kimblanchard Posted June 28, 2003 Share Posted June 28, 2003 Well folks just not getting better here. Restarted Steroids Monday but they haven't helped a whit yet. My brain feels like mush, I can dance by myself (forward, backward, etc.) Can't work because I can't form rational decisions. I have lost 13 lbs. in 2 weeks. because of the thrust everything taste awful. My doc says give it a little more time. But boy, am I getting bored and cranky. The fatique is worse than with the chemo. I would have to think very seriously before I had PCI again. Well, just a little witch session there. Calgon take me away!! Quote Link to comment Share on other sites More sharing options...
Don Wood Posted June 28, 2003 Share Posted June 28, 2003 Hopeful, are you taking anything for the thrush in your mouth? Lucie took two different kind of cocktail meds for it and it helped. I had to find things for her to eat and drink that were not as bad as others. Good luck. Don Quote Link to comment Share on other sites More sharing options...
Rosanne Posted June 28, 2003 Share Posted June 28, 2003 Hopeful, Hope you start feeling better soon. My husband also took medicine for his thrush which helped. Rosanne Quote Link to comment Share on other sites More sharing options...
lenr8 Posted June 28, 2003 Share Posted June 28, 2003 What is PCI?. I have a brain met also does it have something to do with that? Quote Link to comment Share on other sites More sharing options...
Sam'swifeShirley Posted June 28, 2003 Share Posted June 28, 2003 Hi Hopeful, Hang in there. I did the PCI thing in December and then slept from mid Feb to late April but it did get better and I went back to work. Fortunatley, I didn't get the thrush, just the encephalopathy. I wish I could help more. I'm glad to listen to you whine. Sam Quote Link to comment Share on other sites More sharing options...
daggiesmom Posted June 28, 2003 Share Posted June 28, 2003 Dear Hopeful2, I'm sorry to hear you're having such a difficult time. I wish I could help you in some way. Even though you're having side effects from the PCI, I'm sure it has helped you. Please know i'm thinking of you and saying some prayers for you to feel better, more yourself, soon. Joanie Quote Link to comment Share on other sites More sharing options...
Gina D. Posted June 28, 2003 Share Posted June 28, 2003 I cannot help you with the chemo effects, as I have not had chemo, but you go whine loud and clear! We all get a turn! Today is yours! Quote Link to comment Share on other sites More sharing options...
Carolsdaughter Posted June 29, 2003 Share Posted June 29, 2003 hopeful, My mom also got thrush really bad, her onc. said it was from the steriods. They perscribed two medications to treat it as it is caused from yeast. Diflucan capsules and a orangeish color medicine they called swish and swallow, that was not the techinical name, just what I remember them calling it. I pray that you get feeling better soon. Shelly Quote Link to comment Share on other sites More sharing options...
shelliemacs Posted June 30, 2003 Share Posted June 30, 2003 my mom also had full head radiation. She has three brain mets. She fully agrees that the side effects of full head radiation are absolutely horrible. They made her sooooooo tired she could not walk stairs. She decided during the side effects that she did not want to continue with treatment. She hasn't gone back yet and I am praying still that she changes her mind and goes for the follow up MRI on 7/7 to see if the head radiation worked or not. I pray for you and all of us Quote Link to comment Share on other sites More sharing options...
Guest Janet W password no work! Posted June 30, 2003 Share Posted June 30, 2003 For thrush we have always used yogurt. Plain old simple yogurt. We make sure we have the kind that says "active cultures" and just eat it. It works hard on yeast, at least it does for us. We've also used capsules of acidophilus which are available most vitamin stores or health food stores/departments. Those usually work well for us also. Quote Link to comment Share on other sites More sharing options...
Gina D. Posted June 30, 2003 Share Posted June 30, 2003 lenr8 ~ I was curious too, so I looked it up in the glossary (link is up there, very useful) prophylactic cranial irradiation - Radiation therapy to the head to reduce the risk that cancer will spread to the brain. Quote Link to comment Share on other sites More sharing options...
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