nervous snacking I guess. I got the orange cheesy powder all over everything. On the blanket and the chair....the nurse. It was even in my hair.🤣  Picture Pigpen from Charlie Brown..only orange. LOL
Infusion was an hour, prep was an hour...so not too bad. Kinda nice to only get ONE bag-o-drugs after all the bags of stuff they had to give with chemo before!
They didn't weigh me prior though. But I'd been weighed the week before. Recommended dosage of this stuff is 10 mg per kg.... I got 475 mg so that sounds about right I guess!
So far so good...🤞
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