barbara1168 Posted June 20, 2009 Share Posted June 20, 2009 A year ago my husband was diagnosed with stage 2b lung cancer at Penn. Drs said they felt they could cure this because it was early. This is my husband 2nd cancer after having Hodgkin’s back in 1972 and successfully treated at Jefferson. Now at University of Pennsylvannia, the Drs seemed so sure that they could cure this that we didn't even seek other opinions or options; I could kick myself for that now. So after just 7 radiation treatments and what I thought was too short a time on chemo of tax/carb, they sent him home to rest and get better from the treatment. Before we left the medical oncologist office, I said to him “this is it, it can’t be this easy compared to what he went through with Hodgkins”, Dr. said that’s it and we went home with only scheduled follow up the radiation oncologist. My husband got worse rather than better. He continued to loose weight, could not eat, was extremely tired and felt like he still had cancer. They could find nothing to indicate that he still had cancer but would not know for sure until the Pet Scan in March. They were stumped but just kept saying since this is his 2nd bout with cancer, it must take his body longer to heal and it’s probably depression. In the meantime he went to his family internist, his Endocrinologist and Gastro doctors looking for help. They each did their own thing and found nothing significant. By March he was no better and had lost 20lbs so his Endocrinologist, not Penn, finally suggested Medace for appetite. Now it was March so they finally did the PET scan, they told us it did not show improvement but they felt there was inflammation and the next one in three months would show improvement; we went home to wait again. In the meantime he got plural effusion which was not malignant but continues to produce fluid so he must drain it every day. Now June comes, he feels a little better from putting on some weight, but still feels things are not right. The new Pet Scan shows the old area light up went from 4.5 to 7.5 and there is a new light up in the abdomen, they still talk about inflammation, but we said we wanted a biopsy. The biopsy in the abdomen shows cancer metastasized. What happened??? Did they screw up??? Who do we trust going forward? How do we find the best doctor? Quote Link to comment Share on other sites More sharing options...
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