ggabrielides Posted November 20, 2011 Share Posted November 20, 2011 I need to vent. When my 71 year old mom was diagnosed with Stage IV NSCLC in late September, we were told that, with treatment, she would improve and could lead a "new normal" kind of life. At first, her assigned docs at her local community hospital were very attentive and involved. As her condition became more complicated (through discovery of additional tumors, infections and other issues), and treatment became more complicated (some of it due to the inability of the community hosp. to provide radiology to in-patients), her "docs" have become completely inaccessible, and barely involved. As a result, her condition has grown worse and worse. At this point, she is not ambulatory, her pain meds/sedation have left her unable to speak for herself. In the past two days, my dad and I have been desperately trying to get answers about my mom's condition (one of the associates of my mom's "docs", actually told my dad via cell phone that he "doesn't know what to do next" and left it at that. There was no talk of hospice or any next steps or anything like that. In fact, unbelievably, the hospital social worker asked my dad which rehab center (!?) she should be transferred to--obviously with no idea of my mom's true condition. My dad and I are completely devastated. My mom is incredibly sad, and cries even through her sedation. In the beginning, I did not want to inject my opinions, as my parents seemed very satisfied with mom's care. I gradually became suspect of the handling of her care, and started too slowly to express my suspicions. I live an hour away (without traffic) from my parents, and could not be continuously monitoring the situation (plus, her docs were impossible to get a hold of). My husband and I are working with great urgency to get her into a major university hospital in our area. We have some connections that can assist us in getting her transferred within the next two days. Our prayer is that she receives top quality care, and even if she does not make it, at least we would know that it was not because we gave up on her. I can't help but think about how it is BECAUSE of the inefficacy of her care that she is in this condition. I would have thought that if the docs could not handle this complicated of a case, she would be referrred to another doc/hospital/cancer treatment center much earlier. We are all sad and incredibly heartbroken-- the emotional toll of all this in almost unbearable. If you are so inclined, please keep my mom (and dad) in your prayers as my husband and I continue to work on her behalf. Thanks for reading, Gina Quote Link to comment Share on other sites More sharing options...
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