Kleo Posted September 27, 2018 Posted September 27, 2018 Well the bummer of it is that the mass hasn't changed much in size really.  My radiation doc had told me it looked like it'd shrunk to about half the size it was....so I was expecting shrinkage, but I guess not..?.😕 Why would she tell me that!!?? I prematurely celebrated my shrinkage!! LOL It's not really much different. Unless.... did it shrink a bunch and grow back again? 😫 But on the bright side, it's not getting bigger. I don't think? Abdomen and pelvis are clear and I should be good to go for immunotherapy.  Onc appointment is next Wed.Â
BridgetO Posted September 27, 2018 Posted September 27, 2018 What a dissapointment! Glad to hear it's not getting bigger. Fingers crossed for immunotherapy with good results.
Robert Macaulay Posted September 27, 2018 Posted September 27, 2018 Well the immunotherapy will take care of that in more ways than one. I asked my doctor last week what reason would be they discontinue my treatment of immunotherapy .and she replied if your cancer continued to spread,  And it seems yours has not from your scan yesterday which is excellent. Just had my third infusion yesterday and woke up this morning feeling great but I know there is possible curve ball just awaiting. lol Bob
Kleo Posted September 27, 2018 Author Posted September 27, 2018 Yes I hope that immunotherapy will help! I was kinda confused so I just had to refocus myself and go compare my first CT scan with yesterday's CT. The mass does appear to be about half the size compared to my very first CT. I was comparing to the most recent PET in May- but perhaps she was referencing my initial CT, who knows. Does anyone know why PET scans give a "one number" measurement but the CT scans give a "length by width"?   Guess I shouldn't focus so much on size. 😜
Robert Macaulay Posted September 27, 2018 Posted September 27, 2018 You asked for it. will keep your mind off size. lol https://www.researchgate.net/publication/234098012_Measurements_of_tumor_size_using_CT_and_PET_compared_to_histopathological_size_in_non-small_cell_lung_cancer
Kleo Posted September 27, 2018 Author Posted September 27, 2018 Haahaaa Bob! What in the tarnation!?? I read that as...the means of the blah blah histopathological SD is comparative to the kookookachoo. PET scans are more accurate.Then my head exploded.😆 Â
Robert Macaulay Posted September 27, 2018 Posted September 27, 2018 What in the tarnation!?? You must have missed the last week of high school.
Roz Posted September 27, 2018 Posted September 27, 2018 Kleo, I hope that the immunotherapy does the trick. Maybe on Wed. your Onc will shed some light on what those results mean. Â Ro
Kleo Posted September 28, 2018 Author Posted September 28, 2018  3 hours ago, Robert Macaulay said: What in the tarnation!?? You must have missed the last week of high school. 🤣😆 We don't need no...education! LOL Roz....thank you!   Â
BridgetO Posted September 28, 2018 Posted September 28, 2018 Maybe you missed the last week of MED school.Â
Laurel Posted September 28, 2018 Posted September 28, 2018 Kleo, I know too well the roller coaster of good news....then, it is reversed....or treatment is added you didn't expect. It is difficult for my husband and for me to celebrate. It seems the rug is just pulled out from under you. Yet, we need these good news times....so, we create our own....like, side effect is lessening....energy is returning. Keep your head up and keep one foot in front of the other. Hugs.
Kleo Posted September 28, 2018 Author Posted September 28, 2018 Thank you all! I shouldn't get so focused on the small things, I'll drive myself nuts. I'm sure I'll be doing the cancer Cha-Cha with this for a very long time. And it's really NOT bad news. I just set my expectations too high. I want it gone! Dead! I wanna be NED! 😜 Â
Robert Macaulay Posted September 28, 2018 Posted September 28, 2018 Do you have date yet to start your new treatment.? Â
Kleo Posted September 28, 2018 Author Posted September 28, 2018 Nope not yet. 😕 Hopefully she'll set me up when I go see her Wednesday!
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