summeron2001 Posted April 1, 2008 Share Posted April 1, 2008 My name is Sylvia - I am 62 years old. Diagnosed 3 1/2 years ago with Stage 3b NSCL. No signs of cancer - found in x-ray for sore rib. Thoracic surgeon - two nodules in right lung - too close to heart to operate. Bone scan - okay. Brain Scan okay. Started chemo and radiation together. There were also two small spots in lung that they didn't think were anything. Chemo and radiation successful on two major spots - spots gone. Follow-up 6 months later two small spots growing. 30 days of radiation. Got one spot. Next 6 month CT Scan showed more growth. Put on Tarceva last September - on it for two months - main spot - lost weight - rash, etc. Tarceva didn't work at all - main spot grew 2 cm. Wait three months - main spot still growing - metastized - many pin-point spots in both lungs. More chemo offered -can't do more radiation because of other small spots. Put chemo off - went to Mexico for a week's all inclusive - had a great time. March appointment I put off chemo again - new grandchild arriving in May. This week scheduled for bone scan and CT Scan on chest. Oncologist on April 11th - will have to make decision. Alternative stuff I am taking - Dr. Budwig's cottage cheeze and flax oil, phytoplakton and Flor Essence. Feel well - sometimes tired half way through the day. Worked full time except when on chemo/radiation at the beginning then went back and have been off again since December 11th to recoup after Tarceva. Oncologist said in Oct that I maybe had a year left - but I DON'T THINK SO! I remain positive and do lots of research, walk and enjoy every day. They told me at the very beginning that without treatment I only had about six months and maybe longer with treatment - well guess what it has been 3 1/2 years. Quote Link to comment Share on other sites More sharing options...
SandraL Posted April 1, 2008 Share Posted April 1, 2008 Well that's an inspiring story and you sound so positive. Thanks for sharing. I am a 3B as well. I hope you stay on here. It's a great place for support and sharing. Take care Quote Link to comment Share on other sites More sharing options...
summeron2001 Posted April 1, 2008 Author Share Posted April 1, 2008 Thanks Sandra - wow sounds very enouraging. I see we live in the same city. Yes, I will stay on here. We all have to remain POSITIVE. Quote Link to comment Share on other sites More sharing options...
famograham Posted April 1, 2008 Share Posted April 1, 2008 Ohhh, it's SO nice to see people who are near me We live in Parksville, and my Mom is in Nanoose. I suppose when we get to that point, Mom will receive treatment in Victoria, so I'll have many questions for you! I'm trying very hard to keep that same positive attitude! I've designated myself the "learner" for our family. I'm sharing what I learn with Mom, my sister, hubby and the rest of our family. SO very glad you are here, (((((Sylvia and Sandra))))) Linda Quote Link to comment Share on other sites More sharing options...
recce101 Posted April 1, 2008 Share Posted April 1, 2008 Good for you, Sylvia, taking charge of your own life! You will be a great inspiration to the "newly diagnosed." Aloha from another IIIb, Ned Quote Link to comment Share on other sites More sharing options...
Patti B Posted April 1, 2008 Share Posted April 1, 2008 Sylvia- You are definitely an inspiration. Good for you for not listening to those darned statistics!! Wishing you continued good luck. Hugs - Patti B. Quote Link to comment Share on other sites More sharing options...
Wendy Posted April 2, 2008 Share Posted April 2, 2008 Welcome, Welcome, Welcome! It great to hear that you are doing so well. Keep us posted on what you decide to do at your next doc visit. All my best to you, Wendy - 4yr nsclc survivor Quote Link to comment Share on other sites More sharing options...
Ry Posted April 2, 2008 Share Posted April 2, 2008 Welcome to our board. I am glad you are doing well. Keep proving those statistics wrong! Quote Link to comment Share on other sites More sharing options...
MsC1210 Posted April 2, 2008 Share Posted April 2, 2008 Hello Sylvia and welcome! Thanks for sharing such inspiration! Your attitude is great!! Warmly Christine Quote Link to comment Share on other sites More sharing options...
Jyoung20 Posted April 2, 2008 Share Posted April 2, 2008 Keep on keeping on!!! YOU ROCK!! God Bless! Jamie Quote Link to comment Share on other sites More sharing options...
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