Barb1260 Posted July 7, 2019 Share Posted July 7, 2019 My PET/CT report reads small volume pleural effusion now seen. What does that mean and how do they treat that? I read that it could be malignant fluid and that means it’s spreading? No new hot spots. Other than that there’s more shrinkage and less SUV. Still not NED. I don’t see oncologist until Thursday and I’m worried. Link to comment Share on other sites More sharing options...
Barb1260 Posted July 7, 2019 Author Share Posted July 7, 2019 Prognosis with pleural effusion is 6 months? Link to comment Share on other sites More sharing options...
Rower Michelle Posted July 7, 2019 Share Posted July 7, 2019 I can get why you’re worried- I can tell you I had plural effusion upon diagnosis, it cleared up and this morning I was out with the rowing team. Its hard to know on the Durva if this is a side effect? Looks like everything else is heading in the right direction. Maybe one of the more experienced members has an idea. This stinks- the waiting... ugh it’s the worst. Link to comment Share on other sites More sharing options...
Barb1260 Posted July 7, 2019 Author Share Posted July 7, 2019 I hate getting these results and then waiting. Glad you’re back doing what you love, great news there. Link to comment Share on other sites More sharing options...
Barb1260 Posted July 7, 2019 Author Share Posted July 7, 2019 Michelle-thanks for telling me yours cleared up. That helps mentally. Pizza was great Link to comment Share on other sites More sharing options...
Rower Michelle Posted July 7, 2019 Share Posted July 7, 2019 This part is so nerve wracking. I forgot to mention one of my lung buddies here in KC is on Keytruda (pre-Durva) with a high PDL-1, it took her about a year to get to NED on therapy, she’s still NED one year later, just came back fro the cruise of a lifetime. No reason why you can’t get there too. Link to comment Share on other sites More sharing options...
Barb1260 Posted July 11, 2019 Author Share Posted July 11, 2019 Oncologist said she is not concerned about the pleural effusion as it is so small and the radiologist had the same reaction. Otherwise all is great and even the inflammation from the radiation is lessening. Have a head CT on Monday to check out the weird headache I’ve had to rule out brain lesions. Hooray another test. Link to comment Share on other sites More sharing options...
Rower Michelle Posted July 11, 2019 Share Posted July 11, 2019 We can be brain twins...waiting for scheduler to call for a brain MRI for my lingering headache. In the meanwhile let’s take a page from Prince and party like it’s 1999. Glad to hear the doc isn’t worried about the PE. That’s great news! Link to comment Share on other sites More sharing options...
Isabelle49 Posted July 13, 2019 Share Posted July 13, 2019 I developed a small pleural effusion that showed up before day three of first round of chemo. It was determined to be due to fluid overload. I started 3 days of chemo at 118 lbs and my weight was 127 lbs just before the 3rd day of chemo. Lasix for 2 days now and pretty much back to my baseline weight, and breathing more easily now. Link to comment Share on other sites More sharing options...
GrammaSue Posted September 26, 2019 Share Posted September 26, 2019 I am 6 weeks post right lower lobectomy via VATS. I have had a cough the whole time which seemed better a week ago but got worse. I also heard a groaning in my lung while laying down that worried me as it was there day after surgery but went away. I have some minor tender spots around the right lung area but I am functioning fine. Do have little spasm like jerks that wake me up and seem to be coming from chest up to my neck. Saw Dr yesterday and chest xray finds increased pleural effusion so I have to see surgeon. Is this just something that can happen or is it serious? Will they have to open me up again? Scared. Link to comment Share on other sites More sharing options...
Tom Galli Posted September 26, 2019 Share Posted September 26, 2019 GrammaSue, Welcome here. My experience after a lung removal surgery, then two more surgeries to address suture problems, and three stent placements is coughing, pain and muscle twitching are all something I experienced. I had a number of pleural effusions and pneumonia after surgery also. My surgeon drained my first effusion with a nasty looking needle while an interventional radiologist handled my second. I also had a drain plug installed to keep fluid buildup from happening. All these procedures were performed using anesthesia and while not completely knocked out, I felt no pain. I don’t think you’ll need a repeat surgery to deal with the effusions. I was told the effusions occur because the lung tissue is irritated from the surgery. After I completely recovered, the effusions stopped. I hope you have the same result. Stay the course. Tom Link to comment Share on other sites More sharing options...
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