curlysue50 Posted June 5, 2012 Share Posted June 5, 2012 I have a 3 month follow CT scan on Monday the 11th. Friday the 15th I get results. I am on Xalkori the genetically targeted drug for ALK (anaplastic lymphoma kinase) translocation. A mutation found in my tumor cells. At 2 week of beginning treatment a stopped daily vomiting and went off all pain meds. At 8 weeks my left lung, collapsed with tumor, was open and functioning. Tumor was gone off left adrenal gland and all "nodes" forming in right lung were gone. They called it"significant" response. I am anxious to hear if this response will continue. I am stage 4 and surgery was never option. I did have 4 rounds of chemo (taxol and carboplatin) which only gave me brief stabilty. I don't know anyone else on Xalkori (crizotinib). I know it is used on a small, specific population with the ALK translocation. I wondered if anyone else is on this drug, either now or were part of the clinical trials and what their experiences have been like? I will come back with an update when I get results. I good and hope results reflect that. Susan Quote Link to comment Share on other sites More sharing options...
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