Connie B
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Posts posted by Connie B
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Hi Tami,
Sorry to hear your having all these problems. Are you SURE it's not your heart? Have you had a CT scan at all for rule out cancer? How is your blood pressure? Are you taking any meds and if so, what? God girl, this could be so many things. Okay, sorry to have to ask questions but I don't remember did you have any chemo and/or radiation done?
The numbness and lung pain is a mystery to me. It almost sounds like fluid in the lung. It's nothing I would take lightly, as I'm sure your not, but someone needs to check you over girl.
I have been a 14 year pnuemonectomy survivor if you remember and the problems I had were all heart problems over the last 6 years. I had severe SOB and I too could not walk across the room without damn near passing out. This was my heart problems that caused that. I also had problems from some of my heart meds I was on, and it caused me to be very weak and tired and just felt like crap all the time. It was my heart medication that caused all that, but I thought I was dying, it was horrible.
You do know this could be cancer related? I don't think I have to tell you that. Your PCP doesn't sound like he/she is pushing very hard to find an answer for you. You might want to try going to the ER? I don't know what to tell you with all these problems. None of them sound fun or good to have. I remember how horrible I felt with all my heart problems.
Another things that comes to mind is MOLD, you mention you work in a basement. Could this be something MOLD related. I'm just grasping as straws for you here. If I were you, I really would get pushy and start doing some serious screaming at your doctor.
My organs have shifts some too, and being a one lunger, but I have never had any problems like you have, and I can say that some of my In Person LC Support Group members (long term survivors) who are also one lungers have never shared these kinds of pains years after there pneumonectomy either. Most of us have had aches and pains of sort, but nothing as serious as you are having. Please get checked out and maybe go to the ER. Keep us posted.
Best wishes to you.
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Hey Dana,
Oh Kiddo, it's hard to be opened minded when you don't have a clue on what the heck to expect.
I just want to share with you that many people in my In Person Lung Cancer Support Group have done PCI and are very happy they did and to top it all off, they are doing just fine today and this would be 5+ years after having it. One of my dear friends who had PCI works for the school district as an Assnt Teacher.
I try to always remember the early days of this journey. To often we (long term survivors) sound like things are NO BIG DEAL, but when we go through them, they are HUGE and should be treated as such.
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I just wanted to chime in here Barb and offer my condolences on the loss of your dear Sammie cat. These darling animals love us unconditionally. I'm glad so many of us give them a good home. Your in my thoughts during this difficult time. I have lost many wonderful little critters over the years.
They give us such great comfort. ((((Barb))))
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Aw shucks Ned, what's another 25 years amoung friends? I'll stick around for 25 more years if you do!!!
My husband always says "Not to ask for more then we can handle, because it's for the needy not the greedy. So, I'll say 20 years instead of 25. 
DEAL? It's funny how we don't always get the best of the best health news, but when it all comes together and the dots start to connect, even alittle, we seem to find comfort in knowing that.
Must me a cancer thing. Hope your PFT goes well next week.
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Alexander, Bucky View/Sign Guest Book
GREENSBORO — Bucky Alexander, our darling mother and wife, of Greensboro, N.C., passed away peacefully early Monday morning, August 3, 2009, at Wesley Long Hospital, surrounded by the family.
Bucky was born on August 6, 1954, in Buenos Aires, Argentina. She fell in love with a young man from Greensboro and had four wonderful children, all now living in Greensboro.
She and her example will be missed like crazy by her children and husband, and by hundreds of others whose lives she touched throughout her life. She was very actively involved as a volunteer and on the staff at Our Lady of Grace church for some 20 years. But Bucky's job was not to organize, build, analyze or even to clean and cook; she nurtured her family and her friends and brought extraordinary happiness everywhere she went, and this quality and her enormous zest for life was unique, and was enough; in fact it was everything to us. It is her legacy to her children and all who had the privilege to know her.
Bucky is survived by her children, Paz, Alanna, Carolina and Will, who always came first; by her grandchildren, Cristian and Isabella; her brother, Juan and her husband Bob, who all desperately miss her.
A memorial service will be held at 11 a.m. on Saturday, August 8, at Our Lady of Grace church, followed by a reception at the Proximity Hotel.
The family asks that memorials for Bucky should be made to the North Carolina Cancer Partnership, P.O. Box 14305, Research Triangle Park, NC 27709.
Offer condolences at www. news-record.com/obituaries
Published in the News Record from 8/6/2009 - 8/7/2009
Notice • Guest Book • Send sympathy flowers • Visit the gift shop • Make a memorial contribution
Share photos, videos and more with Legacy Memorial Websites. Find out more.
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Hello Friends,
I recieved a PM today from our friend MaryAnn (mhutch1366).
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Here it is:
From: mhutch1366
To: Connie B
Posted: Wed Aug 12, 2009 9:00 am
Subject: MaryAnn
Hi Connie,
Could you please let Kasey andd ginnyde andd Rochelle and all that I have been medically retired as of May, and without computer access.
Other than the loss of the use of my left hand for typing etc and the inevitable march of time and fibrosis, I am ok.
I haven't disappeared, but I won't be able to participate or otherwise stay informed.
Miss you and love you all,
MaryAnn
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If you wish to reach her by phone or mailing address, please feel free to contact me by PM. I just didn't want to post that information on the board here.
Hugs to All,
Connie
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My Dear Friends,
With a heavy heart I pass along that our dear and wonderful friend Bucky
(Brunilda Alexander) has left this world and has entered Heaven.
I spoke with her wonderful husband Bob who said she pass Aug 3, 2009. They were on vacation in Flordia when she started to have serious pain in her back. She suffered in serious pain her last days here on earth. Her poor husband is so heartbroken.
Please keep her husband, children and grandchildren in your prayers as they mourn her loss.
My heart breaks over the loss of our friend Bucky. Bucky and I had become friends over the last few years and I will miss her dearly as I know many of you will as well.
That was a very hard phone call to make.
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So sorry to hear you were in the Hospital Renate, I'm glad your donig better. This lung cancer ride holds all sorts of surprises and some days the road gets a little bumpy. Stay strong and keep in mind, this to shall pass and you can do this and you can beat this.
When I did my radiation I too had some radiation burn in my throat area after about the 4th session it started to bother me. A little tough to swallow. My suggestion to you is KEEP YOUR DOCTOR in TUNE of how your feeling throughout your treatments. Don't hold anything back. If your throat burns BAD then tell them. But there are things they give us to help with that discomfort. Mine wasn't all that bad, and only lasted about a week. But I also know others that have said the same things. Yes there are the horror stories of radiation, but there are also the stories that aren't of horror. I'll just send up a prayer for you that our on the good side.
If you get SOB (short of breath) Let your doctor know right away.
I just have a feeling your going to be very tired from this, and if your body is tired, then listen to it and rest, rest, rest. When this is all over the hopes are you will be cancer free and on your way to becoming cancer free and/or in remsission. Find the Silver lining in all this, your going to make it and your going to be a long term Lung Cancer Survivor.
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Oh Happy Days!!!!!!!!!!!!
This really is great news! It was worth the wait!
It's a HAPPY ONE YEAR ANNIVERSARY!!!!!!!!!
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This is AWESOME NEWS! Congratulations!
Keep on doing what your doing, it's working!
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Hi Joy,
So sorry you had to find us, but I am glad you did.
Everytime I hear a new member come here and talk of being scared, or worried or overwehelmed, I go back to day one (14 Years ago) when I was dx.d with adenocarcinoma stage IIIB. You can click on below my signature and read my story.
Your not alone in this journey. At least not anymore.
(((Joy)))We'll do our best to get you through this step by step. Take a deep breath in and blow it out, this is a bumpy ride, but it's very doable, treatable and beatable. Your in good hands here. I look forward to getting to know you.
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Hi Richard,
Sorry you had the need to find us, but I'm sure you'll find a lot of information and support here.
I have a friend (from my In Person Lung Cancer Support Group) who also was diagnosed with Non Small Cell Large Cell Cancer. She did radiation and VP-16 & Cisplatin as her chemo. This was 9-1/2 years ago and she is still going strong today and is over 70 years young. She hasn't had chemo or radiation for over 8 years now and the tumors have all shurnk and are not active. She gets checkups every 6 months, but so far she's still Stable.
The kind of cancer you have is treated like most of the non-small cell types of cancer. It's just what the doctor may feel you can handle or what you can't. It's kind of a crap shoot for all of us as to what will work and what may not. Some chemo's are more toxic then others and with you having had a stroke, I am sure they are very careful as to how they will treat you.
Just remember this can be treated, but as for a cure.....well, those of us living with lung cancer, never say never but we know stable and NED (no evidence of disease) is a good thing in the world of lung cancer.
Stay positive, and I hope you'll beable to golf again one day soon. Just never give up hope and never say never. Lung cancer is not an easy fight, but it's doable.
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Hey Patti and Chris,
You girls have a GREAT TIME! I'm sure you will.
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Hey Sue,
I just wanted to chime in and offer my prayers for your wonderful mom and for you to dear Friend. ((((((SUE & MOM)))))
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Dear Renate,
Well aren't you just a BRIGHT FLOWER in the garden of lung cancer to see.
Wow, so the Fentanyl was doing all that too you??? WOW, I believe it! These meds can play havoc on our bodies and sometimes we figure it out and sometimes we don't. I am SOOO HAPPY to see your up and about and doing so better!
It's been a long time that I did my radiation but, fatigue is one of the common side effects of it. It also depends where they are radiating you on your chest area.
I am just so happy to see you back. You go Girl!
(((((((((((((((Renate))))))))))))))))))))
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I'm not shocked. This is gotten so OUT OF HAND and all of us are paying a huge price and our care in the mean time is going down the tubes. It's all about greed. Tests, Tests, Tests, Money, Money, Money.......
I did a urine test, (peed in a bottle) and they charged me $180.00 just to do that. They also told me they would do what they called the short version check on my sample, and it costs $180.00 for a short version? What in God's name would it cost otherwise?
Wow, I have to say I am in shock with you over your $11,000.00+ bill. Holy Cows!
Oh, I have to say, I have had a lot of blood work done for my heart issues and now for cancer issues again, and I haven't had a bill near that large. My heart stuff has been costing me around $1,100.00. Haven't got the bill yet for the cancer blood work.
I'll let you know. We ALL have to start checking this stuff when we get it. Or ask up front what these things will cost. Oh boy, what a mess this has all become.
Good luck Barb.
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Randy, I will give a call to her today. I have sent her a couple of cards, and have heard nothing after sending the cards, and that's not like her.
I too am worried and concerned. Keep your fingers crossed we hear from her soon.
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Happy Day!
in HOPE
HAPPY BIRTHDAY DONNA! Happy birthday to Jay too. For those that don't know, it's her hubbies birthday today too.
You have a wonderful 62nd Birthday Girlfriend!
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Wonderful news on you Bud! Congratulations on having a clear scan again. Keep on Keepin on! HOORAY!!!!!!!!!!!!!!!!!!
Keeping Rose in my thoughts and prayers that all will be well for her soon too. She's s tough cookie and I have a feeling she'll be up and running around in no time. It's just not fun to have those puny days. Thank God they are short lived.
Have a wonderful day to you both!
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Vicks on the bottom of your feet. One of my dear friends who had a horrible cough during her journey with lung cancer had coughing fits. She tried just about everything and anything and one of the things she tried and was shocked it worked was Vicks on the bottom of her feet.
One of her tumors were growing in her lung causing her to cough unstopped. She really did try just about everything even for short term comfort.
I have another friend who has radiation damage in her right lung causing her to cough all the time too. She's had this cough ever since she completed radiation treatments 8+ years ago. She's still here and still cancer free but still has her cough. Some days are worse then others, and some days are pretty darn good too. She too takes whatever will give her comfort.
The hard thing with all this is, it could be sinus related or it could be a tumor in the wrong spot related, or it could be medication or treatment related. Hard to say what it is, but use whatever makes you comfy. Drinking warm water helps sometimes for me.
I can't remember if you had radiation or not, but it could be caused from radiation too. Hound your doctor's.
Good luck to you.
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Giants Owner Sue Burns age 58 died from complications from lung cancer.
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SOB can also be heart related. Chemos can be hard on the heart too.
I think it's worth getting it checked out or at least call your doctor and them him or her your sob is getting worse. This is nothing to second guess.
Best wishes.
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Well that's just CRAP NEWS! Not what YOU wanted to hear, nor the rest of us. Crap Crap Crap!
Having said that, my sister did WBR many many moons ago, and she did lose her hair back then too. Honey, as long as you CAN look in the Mirror then that's the PLUS OF ALL THIS! Who cares if your with hair or without hair. The fact that your HERE is what really matters. And you don't have no muss or fuss with doing your hair.
Losing my hair wasn't that big of an issue to me once it was gone. I was upright and that was the good news for me. My sister had some memory issues but nothing we couldn't deal with. She also had seizures. She one before WBR and she had 2 after. I'm not trying to scare you, but I know you want the whole picture of what can or might happen.
I've also had some of my In Person LC Survivors that had WBR and they had minor problems with it when they did theres, the memory issues were the main complaint with the.
Your Nick will work through all this because you have taught him well. He's a smart kid and will get through all of this. Your a very good mom and he's a great kids.
You ARE in my thoughts and prayers. (((((((((PATTI))))))))))))))
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Dana, You need to try and learn how to put the cancer issues to rest for about one hour a day, and then 2 hours a day, and then 3 hours a day, and so on and so on and so on. And yes it honestly can be done. HOWEVER, I understand your fears and how this monster takes control of our lives. It's sucks!
I do wish to share with you that I have a few friends also who are long term SCLC Survivors. They aren't on this board, but they are alive and doing just fine today and I might add are completly NED from head to toe. Wendy and Donna G on this board know who I am talking about, because they know them too.
One is a 10 year SCLC Survivor, another is a 9 year SCLC Survivor, and I know another who is a 5 year SCLC Survivor, and I know there are many more in this world just like them. They just don't post to this board is all, but they DO LIVE and they DO EXIST! You HAVE to know you can be a long term survivor too. None of us knows what lies ahead, but today is what counts.
Go and enjoy life. Todays a Gift! Go live it.
No More Scans
in MEMBER UPDATES
Posted
Hey Dana,
Well then, I guess we here at LCSC aren't doing our job as to giving you the support you need!
Maybe you could help us to help you by sharing with us what we could do to get you through this journey. The same journey none of us want's to be on. 
Maybe the Lung Cancer Board is what's pulling you down. I know I have had times as have many members here, had to take a break away for the lung cancer boards just to regroup. Sometimes these boards can pull us down and we don't even know it. Maybe your really not ready for a lung cancer board. I know many people who feel that way, and they feel that way about In Person LC Support Groups. I get that. Maybe it's as simple as taking a break away from the Boards. It isn't just the scans that remind you of your lung cancer. Maybe it's food for thought.
Why would you be so quick to give up the fight when your ahead of the fight and the game? Which I think is so great that you are, because so many others aren't. You still have a lot of living to do!!
I wouldn't want anyone to follow in my footsteps when it comes to lung cancer, heart problems, etc., but I never thought of giving up and throwing in the towel because of a scan. Or, are you just having a crappy day?
You need some positive going on here and you need to TRY and stop the negative and doom and gloom. I know it pops up now and then.
I know how that destorys us. I know because I did it the first 2 years of my journey and holy cow what a waste of life and time that was. And I hate to see others go down that path. It's such a waste and I want to save the world when I see a person doing that.
If, and I mean "IF" your cancer should come back, 25 years from now, who knows what they will have to offer for treatments. We have to learn to live ONE DAY AT A TIME! And when doing that, we also have to learn how to ENJOY LIFE AGAIN! And I'm here to tell you, we CAN ENJOY LIFE AGAIN! And so can YOU!
What do you do for excitment? What makes you feel good? Have you done anything lately that mades you feel warm & fuzzy inside? Have you ever heard of Look Good Feel Good through ACS. Do you spend time with family or friends? If so, what do you do for fun? TRY and make each day a joyful one. Do things that put a smile on your face. Get away from Lung Cancer Boards if that's what helps. You can always come back when you feel ready.
As for the scans, put a smile on your face when you go in and when they say "take a deep breath in".... Right at that time, SMILE! But hold your breath until they say BREATHE!!!
It's always nice to smile for pictures. 
Make it a fun moment, kid with the techs. When worried about scan time, then be worried, but don't think about stopping your scans. 
You don't really want to do that do you? I hope not, your life is important and you need to know that. 
You give so much to others and your so upbeat for everyone, make sure you treat yourself the same way.
Your "NED" today and that's a GOOD THING!
Life is GOOD and today so are YOU!