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joanie55

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Posts posted by joanie55

  1. For me, each time was pretty much the same, except for my last treatment, when I was expecting the worst, it was actually my easiest treatment. Go figure??

    Please make sure she drinks plenty of water. Its very easy to get dehydrated, which I found out. Drink, drink, drink. Whatever liquids she can get down, including soups, ensure, etc.

    The antinausea meds should really help a lot. I took Emend which was a lifesaver.

    Joan

  2. HI Nina,

    I'm very sorry to hear about your mother. You did come to a good place though.

    I was on Avastin from the start of my treatments for 15 months. At that time I had slight progression, so they stopped my Avastin. I had relatively no side effects from this chemo. Hopefully your mom will do well on it.

    Joan

  3. I do remember her. When someone so young gets sick, it makes me even more angry that more isn't being done to fight this horrible disease.

    I'm so sorry to hear this news. It makes me so sad.

    Joan

  4. I'm kind of surprised that the nursing home doesn't at least provide short term disability. In New York it seems that most companies provide that with no cost to the employee. It would be long term d.i. that an employee would have had to pay for.

    Has she checked that out?

    Joan

  5. Bobby,

    Every day I'm here is worth it. I saw my first grandchild born 5 months ago and will attend my daughter's wedding in a few weeks. Even the regular non special days are worth it though. Just seeing the sun come up is special to me. Everyone should be able to appreciate life as much as you do when you're in danger of losing it.

    Wishing your sister the best.

    Joan

  6. Hi Jill,

    At the very beginning, my pain was helped tremendously by oxycontin, long acting. I still take it, once in the morning and once at night.

    I would also not listen to the stats. As you read more of our stories, you'll see that lots and lots of times we outlive the doctor's predictions.

    I also feel that chemo helped me very much. Not a piece of cake, but not anywhere as bad as i thought it would be. I personally feel that having gone through chemo has given me a better quality of life.

    Good luck. We're here to help.

    Joan

  7. Hi,

    Don't know too much about SCLC, as I have NSCLC, but I would like to welcome you. I can help once your sister has started chemo because symptoms are pretty similar and there are certain things we should all do. An example would be to make sure she drinks plenty of water.

    Anyway, just know we are certainly here for you whatever we can do or help you with.

    Joan

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