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joanie55

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Posts posted by joanie55

    What's usually done here?

    in NSCLC GROUP

    Posted

    Thanks John. I actually did discuss clinical trials with my doc. He said they open and close so fast that we have to see what's open when I go in next week and I guess make a quick decision. Oh boy!!

    I will check out that site though. You never know whats available in other places.

    Pet/CT results

    in NSCLC GROUP

    Posted

    I'll be thinking of you all weekend and really hope Monday everything turns out NED.

    I totally agree with you about LCSC. When I started this journey, I knew absolutely nothing about LC. So much info from people that have "been there, done that" and so much compassion.

    Feel well.

    Joan

    What's usually done here?

    in NSCLC GROUP

    Posted

    My doctor had mentioned a few different chemo's, but I find it really interesting that sometimes they go back to the original and sometimes not, depending on I have no idea. I did do well on the first round, so I don't know why he wouldn't do that again. Well, I'll see what he suggests next Friday.

    Thanks so much for this valuable imput.

    Joan

    What's usually done here?

    in NSCLC GROUP

    Posted

    I've been through my first line chemo (Taxol & Carboplatin) and finished since November, 05. I've also been taking Avastin since the beginning.

    As of my last MRI they saw growth on a large met on my sacrum and slight growth on a met on my spine.

    I'm almost finished radiation to both spots.

    Is the usual protocol to be put on chemo again. That's what my docs suggesting and I do trust him, but I just want to have all my questions ready for him next Friday.

    They also have stopped the Avastin because of the new growths.

    Besides this and some "not having anything to do with cancer stuff" I've had a fabulous 14 months. Need to have a lot more than that though. What to do?

    Thanks much,

    Joan

    New one!

    in SCLC GROUP

    Posted

    Oh boy Darrell,

    I am so upset to hear about this bump. But, I know those Chicago guys must have something else to give to someone like you who is such a fighter.

    I would certainly check out cyberknife also.

    You have my prayers and wishes.

    Joan

    My mother has been diagnosed with stage IV lung cancer.

    in INTRODUCE YOURSELF!

    Posted

    Hi Jay,

    I'm really sorry to hear about your mom's diagnosis. There is plenty of hope though. I too was dx. with stage IV in May, 2005. I started with chemo treatment and am now first having radiation. Every doctor is different as is every patient.

    I would go for a second opinion just to put my mind at ease to make sure I'm doing everything I possibly could be doing. If you are not at a large LC facility like LC treatment centers of america, I think it is very important you do that, because they are usually on the cutting edge of what is available. I go to Sloan Kettering in NYC and was put on a drug called Avastin from day one, which was not approved for lung, but has become one of the main staples for lung cancer.

    Any, I wish you all the luck and we're all here for you with any and all questions.

    Joan

    Too much pain

    in GRIEF

    Posted

    Carleen,

    I just saw your recent post and am so upset. As others have said, you MUST, IMMEDIATELY, go stay with either a good friend or family member.

    You also need to speak with someone that deals in losses of this magnitude.

    I can only imagine how you're feeling, and unfortunately, any words I may have, I know are only words right now. You need to get through this terrible time with one-on-one help. There is probably medication that may help relieve some of the pain you are experiencing.

    You know we all love you here, but just for now, you need more.

    Please take care,

    Joan

    suki's update

    in MEMBER UPDATES

    Posted

    Oh Aimie,

    So much good news. I'm happy Dave is doing better and Suki, well, that's fabulous!!!! Let's finish up this week with your procedure going well and I'll be a happy camper.

    Take care,

    Joan

    What Happened????

    in MEMBER UPDATES

    Posted

    The puzzle continues. I spoke to my oncologist yesterday, as he was not in the hospital over the weekend when I was there. He seems to feel quite certain that it was not caused by the radiation, one reason because it was just too soon. He also tends to believe it is either from the seafood salad OR an intestinal bug that is actually going around (his secretary has been out for 2 days) that mimics food poisoning.

    I vote for the seafood salad and am going to call the store today just to See if anyone else did get sick.

    Anyway, feeling so much better. Thanks for caring.

    Joan

    What Happened????

    in MEMBER UPDATES

    Posted

    Thanks for the responses. I was leaning towards thinking it was the seafood, but after reading Holly's post, I do remember the radiologist saying they would go in from the side to lessen any irritation to my bladder. The bladder can't be too far from the stomach. Oh boy, just can't win.

    Good idea to take the anti nassau before hand. I'm going to ask about that today.

    Thanks again,

    Joan

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