Annette Posted April 12, 2011 Share Posted April 12, 2011 I think about all of you every day, but it seems that I am always rushing and time goes so quickly. I spend eight hours at the hospital with Ned. Fortunately his daughters are still here and come by in the evening to help with his last meal of the day. There are times that Ned speaks and responds but, depending on the time of day, the PT and OT techs might not see it. Their evaluations, of course, determine whether he continues with the therapies. This week will be a real test for Ned. We are all praying that he will be able to show the therapists that, with their help, improvement is possible. The "bulked out" male PTs mention that they find him quite heavy. I have already come to the same conclusion. Thank you for all the encouragement, support, and well wishes. It means a lot to Ned and to me. Aloha, Lani Quote Link to comment Share on other sites More sharing options...
nikkala Posted April 12, 2011 Share Posted April 12, 2011 Thinking of Ned and family and holding them all firmly in prayers. I hate it that it always seems that ot and pt come at all the wrong times. I REALLY hope they time it better this week and see that Ned needs to continue. Quote Link to comment Share on other sites More sharing options...
jaminkw Posted April 12, 2011 Share Posted April 12, 2011 Thanks so much for posting Annette. I am not surprised that there are times Ned still talks and responds. I knew we couldn't count him out too easily. Here's hoping the staff listens to his family and gives credibility to their observations. How frustrating that must be! Judy in KW Quote Link to comment Share on other sites More sharing options...
Joppette Posted April 12, 2011 Share Posted April 12, 2011 Thanks for the update Annette. Keeping the prayers and the hope going. Judy in MI Quote Link to comment Share on other sites More sharing options...
RandyW Posted April 12, 2011 Share Posted April 12, 2011 saying more prayers! It sounds like if he is "heavy" then there may not be any cachexia and thats a great thing!! Hope and Pray I am right! Quote Link to comment Share on other sites More sharing options...
jaminkw Posted April 13, 2011 Share Posted April 13, 2011 Randy, help, I don't know what the reference to Ned being "heavy" or what the word "cachexia" means. Judy in KW Quote Link to comment Share on other sites More sharing options...
eric byrne Posted April 13, 2011 Share Posted April 13, 2011 Same goes for me too Judy.I was too shy to ask Quote Link to comment Share on other sites More sharing options...
ts Posted April 13, 2011 Share Posted April 13, 2011 cachexia is a wasting syndrome - loss of weight, fatigue, muscle atrophy etc in someone not actively trying to do those things (not anorexia). I'm not sure what they mean by heavy - I'd think that he is relaxed and not pulling his own weight, but that does not sound like Ned. Maybe just that he weighs something appropriate for his size? Best to Ned and Lani. Light and laughter for your days. Quote Link to comment Share on other sites More sharing options...
jaminkw Posted April 14, 2011 Share Posted April 14, 2011 Thanks Steph. Seems I've forgotten how to use the dictionary. Judy in KW Quote Link to comment Share on other sites More sharing options...
RandyW Posted April 15, 2011 Share Posted April 15, 2011 cachexia is scary things! rapid weight loss due to loss of muscle mass. Got familiar with it researching about 3 years ago for someone here! nasty thing it is! Quote Link to comment Share on other sites More sharing options...
nikkala Posted April 15, 2011 Share Posted April 15, 2011 Just want Ned and Lani to know I am thinking of them and still holding them firmly in prayer. I really hope things are going better this week and that's why no update...Too busy rehabing. Prayers Quote Link to comment Share on other sites More sharing options...
dianew Posted April 16, 2011 Share Posted April 16, 2011 Keeping Ned and family in my thoughts and prayers. Diane Quote Link to comment Share on other sites More sharing options...
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