SJAS Posted February 26, 2005 Share Posted February 26, 2005 I just located this contact for Iressa users who are concerned about the FDA hearing on Iressa on Mar. 4. It appears that you can still send input for a couple more days. The contact info is at the bottom of the page. If you are on Iressa (or just want to support those who still are), you might want to send in your comments. Steve's doctor has said there is no question in his mind that, for right now, Steve should stay on Iressa because his body has had a phenomenal response to it. He may go to Tarceva at some point, but we sure want to have the option to stay with Iressa as long as it's working. http://www.fda.gov/oc/advisory/accalend ... 30405.html Quote Link to comment Share on other sites More sharing options...
ginnyde Posted February 26, 2005 Share Posted February 26, 2005 Joyce, Thank you for this information. I have sent them an email. Maybe there is strength in numbers. How is Steve doing? Any improvement in his sight? I think of you and your family often and keep you in my prayers. Quote Link to comment Share on other sites More sharing options...
pammie Posted February 26, 2005 Share Posted February 26, 2005 Thanks for the address. I sent an e-mail in to the link. I am taking Iressa right now and my last blood test was very encouraging. The CEA is down to 6.5 When I was diagnosed in June 2004 it was 36. I do not smoke so it was a huge shock to find out I had lung cancer. Sure do appreciate you sending the information . God bless. pammie Quote Link to comment Share on other sites More sharing options...
kimblanchard Posted February 26, 2005 Share Posted February 26, 2005 I sent my note. We cannot afford to lose an effective weapon against disease. Quote Link to comment Share on other sites More sharing options...
SJAS Posted February 27, 2005 Author Share Posted February 27, 2005 Thanks Ginny, Pammie & Maureen! We're a bit nervous about it. Ginny - Steve's eyesight is very, very slightly improved. The vision in his good eye is about 20/100 now. Not good enough for him to notice much of a difference. He is still pretty upbeat though. Thanks for the prayers Hope your new place is working out great. Quote Link to comment Share on other sites More sharing options...
Ry Posted February 27, 2005 Share Posted February 27, 2005 Ok done. It is important Iressa stay on the market for those it works for and for patients that cannot tolerate the Tarceva. Quote Link to comment Share on other sites More sharing options...
Andrea Posted February 27, 2005 Share Posted February 27, 2005 Done also. I have heard so many IRESSA success stories, it clearly needs to stay on the market for those it helps Quote Link to comment Share on other sites More sharing options...
stand4hope Posted February 27, 2005 Share Posted February 27, 2005 I just sent my email. Hubby has been stable for 9 mos. with Iressa. We sure don't want things to change. Let's hope these emails help. Love to all, Peggy Quote Link to comment Share on other sites More sharing options...
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