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  2. Stage 3 lung cancer survivors

    Kimi. Welcome to this site. Sorry to hear of your diagnosis. My mother was diagnosed about a year ago with stage 3a lung cancer - adenosquamous tumor. She had three lymph nodes affected. She was a non-smoker and harbors the EGFR mutation. She had chemo, surgery and then radiation. It has been a year since her diagnosis and she is currently cancer free according to her last scan. Something to be thankful for indeed this year. However, she still deals with some of the side effects from treatment(s). There is hope. Just listen to some of the long term survivors here of stage 3 lung cancer as proof of that. Rest assured new treatments/combo therapies are on the horizon. god bless.
  3. New member

    Hi Linda, Welcome here. I had surgery for a Stage 1 nsclc last November and I'm due Monday for my 1-year-out CT scan. I concur with Tom that waiting to find out what happens next is the pits. You'll find hope and informaiton on this forum. Stay with us and hang in there. Bridget O
  4. Yesterday
  5. Sepsis, UTI, confusion

    I've never heard of dead tumor becoming infected. Nevertheless, I hope it resolves quickly. Stay the course. Tom
  6. New member

    Linda, I had the same diagnosis: stage IV NSCLC adenocarcinoma in both lungs. At that time systemic treatment by infusion was my only option. I only had KRAS mutation and they didn’t test for PD-L1 then. So it’s still possible that you would be eligible for a targeted therapy or Keytruda right up front. Things will calm down when you know that and have a treatment plan in place. You will not find anyone who has ever said the waiting wasn’t one of the hardest parts. Try to enjoy the rest of the holiday weekend knowing that you’ll know more on Monday. Cindy
  7. New member

    Linda, I wish you weren't joining us and rather enjoying your time in "Big Sky" country. But, I'm glad you did because even though your are Stage IV, radiation is now being used to address multiple tumors in both lungs with curative intent. One of our members wrote a blog about her experience. Here is the link. Here (select the words "What are the different types of external beam radiation therapies (EBRTs?") is more information about radiation including SBRT. This important news because SBRT radiation is as effective as surgery in dealing with tumors. I'm fortunate to have had the opportunity to travel extensively in Montana. An Army Corps of Engineer officer in my younger days, my duties took me throughout the state. One downside of living in some of the most scenic beauty in the world is Montana's remoteness and consequently difficulty in finding sophisticated treatment centers that may offer the latest in radiation treatments. But, ask your medical oncologist for a referral to a radiation oncologist. The latter will know about SBRT and will know where it is available. If you are a good candidate for SBRT, I suggest you take that course. Waiting for results, I call it Scanziety -- those who spell better call it Scanxiety -- but the symptoms are the same. I am wedded to the spelling because I wrote a book about it! Nearing 14 years of surviving late stage lung cancer, one would think I'd have a little bit less of it. Not so, I still see my oncologist twice a year and sweat-out waiting for scan results just like everyone else. I suggest you put your waiting time to good use by reading about your disease. Knowledge is power and as lung cancer survivors, knowledge allows us to ask the "terribly preceptive question" to doctors. My wife's question about a form of SBRT she read about likely saved my life! Here is a good place to start your reading. Here is an essay I wrote many years ago that may be helpful. Come February 4th, Lord willing, my wife and I will collectively paint 14 toenails red, one for each year of living past diagnosis. There is a story behind the toenail painting but for now your take-away is I've lived nearly 14 years and if I can live, so can you. Welcome here Linda! Stay the course. Tom
  8. New member

    Hello Everyone, Just been diagnosed with nsclc(adenocarcinoma)after having,chest xray, C scan, PET scan, MRI and 2 biopsies. I'm at stage 4, its in both lungs, surgery is not an option. Monday 11-27-17 I see my oncologists to find out if I might be a candidate for targeted therapies, immune therapies or chemo. Need to hear your experiences and support. I hate all the waiting around for results, it's hard me and my family.
  9. Last week
  10. Sepsis, UTI, confusion

    I haven't checked in in a while. However, we have a new problem and I need answers...so, I'm back. My 75 yr old father was diagnosed with stage 3 nsclc last year. He did chemo/radiation, break, chemo, and is now 6 months post treatment...however, he is now in the hospital AGAIN with an infection. Last month he was diagnosed with a UTI that was in his blood stream. Now, he is back and in ICU and incubated because they can't determine the cause of his "new" (according to doctor/hospitalist 🙄) infection. They suspect blood clot and have done multiple, multiple tests. Has anyone had the site of the tumor to become infected with dead the dead tissue? This was mentioned as a potential side effect months ago and I haven't found out from the doctors if they've checked...Thanks everyone and Happy Thanksgiving.
  11. Earlier
  12. I was diagnosed in May with Stage 3a lung cancer. I did chemo treatments and had my right upper lobe removed in September. Now I am starting radiation and more chemo. Is this normal treatment for Stage 3a? Reading statistics is scary.
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