Maryanne Posted May 14, 2005 Share Posted May 14, 2005 http://www.neversmokers.com/ From the home page of www.neversmokers.com: Thousands of never and nonsmokers are diagnosed with lung cancer each year. Recent studies suggest that lung cancer among never and nonsmokers may be biologically different than lung cancer among smokers. Further studies are needed to better understand the unique characteristics of this disease and to determine the most effective treatment protocols for such patients. Under the guidance of leading lung cancer research oncologists, including Dr. George Simon, MD at the Moffett Cancer Center in Tampa, FL, this site was developed as a registry for such patients. It is hoped that by gathering information, research in the field of lung cancer among never and nonsmokers can be greatly expedited. To our knowledge, this is the world's only such registry. Never Smokers - those who have never been smokers. Nonsmokers - those who quit smoking 10 or more years prior to diagnosis, HELP US FIND PATIENTS The more registrants we get, the more useful information we have to pass on to researchers. Please tell other patients, your doctors, local support groups, online support groups, etc. - - - - - If you are a non-smoker or a former smoker with 10+ years of non-smoking behind you, please visit the website and register. Joyce, Becky, Steve and Heather and all the other non-smokers, click on link and sign that petition. Maryanne Quote Link to comment Share on other sites More sharing options...
Snowflake Posted May 14, 2005 Share Posted May 14, 2005 I know that Heather and I already have. Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted May 14, 2005 Share Posted May 14, 2005 Done. Quote Link to comment Share on other sites More sharing options...
Don M Posted May 14, 2005 Share Posted May 14, 2005 I did too, but I am not sure the web page form transferred all my data. Don M Quote Link to comment Share on other sites More sharing options...
terriep Posted May 15, 2005 Share Posted May 15, 2005 Was happy to oblige. Quote Link to comment Share on other sites More sharing options...
TAnn Posted May 15, 2005 Share Posted May 15, 2005 I've done the survey. I hope it helps and I am so glad to see someone is addressing this. TAnn Quote Link to comment Share on other sites More sharing options...
Lisa O Posted May 15, 2005 Share Posted May 15, 2005 I started it but it was very long and I got interrupted. I am going to start over tonight when I have more time. I hope it helps. Quote Link to comment Share on other sites More sharing options...
Addie Posted May 16, 2005 Share Posted May 16, 2005 I wasn't going to post this...but I keep coming back to this thread and the info from neversmokers.com - and I'm bothered. It is hoped that by gathering information, research in the field of lung cancer among never and nonsmokers can be greatly expedited. I gotta say it.....How about expediting the research into lung cancer WHETHER OR NOT someone smoked!?? Don't we ALL deserve a cure for this stinking disease? Don't misunderstand me....I don't begrudge ANY research into any cancer....and I understand that there are differences in lung cancer and in who gets what kind. But lung cancer - overall - doesn't get the attention and research money it deserves...and separating the smokers from the never-smoked or those who quit years ago...sort of seems to divide us in the fight to get more attention to lung cancer in general, doesn't it? Furthermore....this sort of separation brings the stigma of smoking back to the forefront....and those of us who smoked are left not only to fight for our survival as we all do....but to defend against the stigma too. Those with squamous cell don't see themselves as any more "worthy" of research than those with large cell, do they? I dunno...I'm just bothered by separating out any faction and calling for research for just that faction of people who suffer this disease. I mean, I have small cell. I'm among the minority in that fact...as most lung cancers are NON small cell. So I'd be willing to bet that whatever paltry amount of research is going on for lung cancer...it's concentrated on those lung cancers that affect the majority...namely, non-small cell. The way I view it, is that ANY research into lung cancers is good...because even IF they go looking for something to impact non-small cell..they might happen to discover something that works for small cell (or vice versa!). We're all in this thing together. There is something about drawing a big fat line between the smokers and the non- or never-smokers that bothers me. Wish I could articulate it better...and know I risk some flak for posting this....but it's how I feel. Quote Link to comment Share on other sites More sharing options...
SJAS Posted May 16, 2005 Share Posted May 16, 2005 Still working out of town, but I'll help Steve fill it out when I get home. (He can no longer see well enough to be able to fill it out without someone reading it to him.) Addie - I do understand your feelings and I totally agree that we must fight for ALL lung cancer patients - just as we must fight for all cancer funding to be increased. It is unbelieveable to me that cancer surpassed heart disease as the #1 killer for those under age 85 and the story could only be found buried deeply in the middle of the newspapers. However, I do know that it is not until the general public understands that LC is not limited to smokers that the situation will change. Right or wrong - that's the way it is out there. I see strong parallels between what happened with HIV/AIDS after Ryan White's case was publicized. The acceptance of Gay persons with HIV/AIDS, while still having a long way to go, was improved by the change in attitude to the disease. Quote Link to comment Share on other sites More sharing options...
XLeron Posted May 17, 2005 Share Posted May 17, 2005 ok Quote Link to comment Share on other sites More sharing options...
Cindy RN Posted May 17, 2005 Share Posted May 17, 2005 Thank You Addie-I was really sad when I read this too. I feel like I am on the back of the bus again. I want lung cancer studies done-regardless if the person has enviromental issues, smoking, non-smoking, nsclc or sclc. Cindy Quote Link to comment Share on other sites More sharing options...
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