Elaine
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Posts posted by Elaine
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There is a new test called a pet/CT fusion scan. It looks like the script was written correctly. The fusion is an assumed part of the name--ie the scans are "fused". It's basically a full body scan that combines the features of both.
elaine
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Did you have big babies??? LOL. Just kidding.
Don't know what to say except it does seem strange that it would met to BOTH ovaries at the same time and that they would be pretty much the same size, sooooo.....
Enjoy the relief from no tests for awhile! Hope you hubby is doing fine, too.
love and fortitude
elaine
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LOl, Beth!!
Well, before reading Beth's post, I was about to say this:
She is a beautiful child and looks so much like both of you! I just love it when kids look like both parents!! (I truly think she does!).
I think that means that when Ry and John grow old they will look like each other, the way some couples do!
However, upon closer look, the dog DOES look a bit like John!
elaine
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Lazy kitties make better lovers, lol!
I think she may be the cutest kitty I ever saw, but don't tell my ugly guys!!!
elaine
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Great news! It sounds nice and warm!
love and fortitude
elaine
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Beth,
Glad to hear of your plans. I have an idea for you!
Why don't we call your stage, Stage IIIb and a half--I mean, look at it this way, it's not out of your lungs, soooooooo-- think of it as not quite stage IV and then it sounds much more beatable as I am certain you can do!
I think of you often. Especially in the middle of the night when I am fighting my demons. If you want, you can send some of your demons my way, and i will fight them too. Might as well fight more than just mine, while I am at at it!
love and fortitude
elaine
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Frank
I had no idea you even applied for a hall pass and here you are back!
Seriously, I am sooooooo happy to hear you have a plan and that you are home safe!
You are a hero!
love and fortitude
elaine
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I am so sorry. The loss of a mother is one of the hardest. May you fnd peace in the coming days.
love and fortutde
elaine
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Laurie
Give your mom a few hundred hugs from all of us! Enjoy!
elaine
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Betty
I hope you don't get too many blisters from all that dancing! I am so happy for you. Keep up the good fight.
love and fortitude
elaine
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Diane,
That sounds just ducky! Been missing your intellegent posts, so get back here soon!
I truly hope it's something uncomplicated and easily fixed.
love and fortitude
elaine
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Oat cell is the same thing as what is now called small cell lung cancer. It used to be referred to as oat cell--don't know why and I don't know why "they" stopped calling it that.
elaine
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Oh Angie, I am so sorry. May you and your family find peace in the days ahead.
love and fortitude
elaine
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First, I am sorry you have had to go through all of this. It's mind boggling and I am sure that it is hard on you both,
I dont really understand though how they can be sure it's not TB or fungus if they haven't done a tissue biopsy. What are they basing that on?
I hope you get some answers sooner rather than later.
love and fortitude
elaine
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Bill.
I am glad your wife is feeling better, and it sounds like a lot better!
I thought you posted a month or so ago that your wife had more than 200 lung nodules! I am wrong? Or was it a typo? 20? Well whatever the number, it sure sounds like she has many less now!
Doctors do not want to be wrong. I don't even think that many of them even consider that they MAY be wrong. The ironic thing is that of all professions, they are the most likely to BE wrong--many, many more times than any other. Think about it. And because medicine isn't all science, Drs are bound to be wrong, I realize that.
But the part that gets me is that too many of them act as if they couldn't possibly be wrong--and worse they act like the patient is pretty much always wrong--.
Of all the things that have happened to me, I have yet to hear a Dr. admit wrong or to even say "I'm sorry." Even to the point that when it is obcious that someone WAS wrong, current Doctors will always make an excuse for previous Doctors. Oh, it really burns me!
Don't get me st arted, lol.
I am glad your wife got the Tarceva. And for some reason someone seems to have misread your post because it wasn't ER Docs that were ignorant it was PCP and Oncs.
Oh well, my new Doctgor, the good one, is going on an exteneded sabbatical in a month, which means she probably will never return to medicine. So once again, I am in search of a new Doctor.
I can't believe I am again at the mercy of fate...
elaine
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Cindi
That's pretty cool--is there anything else you can perform disappearing acts on??? !!
Sorry about the SOB--lol and any other SOBs you may need sorrys for, lol.
When they did the O2 test, did your sats drop below 90? Mine did not, and I was told that my SOB is more than likely a combination of factors--overweight, out of shape (indicated by my pulse rate rising to 140) and only slightly by my emphysema. Now, of course, I don't believe half of what my dumb Drs tell me, but that's what they told me.
Didn't they do CT scan--and wouldn't that tell if there was pnemonia? Makes no sense, but hey what does!?
love and fortitude
elaine
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Dave,
Sounds like you are in good hands. My best to you and prayers that the Docs get you back on the right track.
love and fortitude
elaine
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Nell,
I am so very sorry about Bob. I did see this one day when we had to drive back here for a day to feed the cats, but I had no emotional energy--only tears.
You have been a special friend to Bob and his family and to many of us here as well. May you receive a bounty of blessings.
I hope Jo is doing well and that all of you--family and friends, are finding comfort in memories of good times.
We live on in the hearts of others, little heavens on earth.
love and fortitude
elaine
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Oh, this is really shi##y, huh? None of it makes sense to me either....
Without going into all the details of what has been going on with me, I can say this. Thurs my pulmo keep looking thumbing through copies of my scan reports, talking to himself, scratcing his head and saying-"Maybe there's something going on in there that we just aren't SEEING!!!!" --Empahasis mine!
Then before I could quiz him on that comment, he up and leaves! So, I guess there ARE things they can't see. But something that is blocking 80 per cent of your trachea??? I don't buy that, Frank. I am from Missouri (the show-me state) so I would be asking for them to SHOW me the scan.
But, I guess they think it doesn't make that much difference--but it DOES.
I recently had the laser thingie, and I guess the the only real thing to worry about is excessive bleeding, from what they told me.
Keep us posted and keep those spirits high.
I am sure praying for you Frank--.
love and fortitude
elaine
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Bill,
I am so sorry to read the news about your wife. I know there are miracles and I pray one is headed your way.
As for Tarceva-- get the thirty days supply (or more if you can) before signing up for Hospice (if that is what you decide to do).
The Tarceva is to be paid from your health provider under separate terms from hospice care. Hospice pays for pain meds and other palliative meds as others have said.
If Tarceva works then you can always leave hospice care IF the insurance company won't let you have hospice AND Tarceva--but IF you need both then fight for both...but you can always go in and out of hospice care. There's way around nearly everything.
Well, that's an idea anyway....
When my dad was in hospice they wouldn't let him have antibiotics (as in they wouldn't pay for them, so I just went and go a RX and paid for it myself... but Tarceva costs a bundle more than an antibiotic.) I guess my point is...they cant stop you from taking any meds--they can only say they won't pay for the meds.... (It has to do with the contracts that hospice has with the provider... so if you have private provider it may be easier than medicare.) My dad had medicare and under that contract, the hospice got a flat apx 100 dollars a day (in 1996) to "care" for my dad, which included providing meds for palliation.
I am rambling, but I think there is a way to get Tarceva in any case.
love and fortitude
elaine
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I am so sorry that I haven't posted. So many things have happened and I am under a lot of stress. I sure wish I was moving but my husband's job didn't work out--long story--I am really worried about him. I was also worried while he was there working 18 plus hours a day in very cold weather--missing Christmas and New Years because the plant was a peice of doo-doo, lol.
Chances are the place won't be able to stay afloat anyway, so maybe it's best in the long run... but that doesn't make us feel all that great now.
I will post an update on all the myriads of medical stuff that has happened with me--my mind is reeling with all of the unknowns on that front.
The other thing that happened is that we nearly lost our 24 year old son to a serious reaction to ZPack, an antibiotic. He was hospitalized for 10 days with what is thought to be Stephens-Johnson Syndrome--never heard of it till now, but it is nasty.
He lives in another state and we were fortunate to be able to be with him.
The good thing about that is that he had wonderful teams of Doctors, I mean teams and teams of Drs--from every specialty there is--and since it was a teaching hospital, all the Drs had what I called a group of travelling shadows.
They took pictures and pictures for some kind of teaching thing--not sure what, a textbook or article or something (I wasn't there when the photographer came by)-- so my son's privates will be on display, lol--along with his eyes, mouth, and whatever picutures they have of his "innards", all of which were covered with blisters. Talk about pain...
Well that's the short story of where I have been. Turned out long....
I have also been numbed with grief from all of the bad news on here lately. I know there is also good news, but for some reason, my thoughts always wander to those of you who are in need, now.
My dear Addie and Justa and Bill's dear wife and Angie's Dad and David C and Randired's mother. I love you all so much, and my prayers are sent for you and all your loved ones each morning and night.
love and fortitude
elaine
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Beth,
Thinking of you as you start your treatment. May it be kind to you.
elaine
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I researched adrenal mets some months ago. From my understanding, adrenal mets are most commonly unsymptomatic unless they are large AND are effecting both adrenals. I am not a Doctor, so you might want to ask in the "Experts" forum.
I think it is probably good news that you haven't heard from your Dr. BUT, you might want to call, anyway.
I have a wonderful Dr now, who calls me personally, even when the news is good! I wish all Doctors did that.
elaine
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Prayers for good news and that time travels fast until you get it!
elaine
Good Wishes For Bill's Wife...
in GENERAL
Posted
Count me in!