Linda661 Posted January 30, 2006 Share Posted January 30, 2006 So glad I found this site just a few days ago. Well, I've finished my 8 pages of questions for the doctor (chemo oncologist) tomorrow and I just got back from seeing mom in the nursing home....she was recovered nicely from her 1st chemo session this last Monday when I saw her late Thursday....well, her at rest oxygen sats went into the 70's "while I was gone" and she was put on 7 liters of continuous oxygen, instead of 5 (we did just drop that to 6 1/2 liters today since her sats were 92-94 while I was there; that's worse than where we were before though). Her respiratory therapy sessions have been increased as well (so much to keep up with -- things seem to change so fast right now). She did have a "bad" 1st chemo day as well, so I am not sure if this is a delayed reaction thing or not -- I am still too much in the dark about what to expect before I can bring her home for caregiving. I told mom all about this site and what I found in my research (only told her the encouraging things -- she's glad I found you guys and loved the encouraging info.....even the thicker hair regrowth thing that some have had! I think it helped too that I could tell her about folks in her age group and more senior than her with similar diagnoses who are doing just great); told her about having my questions ready and that many of them she might not want to know the answers to: she agreed: she just doesn't want to know about side effects of things and the "downside" stuff that I need to know to help her at home (and just plain coordinate things/info. exchange at the nursing home, even now). I really think that's wise too -- no sense in her starting negative "self talk"....she's not saying much, but she's got to be scared silly. She did come up with a couple of her own questions that I hadn't thought of for me to add to our list....I was encouraged by that. Ought to be interesting to see how I handle this one with the doctor tomorrow! Yeah, "I want to know the answers to this, this, and this,....and oh by the way, don't tell your patient the answers!" Oh my oh my......HIPPA or whatever the initials are don't help the patient or family at all! So frustrating!!!! My gut feeling just doesn't like her changes this last week so my sonar is way on guard now......I just start to cry at times with this -- don't want to lose parent #2 due to something I could have prevented along the way.....all my frustrations from my experience with parent #1 is still too fresh. I know it's the patient's journey....I just don't want the mistakes and what I perceive as a medical community "doing it's job" (barely) rather than having the time to care about their patients to take her from me sooner than she needs to. Oh my....now I am gonna' cry more....."It's a wonderful world" just came on the radio..... Thanks for just listening! Linda Quote Link to comment Share on other sites More sharing options...
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