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LindaMRG

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Posts posted by LindaMRG

    Saturday June 21st

    in GENERAL

    Posted

    Shannon, your faith increases mine. Im bringing your intention to church with me in about a half an hour.

    I remember my father being in the morphine fog and saying things we still kid him about!!!

    Taking a break from chemo

    in HOPE

    Posted

    Oh Candy, you did receive good news!!!!! Dont let anyone spoil it!!! I wrote in a post yesterday how I "overexplain to everyone" so no one will have that pity look when talking about my father. People just dont understand, dont let it take away your joy.

    ....More on What not to say

    in GENERAL

    Posted

    I cant remember if I mentioned this in a previous post when we discussed this before but when my father had lymphoma, the response would either be:"oh Ive heard thats very curable" or "what is lymphoma anyway". But now when I say he has lung cancer its "Oh Im so sorry". It makes me feel the need to go into the whole explanation of all the success there is with lung cancer lately. I go on to explain he will have 8 rounds of chemo and then surgery and how Ive read about all these survivors. In other words I feel like I have to explain that he has a wonderful chance of surviving this as he survived lymphoma. Im sure half the people are not interested but I dont want people thinking my father is going to die, because HE IS NOT!! I also tell them how much prayer is going up for him.

    Sometimes I feel like they think Im in denial,but I know from being part of this community that I am not in denial.

    A woman at my school handled it best, she just came up to me and said "I heard about your dad, Im praying and let me know if I can help you in any way" and she walked away. Aside from your best friends and family that you can really lean on, I felt this woman handled it best.

    Sister still in the hospital

    in NSCLC GROUP

    Posted

    Like Ada, I have only heard wonderful things about hospice. I know what you mean about hospital care. There is one hospital here where my father received excellent care, but before that we had the same type of experiences you described. We had to make sure one of us was at the hospital at all times to make sure my father was okay.

    Praying for you every night.

    First Time

    in GENERAL

    Posted

    Welcome!!! What you wrote was beautiful and I second it. I am the daughter of a lung cancer patient and this board is my lifeline along with prayer. Hope to see you more often!!

    general question pertaining to lung cancer cells

    in GENERAL

    Posted

    I am relatively new at this, but I think I can answer some of your questions, which by the way, none are ignorant. If doc told you he has mets to bones and liver that means its the lung cancer cells that are there not separate bone and liver cancers. My father has adenosquamous but I havent heard that its any harder to treat than any other nsclc. Its just a combination of adenocarcinoma and squamous.

    platelet question

    in GENERAL

    Posted

    Hello Friends,

    I had taken my father for chemo today but he couldnt get treated for the second time in a row due to his platelets. They even dropped from last week when he was refused treatment. Nurse said it is the carboplatin doing this. He has to go on Monday for a blood count and if it drops any further he will have a transfusion. She said it was 27,000 and they dont transfuse till 20,000; this was down from last weeks 57,000.

    Has this happened to anyone before and everything still turned out okay?

    Onc said last week he wasnt concerned as he felt it meant chemo was in there doing what it was supposed to do. But now this is another missed week. His treatment was to be 8 Fridays in a row. He's only had 2.

    Im just a little worried today, any thoughts?

    Stage IV adenocarcinoma NSCLC

    in HOPE

    Posted

    Hi Marsha,

    Dont think we've met but I was sure happy to read your post and what your history is. Its these kind of stories that we look for. You must be so happy tonight and I wanted you to know Im so happy for you too!!!!!

    Mom wants to quit treatment

    in GENERAL

    Posted

    Oh Shelly, Im hurting for you right now. I know how I would feel to hear my father say something like that. Id be praying out loud too. It seems her results have been good so far and hopefully those test in July will be positive too and it will give her the will to keep fighting. When my father gets down I pull out a story from here and remind him of all that other people go through and survive. I told him once, "you may have only known a small handful of people that had lung cancer, but there is a whole world of people out there that have had it worse than you and survived." Ive backed it up with the survivor stories especially simliar to him.

    I will pray out loud for you tonight.

    Treatment Delayed

    in HOPE

    Posted

    I was on everyones back after my father's diagnosis as to when he would start treatment. Its good hubby did that for you. I know the anger he must feel, I feel it too. I have my sisters and friends to vent to. Tell him to come here more often and vent.

    Quick note....

    in GENERAL

    Posted

    Shannon,

    I am angry for you but not completely surprised. With all my father's hospital stays for lymphoma we have stories to share as well. My mother wrote a letter to the board of one particular hospital. Our onc said he never sends anyone there anymore either, after the way my father was treated.

    Its terrible, just terrible. Know that prayers are going up tonight.

    Hi everyone

    in GENERAL

    Posted

    Hi Jay,

    I joined here in May due to my father's diagnosis, so we've not met before. I just wanted to express my sympathy at your overwhelming loss. I hope you continue to heal both physically and emotionally.

    Scans

    in GENERAL

    Posted

    Isnt it true what Sophia says, "Our lives are changed in one heartbeat". I get nervous when I just see my father's oncologist. There is no way to stop the worry, even though we know it doesnt change anything.

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