trina222 Posted January 25, 2006 Share Posted January 25, 2006 My husband was diagnosed with NSCLC November 2005. He had 7 rounds of carbo/taxol with concurrent chest radiation; 4 rounds of Taxotere; 3 Gamma Knife for 12 brain mets and Whole Brain Radiation which was completed in September. Was considered "Stable". He started Tarceva 150 mg. in October and had strong reaction (lethargy, nausea, anorexia, dehydration). After a 10 day break he started Tarceva 100 mg. and had the same reaction (just took longer to get as bad). He fell and split his head open and MRI and Lumbar Puncture showed "Leptomeningeal Metatases" or "Carcinomatosis Meningitis". He is now taking Temodar with no improvement after 2 weeks. The Neuro Onc does not recommend Intrathecal Chemo for him and WBR cannot be done since he had it recently. Has anyone had experience with this? Quote Link to comment Share on other sites More sharing options...
Don Wood Posted January 25, 2006 Share Posted January 25, 2006 Welcome to the site. Glad you have found us. Don't have any experience with your questions, but others may. Don Quote Link to comment Share on other sites More sharing options...
Donna G Posted January 25, 2006 Share Posted January 25, 2006 First , welcome. Boy your husband has had a lot of treatment already. I am a little confused. You say he was diagnosed in November 05, but completed brain radiation in September. Does he have 2 different cancers? Please keep us posted. Also you may have a question for "Ask the Experts" , if you would like to try that area of the board. Best wishes. Donna G Quote Link to comment Share on other sites More sharing options...
kjude Posted January 25, 2006 Share Posted January 25, 2006 Has your Husband had 2 sifferent cancers? re: dx Nov. treatment Sept. He has sure been through a lot.know that there are lot's of folks here for both of you...please keep us posted alnd I will keep you in my Prayers Judy Quote Link to comment Share on other sites More sharing options...
Don M Posted January 25, 2006 Share Posted January 25, 2006 Weclome; I can't answer your questions regarding Leptomeningeal Metatases. Don M Quote Link to comment Share on other sites More sharing options...
dadstimeon Posted January 25, 2006 Share Posted January 25, 2006 Welcome, Glad you found us. Quote Link to comment Share on other sites More sharing options...
Ry Posted January 25, 2006 Share Posted January 25, 2006 Welcome. I am sorry you had a need to find us but glad you did. Quote Link to comment Share on other sites More sharing options...
Maryanne Posted January 25, 2006 Share Posted January 25, 2006 Hi Tina, Welcome here. Sorry you had to find us but we are a great support family here. Your poor husband he has been through so much in the short time he was diagnoised. Please keep us updated. I hope this new drug works for him.l Prayers sent out to him. Maryanne Quote Link to comment Share on other sites More sharing options...
trina222 Posted January 25, 2006 Author Share Posted January 25, 2006 Boy I really messed that up. My husband was diagnosed in November of 2004 not 2005. I am slightly sleep deprived. Sorry! Quote Link to comment Share on other sites More sharing options...
Fay A. Posted January 25, 2006 Share Posted January 25, 2006 Trina, I am very sorry you have need to find us, but hope you are able to find much support and good counsel here. I'm curious. Did the Neuro Oncologist say why your husband isn't a candidate for Intrathecal Chemotherapy? Quote Link to comment Share on other sites More sharing options...
bunny Posted January 25, 2006 Share Posted January 25, 2006 Trina, who can blame you for being tired! sorry you need us, but glad you found us. people here will definately have substantive help for you, I can only say: welcome. xoxo amie Quote Link to comment Share on other sites More sharing options...
bethluvswill13 Posted January 26, 2006 Share Posted January 26, 2006 Welcome! I don't know any answers to your questions...I'll be praying for the best! Hugs, Beth Quote Link to comment Share on other sites More sharing options...
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