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Elaine

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Posts posted by Elaine

    Radiation

    in NSCLC GROUP

    Posted

    Here is the info I posted on another thread. I checked the link and according to it, there are no cyberknife locations in Australia. Could she come to US? Japan? Anyway, here is the info:

    I am posting a link to where Cyberknife is available in the world.

    Cyberknife is actually different than some of the other radiation treatments that some Drs say is the same as the Cyberknife, from my understanding

    . Buyer beware, I guess. Anyway, at the least someone should research the various techniques before having any of them.

    http://www.cksociety.org/PatientInfo/Ck ... ations.asp

    Here is also a link to a page that describes the various technologies. Yes, it is on the Cyberknife page, but I doubt they are able to lie about their technology a lot, anyway.

    http://www.cksociety.org/PatientInfo/ra ... risons.asp

    Radiation

    in NSCLC GROUP

    Posted

    Karenl

    I posted a link to all the cyberknife places in the world about a week ago. If I were to have radiation this is the ONLY type of radiation to the lung that I would even think about doing. It is precise and does not damage any surrounding lung tissue.

    My love to you and your mom and sister and whole family.

    elaine

    prayers for my sis

    in HOPE

    Posted

    Kim

    It does seem like it was caught very early and the procedure to get rid of it is not hard at all, but I am sure she could use our prayers and your loving concern,

    elaine

    Port-A-Cath Risks and Maintenance

    in GENERAL

    Posted

    Bill

    I, of course, have nothing to contribute about the porta cath. I just want you to know that I think of the two of you and your son (not sure if you have more children or not) a lot. I wish there were something more I could do.

    Did you ever find out why they are using a chemo that hasn't worked well for your wife in the past (I know they are combining it with something new, but still....)

    I know you said the onc didn't bring up Tarceva, but maybe you need to bring it up. Your wife's "profile" suggests it has a good chance of working..

    As far as changing oncs, I would say if you still are considering it, call around now. I would say that with the recent scan results, you could make the case that this is an emergecny and I am SURE that your wife would be seen within a week or two.

    You could do that as a second opinion without officially leaving the current onc. That way you wouldnt be putting all your eggs in one basket.

    Maybe I am out of line for expressing my opinions on this, but I worry about you both. Sheesh, I worry about us all.

    love and fortitude, my friend

    elaine

    Just so darned tired...

    in GENERAL

    Posted

    Melanie

    I know what you mean ab out having bad feelings about Drs and quckly getting other ones. I had horrible Drs. and instead of finding new ones, I just avoided them all together.

    But I finally decided I needed decent Drs and still had troulbe finding one, but I did. She is very good and that has helped a lot.

    I am wondering how you are doing and hoping to hear from you soon.

    love and fortitude

    elaine

    An Interesting PET Info Site

    in GENERAL

    Posted

    Oh, I guess I have never had a PET specific to the brain. Why dont they do them more often instead of MRI? Expensive? I misunderstood the info, and wondered why I hadnt ever seen pictures of my brain when I got PET results. Now I know.

    Where did you get the reader for your scans? I cant read mine on my omputer.

    Thanks

    elaine

    MY TOPIC SHOULD HAVE BEEN CONFUSED INSTEAD OF LOSING MY MIN

    in MEMBER UPDATES

    Posted

    I thiink what he means is that if the mass(IF it is cancer) has not spread to the lymph nodes, then he will take out the lobe to see for sure the mass is not cancer.

    I think I read that you already had a needle biopsy that turned out negative? If that is the case, then I guess based on the other tests you had, they still aren't sure and it's better to be safe than sorry.

    It really is a good thing that they are being aggressive even if it sounds like a horrible ordeal

    Everyone else has given you good advice about the surgery. I wish you well and let us know. Lots of people here have been through this and can offer you support and answer questions.

    love and fortitude

    elaine

    Joanna

    in HOPE

    Posted

    Ry, I am so sorry. It really is devastating when children lose a parent. I wish all the best for the family. Give Jillian extra hugs too. It may not seem like it, but little ones are effected by the loss of a freind's parent.

    love and fortitude

    elaine

    An Interesting PET Info Site

    in GENERAL

    Posted

    I am a little confused though. It seems to be saying that PET can identiry brain mets, but I was told that it is not reliable at all. Plus the images on the pages I looked at didn't seem to have any areas of uptake that aren't cancer, but my PET had several places that had uptake that were deemed probably not mets.

    It still confuses me.

    I am having plain radiographs of several areas Monday to be certain, I guess but not even sure that xrays will tell the tale.

    elaine

    Psychic?

    in JUST FOR FUN

    Posted

    oh, Ok I get it now. The symbols for each number change each time the page is accessed and there are only the multiples of nine that are possible for the "right" answer.

    elaine

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