tnmynatt Posted June 24, 2004 Share Posted June 24, 2004 Charlie and I are seeing the surgeon this afternoon and will have the PET scan results. Please pray for wisdom on the part of the doctors and us in discussing of options. Thanks! You all are GREAT and I really appreciate the prayers and support. (Got carried away with the smileys). Quote Link to comment Share on other sites More sharing options...
mhutch1366 Posted June 24, 2004 Share Posted June 24, 2004 Prayers, for good results.... XOXOXOX MaryAnn Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted June 24, 2004 Author Share Posted June 24, 2004 Didn't go well. The PET scan lite up on the lymph node in his neck. Confirms stage IV. No question about it now. We are seeing the oncologist tomorrow and I am stepping up my search for clinical trials. Thanks for reading. Quote Link to comment Share on other sites More sharing options...
Margaret Posted June 24, 2004 Share Posted June 24, 2004 Well, not exactly the news we were waiting for, but prayers that a new (or maybe return to original) treatment works as positively as it did in the first round. Blessings, Margaret Quote Link to comment Share on other sites More sharing options...
Jana_W Posted June 25, 2004 Share Posted June 25, 2004 Oh Tina, I am sorry to read about the scan results I hope you find a fantastic clinical trial for Charlie to be enrolled in. Please keep us posted on what treatment he is going to have and how you are going. with love Jana xxx Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted June 25, 2004 Author Share Posted June 25, 2004 I believe it is a blessing that the lymph node showed up now. If they had proceeded with surgery thinking it had not spread (perhaps stage III), he would have ended up much weaker and with only the one lung. Then when something showed up (most likely), he wouldn't have been as able to fight it. As he is now, he is very strong and ready to continue the fight! I hope this made sense. I am very tired from the last few days. I have been researching clinical trials all evening. It looks like to me for a second line treatment, Taxotere in combination with something else has been the most effective. Any comments from others that have been here? Quote Link to comment Share on other sites More sharing options...
jamie Posted June 25, 2004 Share Posted June 25, 2004 My dad had a lyph. light up on his original PET scan. They never staged him at 4 though. He was still 3b. Not sure why their cases are different... Anyway, after chemo and radiation they got the cancer out of his lymph, and hes going for surgery (lobectomy) Tues. They found out it worked by a second PET 4 months later. Could this be a plan of action for you guys??? Ask the doc. It worked for my Dad... Best of Luck Jamie Quote Link to comment Share on other sites More sharing options...
Jana_W Posted June 25, 2004 Share Posted June 25, 2004 Hi Tina What you wrote made complete sense. I remember when Mum was first diagnosed they had been discussing doing a pneumonectomy and trying to remove the positive lymph nodes as well. But before they could do this they had to confirm if the "hot spot" on the bone scan was cancer or not. So Mum had to have a thoracotomy and have her rib removed, which which a pretty big operation in and of itself. Unfortunately this came back positive for cancer, but I remember thinking to myself how horrible it would have been if she had gone through the pneumonectomy only to find out shortly after the cancer had spread, and she only had one lung on top of that. Mum is doing pretty well one year later with no symptoms still, so I hope that Charlie has the same result. Jana xxxx Quote Link to comment Share on other sites More sharing options...
paddy Posted June 26, 2004 Share Posted June 26, 2004 So sorry the news wasn't good Tina. What a terrible let down it is when this happens. Keep your chin up, and lets hope the next treatment does the trick. Love and Prayers to you both, Paddy Quote Link to comment Share on other sites More sharing options...
Lisa O Posted July 5, 2004 Share Posted July 5, 2004 Tina, I agree with your interpretation. I am sorry for the result but it is better to find out now so he can fight with full strength! I still hope the doctors make great choices concerning his treatment. Keep us posted. Lisa Quote Link to comment Share on other sites More sharing options...
tnmynatt Posted July 5, 2004 Author Share Posted July 5, 2004 Thanks for your words of comfort. Lisa: Thanks for the affirmation! I see you have been there and done that. Your support is greatly appreciated. Charlie has been very sick the last 2 days with an infection. Finally, he woke up today feeling much better and his fever was down from the 101 - 103 he had been experiencing. I can't thank everyone enough for their friendship. Take care and have a good one! Quote Link to comment Share on other sites More sharing options...
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