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ztweb

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  1. ztweb

    Still Clear!

    Greetings friends! Here we are, more than 5 years out and my dad is still clean, clean, clean! Just wanted to let you know.
  2. Hello LCSC friends. I just wanted to check in with you all and let you know my dad is doing great. In March of 2006 he was diagnosed with SCLC and you all helped me make it from one day to the next. Today, he continues to be cancer free, ornery as usual, and a message of hope for those of you facing this for the first time. I am forever grateful for the insights, prayers, and love from all of the people here at LCSC.
  3. I posted this in general as well, so thanks if you have already responded. OK...so how bizarre is this one.... Dad had a sectional surgery today where they were able to get everything from the "spot" they detected on the CT but that didn't light up on the PET. Once tested they found that it was actually a granuloma (an inflammation in cells that looks like a "spot" on an xray but really is more of a reaction to some kind of infection....that once further tested had a small, tiny, teensy, nodule of Small Cell Lung Cancer in it. Grrrr. It was so small that it probably wouldn't even show up on a PET anyway. So...now we have to wait to talk to Oncology again, as we have to decide what to do next...are there teensy, tiny little SCLC cells all over? That, of course, is the biggest concern, but they did say that when they took the lymph nodes in the sectional (the most common way that SCLC metasticizes) they tested totally clear...that is a good sign. When discussing whether this is considered "recurrent" the decision was made that it would probably be treated as a new cancer as there hadn't been anything in the last three years. So, while we are so very lucky to have results today and to have successful surgery, we are just very worried that SCLC might be back. Anyone have this before??? Or anything like it? Blessings to you all, Jen
  4. OK...so how bizarre is this one.... Dad had a sectional surgery today where they were able to get everything from the "spot" they detected on the CT but that didn't light up on the PET. Once tested they found that it was actually a granuloma (an inflammation in cells that looks like a "spot" on an xray but really is more of a reaction to some kind of infection....that once further tested had a small, tiny, teensy, nodule of Small Cell Lung Cancer in it. Grrrr. It was so small that it probably wouldn't even show up on a PET anyway. So...now we have to wait to talk to Oncology again, as we have to decide what to do next...are there teensy, tiny little SCLC cells all over? That, of course, is the biggest concern, but they did say that when they took the lymph nodes in the sectional (the most common way that SCLC metasticizes) they tested totally clear...that is a good sign. When discussing whether this is considered "recurrent" the decision was made that it would probably be treated as a new cancer as there hadn't been anything in the last three years. So, while we are so very lucky to have results today and to have successful surgery, we are just very worried that SCLC might be back. Anyone have this before??? Or anything like it? Blessings to you all, Jen
  5. ztweb

    Surgery Today

    It is 5:06 right now and we are headed out to the hospital for a bronch and "poke hole" procedure. Please keep those prayers coming! Blessings to you all! Jen
  6. Hey...we are still out here fighting! We have a new blip but looks not to be small cell. Dad actually has great lungs they told him...even after all the treatments he had 3 years ago for small cell. Cancer sucks...there really is no way about it, but I am glad you posted this so we can all get on here and say, "Yes, Yeah! Keep fighting!" Jen
  7. Grrrrrr! My prayers that this works. So sorry...cancer stinks! Jen
  8. Sandra, I am so sorry that the chemo didn't go well. We were so lucky with the chemo as dad responded well and we have been in remission for three years. He did find that keeping something in his stomach at all times was a huge help and drinking lots and lots of water (sometimes in the form of eating a full watermelon) would help. Blessings to you and may you find something that will help. Jen
  9. ztweb

    Holy Cow!

    You know...there is something about going in and expecting bad news, that ends up turning into some good news, that has to be one of the best feelings ever! That happened today. The PET my dad had this morning does not show a malignancy...I'll be dogg! Of course, we all know that PETs have their downsides, so Mayo plans to take out the "spot" anyway to be on the safe side...while in there they are going to test the "spot" and if it is odd in any way they are going to remove the upper lobe of the lung to be safe. We considered this great news today and are thrilled. At least we know that cancer isn't running rampant in his body. The docs did a number of tests on lung functions and heart workings..."You are a very healthy man, except for this really odd spot you have." What great news to hear! So...we are again in wait mode as the bronch will be on Thursday...with surgery to follow immediately if needed. Thank you all for your prayers and may you keep them coming. They have helped us so much along this road...you are all such a blessing to me...my lung cancer family. Blessings, Jen
  10. ztweb

    Surgery This Week

    YOu know...I can't help but post here that you all are the most amazing people! Thanks for everything. I will post an update in General.
  11. Dad has his PET tomorrow at Mayo, followed by a battery of other tests and a surgical consult in the afternoon...we are looking at possible surgery on Tuesday or early this week. Please keep those prayers coming...this just sucks. Jen
  12. Just wondering if there is anyone out there who has had this....I am baffled by the fact that his body is letting him get this again....grrrrr. Blessings to you, Jen
  13. Greetings all...the results (kinda) are in. Dad had that spot that had grown over the course of the last year, and they want to get it out of there. They are first going to do a PET (through all of this, we have never had one) and then if it is nowhere else, they want to go in surgically and remove it. Mayo is typically so good about getting things done quickly...next week will be the PET and if all is a go surgery will be the next day with five days in the hospital afterwards...why five days??? Help me out here? She believes this new spot is unrelated to the SCLC that he had before...probably NSCLC....so all of you out there, please help me...give me hope. Cancer stinks...it robs us of so much. Please say prayers for my family. With dad's first SCLC diagnosis three and 1/2 years ago, to losing my sister suddenly this year, I don't know how much more my family can take. I would love to hear your stories of hope... Blessings to you, Jen
  14. Just an update here... A regular x-ray shows nothing wrong with the throat...where he thought it seemed to be coming from. They took a CT, but the readers aren't here until this morning. They have a 1:30 central time appointment with the doc. The ER people said they did believe it looked like that pinpoint size had grown...thought maybe he had a lung infection. They told him that if they put him on antibiotics and the blood goes away that is a good sign...as of 9:00 p.m. last night it had gone away...so lets keep praying.... Thanks all! and Blessings, Jen
  15. Hello all...I have been living in cancer denial now for 3 years with dad...he has been great. Last night he started coughing up blood...I am freaking out. They are on their way to Mayo this morning...his appointment check up was already scheduled for Monday morning.... Prayers please.... Jen
  16. My prayers...of course. Jen
  17. Carleen, It is so very good to hear from you. Long, long ago, I put your phone number into my cell phone and every time I am browsing through the "K" section I think of you. You do have a very full life and for that I am so pleased! Keith, your guardian angel, has taken very good care of you. May you continue to know the blessings of love, laughter, and peace! Jen
  18. Dawn, Bless your heart! I am so sorry...My dad had the PCI and for the longest time he kept the face mask in the bedroom as a reminder...not sure why...I guess he was just proud of finishing. You know what I think...why you? Sure, why not you, but seriously, why you? Cancer sucks...there is no way around it. On a good note, when Dad lost all the new growth with the PCI, we were all marveling at how the PCI made his head tan...so atleast it isn't the white look!! (silver lining???) Blessings to you Dawn...you have been through alot. Jen
  19. I am so sorry to read your post. I had checked in with you earlier and thought things were on the up. May you know God's peace. Eternal rest be granted unto her oh Lord, and may your perpetual light shine upon her always... Jen
  20. Boy, I don't know what to say. I honestly don't know. I will say that it doesn't sound like Small Cell, as it grows much to quickly and the side affects are obvious...generally... Maybe your dad will lighten up on the "no biopsy" rule he's made, as that would allow you to know so much more. Stay strong... Jen
  21. Wow...what an interesting post. I think it is awesome that you have a doc who is so intuned! I hope you continue to get some good news and the Taxol is a winner!
  22. I haven't been on in a while, but my dad is over three years into remission from small cell. My dad lost MUCH of his ambition, and quite honestly it never came back full strength. I still think there is a bit of a deal with depression, which he refuses to admit, but in general he just is wiped out. Don't be discouraged, but do be on the look-out. I, personally, hated when they moved to 4 months, instead of 3. I liked the consistent "good report!" We are not into 6-7 months appointments, and I just feel like I always have to be on the lookout. Stay strong and know this can be beat...yes, cancer sucks! Jen
  23. I am so sorry to hear of your loss. Please know you have my prayers. Jen
  24. I haven't been here in a while, and for that I am both grateful and sorry...grateful because I have been stronger and my dad has been healthy...sorry because it isn't all about me, and I could have been a help to others. I am posting today, because my sister, 47, died this weekend. It wasn't lung cancer, or anything lung...but my lung-cancer-survivor-dad is really having a hard time. "We are supposed to go first. This just isn't right," he keeps saying. Please...I am just asking for prayers. We need them and it give us such solace to know we have them from others. Jen
  25. Dad goes in for his next check-up in one month...of course the jitters have already started. I want him to approach the doc about the fact that his nerves are about fried...he seems so on edge. He quit taking the anti-depressants about a year ago, and I really wish he would get on them again. His statement is, "I should be able to handle this myself," to which I respond, "Seriously dad, look what chemo and treatment did to your body. I think it fried your hormones." Haha! We are praying for continued remission. Please add us to your prayers... BTW, mom and dad will celebrate 50 years in December. I think there couldn't be a better gift than ANOTHER great report. Blessings...
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